Does the patient‐held record improve continuity and related outcomes in cancer care: a systematic review

Gysels, Marjolein; Richardson, Alison; Higginson, Irene J

doi:10.1111/j.1369-7625.2006.00415.x

Cited by 77 publications

(90 citation statements)

References 22 publications

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“…16 These trends mirror research in paper based PHRs, which show high support for PHRs, but relatively low utilization. 25 This suggests that until PHRs provide valuable functions that improve care on some level, or in other ways promote "stickiness," adoption rates will remain low.…”

Section: Phr Adoption and Attitudesmentioning

confidence: 98%

A Research Agenda for Personal Health Records (PHRs)

Kaelber¹,

Jha²,

Johnston³

et al. 2008

Journal of the American Medical Informatics Association

350

252

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A b s t r a c t Patients, policymakers, providers, payers, employers, and others have increasing interest in using personal health records (PHRs) to improve healthcare costs, quality, and efficiency. While organizations now invest millions of dollars in PHRs, the best PHR architectures, value propositions, and descriptions are not universally agreed upon. Despite widespread interest and activity, little PHR research has been done to date, and targeted research investment in PHRs appears inadequate. The authors reviewed the existing PHR specific literature (100 articles) and divided the articles into seven categories, of which four in particular-evaluation of PHR functions, adoption and attitudes of healthcare providers and patients towards PHRs, PHR related privacy and security, and PHR architecture-present important research opportunities. We also briefly discuss other research related to PHRs, PHR research funding sources, and PHR business models. We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency. Ⅲ J Am Med Inform Assoc. 2008;15:729 -736.

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Section: Phr Adoption and Attitudesmentioning

confidence: 98%

A Research Agenda for Personal Health Records (PHRs)

Kaelber¹,

Jha²,

Johnston³

et al. 2008

Journal of the American Medical Informatics Association

350

252

View full text Add to dashboard Cite

show abstract

“…[1][2][3][4][5][6][7][8][9] Patients with cancer often need to consult many health professionals from multiple settings, leading to fragmented care. At the treatment phase, family physicians may lose track of their patients with cancer, who are usually followed by oncology teams.…”

mentioning

confidence: 99%

Family Physician Involvement in Cancer Care Follow-up: The Experience of a Cohort of Patients With Lung Cancer

Aubin¹,

Vézina²,

Verreault³

et al. 2010

The Annals of Family Medicine

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PURPOSE There has been little research describing the involvement of family physicians in the follow-up of patients with cancer, especially during the primary treatment phase. We undertook a prospective longitudinal study of patients with lung cancer to assess their family physician's involvement in their follow-up at the different phases of cancer. METHODSIn 5 hospitals in the province of Quebec, Canada, patients with a recent diagnosis of lung cancer were surveyed every 3 to 6 months, whether they had metastasis or not, for a maximum of 18 months, to assess aspects of their family physician's involvement in cancer care. RESULTSOf the 395 participating patients, 92% had a regular family physician but only 60% had been referred to a specialist by him/her or a colleague for the diagnosis of their lung cancer. A majority of patients identifi ed the oncology team or oncologists as mainly responsible for their cancer care throughout their cancer journey, except at the advanced phase, where a majority attributed this role to their family physician. At baseline, only 16% of patients perceived a shared care pattern between their family physician and oncologists, but this proportion increased with cancer progression. Most patients would have liked their family physician to be more involved in all aspects of cancer care.CONCLUSIONS Although patients perceive that the oncology team is the main party responsible for the follow-up of their lung cancer, they also wish their family physicians to be involved. Better communication and collaboration between family physicians and the oncology team are needed to facilitate shared care in cancer follow-up.

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“…Industry standard messaging protocols can help ensure the integrity of the electronic data interchange, but changes in practice will be necessary to allow the sharing of information across and within institutions. Transparent queuing systems can help provide all members of the care team and the patient with up-to-date status checks on the requested test (24,80). Once the test has been performed, copies of the results can be forwarded to the ordering physician and can be made available to the rest of the care team, including the patient and a primary care physician.…”

Section: Root Cause Analysismentioning

confidence: 99%

Outside the Box: Will Information Technology Be a Viable Intervention to Improve the Quality of Cancer Care?

et al. 2010

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Does the patient‐held record improve continuity and related outcomes in cancer care: a systematic review

Abstract: Objectives To assess the effectiveness of the patient-held record (PHR) in cancer care.Background Patients with cancer may receive care from different services resulting in gaps. A PHR could provide continuity and patient involvement in care.

Cited by 77 publications

References 22 publications

A Research Agenda for Personal Health Records (PHRs)

A Research Agenda for Personal Health Records (PHRs)

Family Physician Involvement in Cancer Care Follow-up: The Experience of a Cohort of Patients With Lung Cancer

Outside the Box: Will Information Technology Be a Viable Intervention to Improve the Quality of Cancer Care?

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