2015
DOI: 10.1111/cch.12297
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Does the severity of disability matter? The opinion of parents about professional support in residential facilities

Abstract: Background Researchers have shown that the characteristics of a person with an intellectual

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Cited by 3 publications
(3 citation statements)
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“…9,10 Pediatric hospice is a multidisciplinary team approach to care for children with a 6-month-to-live prognosis that focuses on managing pain and symptoms and ensuring quality of end of life for the child and their family. 11,12 Hospice has been shown to significantly improve the end-of-life care in children, but with slow adaptation into the pediatric health arena.…”
mentioning
confidence: 99%
“…9,10 Pediatric hospice is a multidisciplinary team approach to care for children with a 6-month-to-live prognosis that focuses on managing pain and symptoms and ensuring quality of end of life for the child and their family. 11,12 Hospice has been shown to significantly improve the end-of-life care in children, but with slow adaptation into the pediatric health arena.…”
mentioning
confidence: 99%
“…Within the present study, participants placed particular importance on the manner in which their sibling's residential placement offered their sibling improved peer networks and meaningful activities. In contrast to the account of participants, research has typically associated residential placements with less access to social and cultural life (Hallam et al ., ; Kamstra et al ., ; Luijkx et al ., ; Zijlstra & Vlaskamp, ). Participants within this study did not perceive this to be the case for their siblings.…”
Section: Discussionmentioning
confidence: 99%
“…3,4 And yet, many children with ID do not receive quality care at end of life. 5,6 Instead, they are often treated in the emergency room for complications arising from acute episodes or deterioration of their health. 7,8 In addition, children with ID are responsible for a disproportionate number of hospital readmission with an epileptic and psychiatric crises acting as a critical predictor of readmission.…”
Section: Introductionmentioning
confidence: 99%