Driving Status and Community Integration After Stroke

Griffen, Julie A.; Rapport, Lisa J.; Bryer, Renee Coleman; Scott, Carolyn

doi:10.1310/tsr1603-212

Cited by 38 publications

(34 citation statements)

References 45 publications

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Section: Resultsmentioning

confidence: 99%

“…There was one article that was specific to individuals with stroke (Griffen et al, 2009) and a study reported over two articles that was unique to individuals with TBI (Liddle et al, 2011;Liddle, Fleming, et al, 2012). In all the articles, there was an almost equal distribution of spouses and other family members (Griffen et al, 2009;Liddle et al, 2011;Liddle, Fleming, et al, 2012 Prior to stopping driving, 63% of females were taking household shopping trips compared to 34% of the males.  Individuals who were driven by family members for non-essential travel (e.g., leisure trips) rose from 17 to 76%  13% of caregivers reported giving up the worker role while 33% reported missing work occasionally  58% of family members rated the older driver's driving as "good" or "excellent" while 81% individuals did so (p=0.0342)  Regarding driving decisions, 42% of family members and 11% of older drivers felt that they should not be driving (p=0.0027)  While the older driver reported that advice to stop driving all came from their adult children, family members reported that the older driver's friends (22%), adult children (67%) and spouses (11%) had advised as well.…”

Section: Resultsmentioning

confidence: 99%

“…Although there are alternative transport methods available that could enable an individual's continued access to out-of-home activities, barriers such as lack of knowledge about alternative transport, the cost of some transportation methods such as taxis, and environmental considerations such as the weather often hinders the use of alternative transport (Logan, Dyas, & Gladman, 2004). Furthermore, an individual's driving status has been shown to influence community integration outcomes despite the availability of other forms of transportation (Griffen, Rapport, Bryer, & Scott, 2009;Rapport et al, 2008).…”

Section: Abi and Drivingmentioning

confidence: 99%

“…Recognising the significance of driving to the individual, family members believed that the process of facilitating driving disruption should be done respectfully (Adler, 2010). Family members were aware that driving disruption can affect the individual in several areas, for example, in terms of accessing work for individuals with TBI (Liddle, Fleming, et al, 2012), community integration outcomes such as productive use of time and level of mobility for individuals with stroke (Griffen et al, 2009), and affecting an individual's sense of independence, identity and self-esteem (Liddle et al, 2013;Liddle, Fleming, et al, 2012). Family members also raised their concerns regarding alternative transport and the difficulties with public transport across several studies (Adler et al, 2000;Liddle, Fleming, et al, 2012;Perkinson et al, 2005;Sterns, 2001).…”

Section: Decisions and Consequences For The Individualmentioning

confidence: 99%

“…The review identified that family members experience disruption to personal occupational roles, and communication, emotional and other issues related to driving. Although some studies of family members of individuals with ABI were included in the scoping review, these studies did not specifically explore the experience of family members in-depth (Griffen et al, 2009;Liddle et al, 2011;Liddle, Fleming, et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

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Family members’ needs and experiences related to driving disruption following acquired brain injury

Liang¹

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Family members often assume the caregiving role after an individual sustains an acquired brain injury (ABI). A mandated period of driving disruption following an ABI means that individuals will often rely heavily on family members for transport and emotional support.However, research on driving disruption has largely focused on the impact, assessment and rehabilitation of the individual with ABI, with little attention given to family members. In order to develop an understanding for approaches to support family members better, this thesis aimed to explore the needs and experiences of family members during driving disruption following an ABI.The first aim of the thesis was to gain a broader understanding of the issue by conducting a scoping review of the literature on family members' needs and experiences during driving disruption across all health conditions. The scoping review found that driving disruption is a stressful and complex issue with communication and emotional implications for family members. The review highlighted differences in experiences according to health condition, permanence of driving disruption and nature of the caregiver occupation, and identified the need for further research on the issue of driving disruption for family members of individuals with ABI.A prospective, mixed methods, longitudinal study, with a phenomenological approach was conducted with family members of individuals with ABI who were experiencing driving disruption. Recruitment was stratified according to time post-ABI to gain a range of perspectives. Data were collected from 15 family members at three time-points: recruitment to study, 3 and 6 months later. Self-report questionnaires measuring family members' quality of life and well-being were administered at the first time-point, and semistructured interviews were conducted at each time-point. All interviews incorporated the use of a map to elicit qualitative and quantitative data about family members' current travel patterns as a result of driving disruption. The data were analysed using different approaches in a series of four studies.The first two studies aimed to gain an in-depth understanding about the experiences of family members of individuals experiencing driving disruption due to ABI across the recovery continuum. Both studies examined the mixed methods cross-sectional data from the first time-point. The first study explored the differences in family members' experiences iii at the early (<1 year post-ABI) and later stages (>1 year post-ABI) using a mixed methods, phenomenological approach. Family members in the later group reported more challenges with greater intensity. These challenges included changes in everyday activities, the impact on their emotions, consequences for the whole family, and effects on physical health. The later group had lower ratings of health and well-being, and higher caregiver strain.The second study investigated the specific changes family members experienced in everyday activities with a focus on the impact of driving disru...

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