Don’t make cancer survivors pay twice—the right for them to be "forgotten" should be law everywhere

Lawler, Mark; Meunier, Françoise

doi:10.1136/bmj.o2197

Cited by 7 publications

(5 citation statements)

References 5 publications

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“…This is also supported by recent studies that have begun to assess the interaction between medical/psychosocial health and socioeconomic hardship in cancer survivors. These studies have shown that financial discrimination can cause or potentially exacerbate physical and psychological harm in this population [ 44 , 45 ].…”

Section: Discussionmentioning

confidence: 99%

Prioritizing Solutions and Improving Resources among Young Pediatric Brain Tumor Survivors: Results of an Online Survey

Bonanno,

Bourque,

Robichaud

et al. 2023

Current Oncology

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Pediatric Brain Tumor Survivors (PBTS) often experience social, academic and employment difficulties during aftercare. Despite their needs, they often do not use the services available to them. Following a previous qualitative study, we formulated solutions to help support PBTS return to daily activities after treatment completion. The present study aims to confirm and prioritize these solutions with a larger sample. We used a mixed-methods survey with 68 participants (43 survivors, 25 parents, PBTS’ age: 15–39 years). Firstly, we collected information about health condition, and school/work experience in aftercare. Then, we asked participants to prioritize the previously identified solutions using Likert scales and open-ended questions. We used descriptive and inferential statistics to analyze data, and qualitative information to support participants’ responses. Participants prioritized the need for evaluation, counseling, and follow-up by health professionals to better understand their post-treatment needs, obtain help to access adapted services, and receive information about resources at school/work. Responses to open-ended questions highlighted major challenges regarding the implementation of professionals’ recommendations at school/work and the need for timely interventions. These results will help refine solutions for PBTS and provide key elements for future implementation. Translating these priorities into action will need further work involving professionals and decision makers.

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Section: Discussionmentioning

confidence: 99%

Prioritizing Solutions and Improving Resources among Young Pediatric Brain Tumor Survivors: Results of an Online Survey

Bonanno,

Bourque,

Robichaud

et al. 2023

Current Oncology

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“…Embedded within Right 10 (Reintegration) is the right to protection from financial challenges, including financial toxicity for cancer survivors. 108 …”

Section: Wp4: Financial Risk Protection For Survivors Of Cancer and D...mentioning

confidence: 99%

ESMO expert consensus statements on the screening and management of financial toxicity in patients with cancer

Carrera,

Curigliano,

Santini

et al. 2024

ESMO Open

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“…As highlighted by Francesco De Lorenzo, this research gap also be translated into a lack of concerted political and legal actions. As further elaborated by Francoise Meunier, this research gap may also be linked with a lack of concerted political and legal actions towards Europe‐wide implementation of the “right to be forgotten”, that would shield cancer survivors against any financial discriminations stemming from their patient record history [ 15 ].…”

Section: Patient‐centred Scope and Public Engagement With A Focus On ...mentioning

confidence: 99%

“…This will also ensure that inequities across EU member states are addressed, with cancer survivors having equal financial and legal rights throughout Europe. As Françoise Meunier concluded, Europe needs to deliver a strong positive message about cancer survivors having equal rights as any other European citizen [ 15 ].…”

Section: Patient‐centred Scope and Public Engagement With A Focus On ...mentioning

confidence: 99%

Engaging European society at the forefront of cancer research and care

et al. 2023

Self Cite

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European cancer research stakeholders met in October 2022 in Heidelberg, Germany, at the 5th Gago conference on European Cancer Policy, to discuss the current cancer research and cancer care policy landscape in Europe. Meeting participants highlighted gaps in the existing European programmes focusing on cancer research, including Europe's Beating Cancer Plan (EBCP), the Mission on Cancer (MoC), Understanding Cancer (UNCAN.eu), and the joint action CRANE, and put forward the next priorities, in the form of the Heidelberg Manifesto for cancer research. This meeting report presents all discussions that shed light on how infrastructures can be effectively shaped for translational, prevention, clinical and outcomes cancer research, with a focus on implementation and sustainability and while engaging patients and the public. In addition, we summarize recommendations on how to introduce frameworks for the digitalization of European cancer research. Finally, we discuss what structures, commitment, and resources are needed to establish a collaborative cancer research environment in Europe to achieve the scale required for innovation.

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Don’t make cancer survivors pay twice—the right for them to be "forgotten" should be law everywhere

Abstract: Picot J. Droit à l'oubli pour les malades de cancers : un risque relatif pour les assurances.

Cited by 7 publications

References 5 publications

Prioritizing Solutions and Improving Resources among Young Pediatric Brain Tumor Survivors: Results of an Online Survey

Prioritizing Solutions and Improving Resources among Young Pediatric Brain Tumor Survivors: Results of an Online Survey

ESMO expert consensus statements on the screening and management of financial toxicity in patients with cancer

Engaging European society at the forefront of cancer research and care

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