Down syndrome is not disappearing in Taiwan

Weng, Chun-Ying; Chang, Yu-Hsun; Cheng, Ching‐Feng; Chu, Shao‐Yin

doi:10.1016/j.tcmj.2011.07.004

Cited by 2 publications

(2 citation statements)

References 3 publications

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“…They were seriously seeking to learn the methods of mental stimulation in children and trying to become familiar with different specialized community support sources via close interactions with the healthcare systems. [ 45 ] It enabled these families and parents to obtain greater skills and adapt to daily life schedules and management of childcare. [ 36 ] A study on families with a disabled member showed that enhanced knowledge helped them broaden their developmental skills, such as communication, confidence, happiness, and adaptation, instead of focusing on problems.…”

Section: Discussionmentioning

confidence: 99%

Coping strategies adopted by Iranian families of children with Down syndrome

2020

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Down syndrome (DS) is the leading cause of intellectual disability. Previous quantitative studies have examined the effects of DS on families of children with DS. This study explored the coping strategies adopted by the families of children with DS. This was a qualitative content analysis study, in which the participants were selected using purposive sampling from the families of children with DS. Semi-structured interviews were performed and collected data were analyzed. A total of 20 family members (10 mothers, 6 fathers, 2 brothers, and 2 sisters) were interviewed. Six categories were extracted in this study, namely “searching for information,” “paying attention to children's healthcare needs,” “concentration on spirituality,” “teaching socially appropriate behavioral skills,” “efforts to increase self-reliance in children,” and “development of family support circle.” The participating families were able to use positive adaptive mechanisms and cope well with the problems associated with having a child with DS. However, they still needed more support from healthcare providers and support organizations. Receiving more support from healthcare providers, such as nurses, can help them in better management of their children.

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Section: Discussionmentioning

confidence: 99%

Coping strategies adopted by Iranian families of children with Down syndrome

2020

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“…These parents tried to learn how to stimulate their children's mental processes. They also kept in touch with healthcare services and specialists responsible for allocating social supportive sources [ 45 ].…”

Section: Discussionmentioning

confidence: 99%

Family Self-Support in Managing Down Syndrome Children: A Qualitative Study

Noroozi,

Farrar,

Gharibi

et al. 2024

The Scientific World Journal

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Background and Aim. Down syndrome (DS) is the most common reason for disabilities caused by genetic disorders. Due to the special nature of this disease and the special needs of children with Down syndrome, they are required to receive their families’ support. Therefore, the recognition of their problems and needs and also the alternatives for resolving them and promoting their life quality are very useful. Also, since very limited qualitative studies have been conducted, it seems necessary to design a qualitative study. Method. This qualitative study was conducted by the content analysis method and through purposeful sampling method with the participation of 26 participants including 15 mothers, 6 fathers, 3 sisters, and 2 brothers of DS children in 2022-2023. The data were collected through semi-structured interviews. Findings. Using the content analysis method of Graneheim and Lundman (2004), the main theme was “Family self-supporting in protecting Down syndrome children.” The subthemes were seven including “trying to find information-support resources,” “Giving importance to child’s health,” “religious beliefs of the family,” “child moral education, helping to child’s relative self-support,” “developing familial support,” and “developing child’s social interactions.” Conclusion and Recommendations. The findings of this study showed that family is the main source of fulfilling the needs of children and their life challenges through using efficient self-support methods. This study introduced family self-support methods in terms of DS children in a way that other families can also manage the problems of their children more efficiently. The present study can be used by trustees of DS to support them and their families. Considering the existence of many problems in children with Down syndrome and the involvement of families, it is suggested that policymakers and community health managers provide the basis for receiving services and social support. For example, it is possible to strengthen the screening systems in the country to diagnose the disease on time and take quick action to solve this problem. Also, by increasing the health insurance coverage and fair distribution of the support resources needed by these people, it promoted the quality of life for them and their families. Also, health policymakers in Iran can take action to increase life expectancy and reduce deaths caused by DS by improving the equitable distribution of health resources and services. Also, public policies should enhance supportive intermediation for prevention and life quality promotion and also decrease health challenges. They are also supposed to lessen the costs of health care. Furthermore, to support social organizations, health service providers and researchers should consider the development of intermediations for the health enhancing and life quality promoting of DS children.

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Down syndrome is not disappearing in Taiwan

Cited by 2 publications

References 3 publications

Coping strategies adopted by Iranian families of children with Down syndrome

Coping strategies adopted by Iranian families of children with Down syndrome

Family Self-Support in Managing Down Syndrome Children: A Qualitative Study

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