Don't assume the patient understands: Qualitative analysis of the challenges low health literate patients face in the pharmacy

Wali, Huda; Grindrod, Kelly

doi:10.1016/j.sapharm.2015.12.003

Cited by 16 publications

(13 citation statements)

References 14 publications

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“…and understand basic health information and services needed to make appropriate health decisions." 3 People with inadequate HL tend to have difficulties processing and applying information related to disease management, such as understanding medication labels, 4 following discharge instructions, 5,6 and participating in patient-provider communication, 7 often resulting in poorer disease management 8 and, consequently, in poorer health outcomes. 1 Compared with chronic diseases, such as heart failure, chronic kidney disease and diabetes, HL has been explored to a much lesser extent in organ transplantation and studies have not compared HL internationally.…”

mentioning

confidence: 99%

Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors—Findings from the international BRIGHT study

Cajita

Denhaerynck

Dobbels

et al. 2017

The Journal of Heart and Lung Transplantation

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confidence: 99%

Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors—Findings from the international BRIGHT study

Cajita

Denhaerynck

Dobbels

et al. 2017

The Journal of Heart and Lung Transplantation

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“…On the other hand, it will be equally important to find those patients who do not need additional information, and particularly those who are not served by such an approach while being in need of additional information – to this end, it may also be necessary to include further patient characteristics that influence information needs, predominantly the patient’s health literacy. 66 Looking at the literature, high desires for information were expressed for instance by patients with diabetes diagnosis, whereas patients with cardiovascular and respiratory diseases expressed lower desires for drug information. 9 Additional factors like diseases and comorbidities may therefore also influence individual information needs.…”

Section: Discussionmentioning

confidence: 99%

How to meet patients' individual needs for drug information - a scoping review

Kusch¹,

Haefeli²,

Seidling³

2018

PPA

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PurposeThe aim of this study was to 1) describe drug information desired by patients and 2) analyze how such information could be customized to be presented to patients according to their individual information needs.Materials and methodsWe performed a scoping literature search and identified relevant drug information topics by assessing and clustering 1) studies analyzing patients’ enquiries to drug information hotlines and services, and 2) qualitative studies evaluating patient drug information needs. For the two most frequently mentioned topics, we further analyzed which components (ie, information domains) the topics contained and examined patients’ and health care professionals’ (HCPs) views on these components.ResultsOf 27 identified drug information topics in the literature search, patients most frequently requested information on adverse drug reactions (ADRs) and drug–drug interactions (DDIs). Hypothetically, those topics are composed of seven distinct information domains each (eg, ADR and DDI classification by frequency, severity, or onset; information on management strategies, monitoring, and prevention strategies). Patients’ and HCPs’ appraisal concerning the information content of these domains varies greatly and is even lacking sometimes.ConclusionPatients particularly request information on ADRs and DDIs. Approaches to customize such information are sparse. The identified information domains of each topic could be used to structure corresponding drug information and to thus facilitate customization to individual information needs.

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“…Online consumer medication information systems (OCMIS) try to take on these challenges by being a source for relevant medication information among patients and providers [ 8 ]. Nevertheless, these OCMIS can also create a barrier for users that have a poor ability to read, understand, and use information to make health-related decisions; this skill is referred to as health literacy [ 9 - 11 ]. Moreover, the quality of information contained in a given OCMIS varies [ 12 , 13 ] and users may be unable to differentiate between high- and low-quality information [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

Evaluating Online Consumer Medication Information Systems: Comparative Online Usability Study

Sigle

Barriga

Fernández³

et al. 2020

JMIR Mhealth Uhealth

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Background Medication is the most common intervention in health care, and the number of online consumer information systems within the pharmaceutical sector is increasing. However, online consumer information systems can be a barrier for users, imposing information asymmetries between stakeholders. Objective The objective of this study was to quantify and compare the usability of an online consumer medication information system (OCMIS) against a reference implementation based on an interoperable information model for patients, physicians, and pharmacists. Methods Quantitative and qualitative data were acquired from patients, physicians, and pharmacists in this online usability study. We administered 3 use cases and a post hoc questionnaire per user. Quantitative usability data including effectiveness (task success), efficiency (task time), and user satisfaction (system usability scale [SUS]) was complemented by qualitative and demographic data. Users evaluated 6 existing systems and 1 reference implementation of an OCMIS. Results A total of 137 patients, 81 physicians, and 68 pharmacists participated in this study. Task success varied from 84% to 92% in patients, 66% to 100% in physicians, and 50% to 91% in pharmacists. Task completion time decreased over the course of the study for all but 2 OCMIS within the patient group. Due to an assumed nonnormal distribution of SUS scores, within-group comparison was done using the Kruskal-Wallis test. Patients showed differences in SUS scores (P=.02) and task time (P=.03), while physicians did not have significant differences in SUS scores (P=.83) and task time (P=.72). For pharmacists, a significant difference in SUS scores (P<.001) and task time (P=.007) was detected. Conclusions The vendor-neutral reference implementation based on an interoperable information model was proven to be a promising approach that was not inferior to existing solutions for patients and physicians. For pharmacists, it exceeded user satisfaction scores compared to other OCMIS. This data-driven approach based on an interoperable information model enables the development of more user-tailored features to increase usability. This fosters data democratization and empowers stakeholders within the pharmaceutical sector.

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Don't assume the patient understands: Qualitative analysis of the challenges low health literate patients face in the pharmacy

Cited by 16 publications

References 14 publications

Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors—Findings from the international BRIGHT study

Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors—Findings from the international BRIGHT study

How to meet patients' individual needs for drug information - a scoping review

Evaluating Online Consumer Medication Information Systems: Comparative Online Usability Study

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Don't assume the patient understands: Qualitative analysis of the challenges low health literate patients face in the pharmacy

Cited by 16 publications

References 14 publications

Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors—Findings from the international BRIGHT study

Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors—Findings from the international BRIGHT study

How to meet patients&#39; individual needs for drug information - a scoping review

Evaluating Online Consumer Medication Information Systems: Comparative Online Usability Study

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Product

Resources

About

How to meet patients' individual needs for drug information - a scoping review