Doing things together: Exploring meanings of different forms of sociality among autistic people in an autistic work space

Rosqvist, Hanna Bertilsdotter

doi:10.1016/j.alter.2019.03.003

Cited by 27 publications

(10 citation statements)

References 52 publications

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“…These features all contribute to the conception of an "autistic sociality". Rosqvist's autistic participants described socially based sociality as tiring and demanding, requiring a lot of effort and guesswork to decipher, and introducing uncertainty with regards to interpretation [5]. Addressing this uncertainty, Belek highlights autistic speakers' "candor and directness", a process he termed "explicitation" [4, p. 176].…”

Section: 21mentioning

confidence: 99%

"My Perfect Platform Would Be Telepathy" - Reimagining the Design of Social Media with Autistic Adults

Pena

Koteyko

Driel

et al. 2023

Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

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In this paper, we critically examine the design of mainstream social media platforms from the point of view of autistic experiences and perspectives, drawing inspiration from the neurodiversity movement, the notion of autism as neurodivergence, and the concept of autistic sociality. We conducted 12 participatory design sessions with 20 autistic adult collaborators. Through thematic analysis of qualitative data, we identify seven challenges our participants experienced when using social media, and a set of imagined features that represent their vision of how design could better support their social media use. We discuss how mainstream social media platforms are primarily designed to address neurotypical sensitivities, and fail autistic adults through lack of user control, inadequate mechanisms for expressing tone and intention, and an orientation towards phatic interactions. To close, we outline how autistic sociality can inspire the design of kinder and more considerate social media platforms.CCS Concepts: • Human-centered computing → Collaborative and social computing; Empirical studies in collaborative and social computing.

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Section: 21mentioning

confidence: 99%

"My Perfect Platform Would Be Telepathy" - Reimagining the Design of Social Media with Autistic Adults

Pena

Koteyko

Driel

et al. 2023

Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

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“…Because all of a sudden you are in a community with someone where you are on the same wavelength … it is a really strong experience” 216 . Such autistic-to-autistic interactions promote self-understanding 181 , 214 , 217 , positive self-identity 217 , 218 and well-being 219 .…”

Section: A Capabilities Approach To Autistic Livesmentioning

confidence: 99%

“…They are drawn to those who accept them for who they are 154,159,161 and with whom they do not have to mask their autistic ways 212,213 . These friendships include (but are not restricted to) autistic to autistic interactions 214,215 . As one participant reported in a study on autistic adults' expe riences of loneliness and social relationships: "though many of us have only met each other three to four times, it feels as if we have known each other forever.…”

Section: Flowmentioning

confidence: 99%

A capabilities approach to understanding and supporting autistic adulthood

et al. 2022

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There is little comprehensive research into autistic adulthood, and even less into the services and supports that are most likely to foster flourishing adult autistic lives. This limited research is partly because autism is largely conceived as a condition of childhood, but this focus of research has also resulted from the orthodox scientific approach to autism, which conceptualizes autistic experience almost entirely as a series of biologically derived functional deficits. Approaching autism in this way severely limits what is known about this neurodevelopmental difference, how research is conducted and the services and supports available. In this Review, we adopt an alternative research strategy: we apply Martha Nussbaum’s capabilities approach, which focuses on ten core elements of a thriving human life, to research on autistic adulthood. In doing so, we identify areas where autistic adults thrive and where they often struggle, and highlight issues to which researchers, clinicians and policymakers should respond. The resulting picture is far more complex than conventional accounts of autism imply. It also reveals the importance of engaging autistic adults directly in the research process to make progress towards genuinely knowing autism and supporting flourishing autistic lives.

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“…As a crucial part of an autistic-led research process, the autistic interviewer's own experiences with autistic communication and sociality were central (Bertilsdotter Rosqvist, 2019). This can be contrasted with the challenges of cross-neurotype communication (Hillary, 2020) and the risks of double empathy problems (Milton, 2012) in an interview setting where the interviewer is non-autistic and the interviewee is autistic.…”

Section: Data Collectionmentioning

confidence: 99%

Knowing and accepting oneself: Exploring possibilities of self-awareness among working autistic young adults

Rosqvist

Hultman

Hallqvist

2022

Autism

Self Cite

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Autistic people have historically been described as incapable of developing a deeper sense of self-awareness, and autistic understandings of self-awareness have been largely disregarded. The aim of this study is to explore the way young autistic adults try to understand their functionality and who they are, or to develop their sense of self-awareness, in work and in private life contexts. In 12 qualitative interviews conducted with four autistic adults without learning difficulties, we identified a rich set of reflections on knowing and accepting oneself. The overarching theme of self-knowledge has three subthemes: learning from previous experiences, learning about oneself by securing the support of others, and understanding and accepting autistic functionality. The strategy of self-knowledge was used by these young adults to help them achieve functional lives in the work and private domains. Our results show that young autistic adults both actively explore and develop their self-awareness. We suggest that it is important for practitioners and employers working with autistic individuals to engage with their journeys of self-awareness as a vital part of understanding and supporting them. Lay abstract When researchers and professionals talk about autism, they commonly point out problems and risks with autism or being autistic. Several interventions are based on the idea of the problems and risks of autism. Another way of talking about autism is to point out autistic people’s strengths and strategies which they use to handle barriers and problems in their lives in order to live good lives on their own terms. In this article, the researchers explore how autistic young adults formulate their own difficulties, strengths and support needs in order to get right support from support people. To be able to formulate this, autistic people need to get to know oneself and one’s own way of functioning. Autistic own self-knowledge must be central when formal support people, such as social workers, formulate support and interventions aimed at helping autistic people, in order for the support/intervention to be helpful.

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Doing things together: Exploring meanings of different forms of sociality among autistic people in an autistic work space

Cited by 27 publications

References 52 publications

"My Perfect Platform Would Be Telepathy" - Reimagining the Design of Social Media with Autistic Adults

"My Perfect Platform Would Be Telepathy" - Reimagining the Design of Social Media with Autistic Adults

A capabilities approach to understanding and supporting autistic adulthood

Knowing and accepting oneself: Exploring possibilities of self-awareness among working autistic young adults

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