Double Binds and the Reproductive and Mothering Experiences of HIV-Positive Women

Ingram, Deborah D.; Hutchinson, Sally A.

doi:10.1177/104973200129118282

Cited by 96 publications

(121 citation statements)

References 32 publications

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“…Neste sentido, estudos têm indicado que a maternidade pode redimensionar positivamente a vida das portadoras do HIV/ Aids (Antle & cols., 2001;Nelms, 2005;Tompkins, Henker, Whalen, Axelrod & Comer, 1999). Por outro lado, a maternidade nesse contexto pode trazer preocupações e sobrecargas psicológicas relacionadas ao enfrentamento do diagnóstico, do status de saúde e do estigma do HIV/Aids, a revelação ou não da doença para a família e a incerteza quanto ao futuro (Ingram & Hutchinson, 2000;Knauth, 2001;Nelms, 2005;Sandelowski & Barroso, 2003).…”

Section: T R Gonçalves and C A Piccininiunclassified

Experiência da maternidade no contexto do HIV/Aids aos três meses de vida do bebê

Gonçalves

Piccinini

2008

Psic.: Teor. e Pesq.

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RESUMO -O estudo investigou a experiência da maternidade em portadoras do HIV/Aids aos três meses de vida do filho/a. Participaram seis mães (19 a 30 anos), de nível sócio-econômico baixo, três das quais já eram portadoras da doença quando engravidaram, enquanto as demais souberam no parto. As mães foram entrevistadas e suas respostas foram examinadas por meio de uma análise de conteúdo qualitativa baseada em quatro eixos teóricos: vida-crescimento, relacionar-se primário, matriz de apoio e reorganização da identidade. Os resultados mostraram que as mães tinham muitas preocupações com a possibilidade de infecção do filho/a e com a saúde do bebê, além de sentimentos de incerteza quanto ao futuro, culpa e medo do preconceito. Esses temores pareciam mais intensos para as mães que tiveram seu diagnóstico no parto. O estigma do HIV/ Aids, conflitos familiares, dificuldades com o diagnóstico e o tratamento, além de restrições sócio-econômicas e em sua rede de apoio exigiam grande esforço emocional dessas mulheres, sugerindo a necessidade de intervenções psicossociais visando à adesão ao tratamento, à qualidade de vida e ao desenvolvimento do bebê. Palavras-chave:HIV/Aids; maternidade; família. Motherhood Experience in the Context of HIV/Aids in the Third-Month-BabyABSTRACT -This study investigated motherhood experience in HIV-positive women on the third-month-baby. Six mothers, aged from19 to 30, from low socioeconomic level took part in this study. Three of these mothers got pregnant knowing that they were infected, while the others were informed during or soon after delivery. The mothers were interviewed and their accounts were examined by means of a qualitative content analysis based on four themes: life-growth, primary relatedness, support matrix, and identity reorganization. The results showed that mothers were worried about having infected their babies and about his/her health. They reported also uncertainty feelings concerning to the future, guilt, and fear of discrimination. These fears seemed more intense for the three mothers who had their diagnosis during or soon after delivery. Issues such as HIV/Aids-related stigma, family conflicts, difficulties in assimilating the diagnosis and the treatment, socioeconomic difficulties and lack of support required large emotional strength from these women. The need for psychological support and psychosocial intervention with these mothers is discussed. This could contribute for their treatment adherence, their quality of life, and the development of their children.

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Section: T R Gonçalves and C A Piccininiunclassified

Experiência da maternidade no contexto do HIV/Aids aos três meses de vida do bebê

Gonçalves

Piccinini

2008

Psic.: Teor. e Pesq.

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“…11 Society expects women to be mothers, and yet at the same time it negatively judges HIV-positive women who choose to become pregnant. 12 Emotional support plays a role in depressive symptoms; with limited support, HIV-positive individuals are more likely to exhibit depressive symptoms. 13,14 The present study aimed to determine the prevalence of depressed mood and associated factors in postnatal HIV-positive women in primary care facilities in Nkangala district, Mpumalanga, South Africa.…”

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confidence: 99%

Prevalence of postnatal depression and associated factors among HIV-positive women in primary care in Nkangala district, South Africa

Peltzer¹,

Shikwane²

2011

South. Afr. j. HIV med.

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Background. The prevalence of postpartum depression in South Africa is high, but there is lack of prevalence data on postnatal depression among HIV-infected women.Aim. The aim of this study was to determine the prevalence of depressed mood and associated factors in postnatal HIV-positive women in primary care facilities in Nkangala district, Mpumalanga, South Africa.Methods. This cross-sectional study was carried out on 607 HIV-positive postnatal women in 48 primary health care clinics and community health centres in Nkangala district. Postnatal women were recruited by systematic sampling (every consecutive patient over a period of 2 months). Demographic and other data were obtained from all the women who responded to a questionnaire in the local language on male involvement, HIV test disclosure, delivery and infant profile, infant HIV diagnosis, stigma, discrimination, postnatal depression, attendance of support groups and social support.Results. Overall, 45.1% of women reported a depressed mood in the postnatal period. Depressed mood in a multivariable analysis was significantly associated with internalised stigma (odds ratio (OR) 1.12, 95% confidence interval (CI) 1.05 -1.19; p=0.000), discrimination experiences (OR 1.22, CI 1.03 -1.46; p=0.023), lack of social support (OR 0.86, CI 0.74 -0.99; p=0.037) and having had an STI in the past 12 months (OR 2.22, CI 1.21 -4.04; p=0.010). There were no statistically significant correlations between the Edinburgh Postnatal Depression Scale (EPDS) scores of the women and age, marital status, level of education, employment status and number of own children. Conclusion.Depressed mood is common among HIV-positive postpartum women. This is significantly associated with lack of social support, stigma and discrimination. Routine screening to identify those currently depressed or at risk of depression should be integrated into postnatal care settings to target those most needing intervention.

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“…The participants desired chil-dren because they wanted to continue their families into the future and to fulfil their gender identities in the family and be accepted in their community despite the possible HIV-risk and community stigmatization. Ingram and Hutchinson (1999) described having children as a link to life, as a reason to continue living and as a source of support later in life. Parenthood contributes to one's gender identity, despite different procreation rules for PLHIV.…”

Section: Discussionmentioning

confidence: 99%

Reproductive desires of men and women living with HIV: implications for family planning counselling

Zyl

Visser

2015

Reproductive BioMedicine Online

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The reproductive desires of people living with HIV/AIDS (PLHIV) of low socioeconomic standing attending public health facilities in South Africa were studied. HIV-positive men, pregnant and non-pregnant women were recruited from two clinics at a large public hospital in Tshwane, South Africa. Individual interviews were used to explore the reproductive desires of HIV-positive participants. HIV counsellors' perceptions of their clients' reproductive desires were explored during focus group discussions. Parenthood proved to be an important factor to all participants in continuation of the family and establishing their gender identities, despite the possible risk of HIV transmission and community stigmatization. Different cultural procreation rules for men and women and stigmatizing attitudes towards PLHIV affected their reproductive decision making. Women had the dilemma of choosing which community expectations they wanted to fulfil. Community stigmatization towards PLHIV was visible in the negative attitudes of some HIV counsellors regarding HIV and procreation. Because the reproductive desires of PLHIV are currently not given high priority in HIV prevention and family planning in the public health sector in South Africa, the prevention of HIV transmission may be jeopardized. These results necessitate the integration of HIV and sexual and reproductive health counselling on a primary health care level

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Double Binds and the Reproductive and Mothering Experiences of HIV-Positive Women

Cited by 96 publications

References 32 publications

Experiência da maternidade no contexto do HIV/Aids aos três meses de vida do bebê

Experiência da maternidade no contexto do HIV/Aids aos três meses de vida do bebê

Prevalence of postnatal depression and associated factors among HIV-positive women in primary care in Nkangala district, South Africa

Reproductive desires of men and women living with HIV: implications for family planning counselling

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