Dual Roles: Experiences of Special Educators who are Mothers of a Child with a Disability

Bomgardner, Estyr M.; Accardo, Amy L.

doi:10.1007/s10826-022-02231-2

Cited by 3 publications

(1 citation statement)

References 18 publications

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“…We are also imperfect parents who are doing our best and attempting to learn from our mistakes just like everyone else. Telling parents that they are amazing only emphasizes the ableist notion that our child’s condition is a misfortune or a struggle and that only “super” parents would be able to manage it [ 95 , 96 ].…”

Section: Resultsmentioning

confidence: 99%

The Psychosocial Impact of Congenital Cytomegalovirus on Caregivers and Families: Lived Experiences and Review of the Literature

Zappas

Devereaux

Pesch

2023

IJNS

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Caring for a child with congenital cytomegalovirus (cCMV) can be costly for families, not only in terms of out-of-pocket expenses, but also in terms of caregiver time, relationships, career trajectories, and mental health. These additional burdens are sometimes referred to as “spillover effects”. As parents of children with cCMV, we, the authors of this article, discuss the impact that cCMV has had on our families. While multiple studies have reported on the epidemiology, prevention, screening, diagnosis, and management of cCMV, there has been minimal research regarding the possible impact on the family unit. In this narrative review, we discuss the various areas of the lives of families and caregivers that may be impacted by raising a child with cCMV. Whether children are minimally or severely affected by the sequelae of cCMV, they and their families merit the progression of awareness of the virus and governmental policies to help end cCMV. As the existing cCMV-specific literature is limited, we correlate studies of other childhood disabilities and find the mutuality experienced by families affected by cCMV.

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Section: Resultsmentioning

confidence: 99%

The Psychosocial Impact of Congenital Cytomegalovirus on Caregivers and Families: Lived Experiences and Review of the Literature

Zappas

Devereaux

Pesch

2023

IJNS

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When Being an Expert May Not Be Enough: Understanding the Experiences of Special Education Professionals Parenting Children with Disabilities

Batz,

Blanchard

2024

Exceptional Children

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How do special education-related professionals parenting children with disabilities experience the special education system? This qualitative exploratory study delves into the experiences of 25 mother-educators who are special education-related professionals navigating the special education system for their children with disabilities. Through thematic analysis, our findings elucidate how the special education system perpetuates inequitable practices. The study describes four central themes: (1) the nuanced role of mother-educators’ expertise, (2) the capacity and willingness of school staff to serve children with disabilities, (3) the inherent inequalities within the special education system, and (4) the role of advocacy. Most of these mother-educators could occasionally leverage social, cultural, and economic capital to advocate and secure services for their children. However, despite their ability to leverage such resources and extensive knowledge about their children and the special education system, these mother-educators encountered numerous challenges in advocating for and securing services for their children. We discuss the implications of our findings for federal mandates on family engagement and caution against the deficit-based nature of special education. Furthermore, we propose recommendations for fostering more equitable approaches within the system. This study underscores the need for systemic changes to ensure that all children with disabilities receive the support and services they deserve.

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Engineers and Mothers of Color: The Struggle of Juggling Work and Children with a Specific Learning Difficulty

Cook-Chennault,

Villanueva Alarcón

2024 ASEE Annual Conference &Amp; Exposition Proceedings

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Dual Roles: Experiences of Special Educators who are Mothers of a Child with a Disability

Cited by 3 publications

References 18 publications

The Psychosocial Impact of Congenital Cytomegalovirus on Caregivers and Families: Lived Experiences and Review of the Literature

The Psychosocial Impact of Congenital Cytomegalovirus on Caregivers and Families: Lived Experiences and Review of the Literature

When Being an Expert May Not Be Enough: Understanding the Experiences of Special Education Professionals Parenting Children with Disabilities

Engineers and Mothers of Color: The Struggle of Juggling Work and Children with a Specific Learning Difficulty

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