Dyadic effects of fear of recurrence on the quality of life of cancer survivors and their caregivers

Kim, Youngmee; Carver, Charles S.; Spillers, Rachel L.; Love-Ghaffari, Melissa; Kaw, Chiew Kwei

doi:10.1007/s11136-011-9953-0

Cited by 98 publications

(118 citation statements)

References 48 publications

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“…Although advances in current treatments dramatically increase the number of cancer survivors in recent years, fear of recurrence is still a main concern for cancer patients (Kim et al, 2012). The findings of some studies conducted in Iran also indicated fear of recurrence as one of the major concerns among Iranian cancer patients (Taleghani et al, 2006;Abdollahzadeh et al, 2014).…”

Section: Discussionmentioning

confidence: 99%

Perceptions of Iranian Cancer Patients Regarding Respecting their Dignity in Hospital Settings

Avestan¹,

Rahmani²,

Nabavi³

et al. 2015

Asian Pacific Journal of Cancer Prevention

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Background: There are several factors that threaten the dignity of cancer patients in hospital settings. However, there is limited literature regarding the degree to which dignity of cancer patients is actually respected in daily clinical practice. The aims of this study were therefore to explore cancer patient perceptions of respecting their dignity and related variables in an Iranian cancer specific center. Materials and Methods: This descriptivecorrelational study was carried out among 250 cancer patients admitted to a cancer specific center in East Azerbaijan Province, Iran. These patients were selected using a convenience sampling method. The Patient Dignity Inventory (PDI) was used for data collection. Descriptive and inferential statistics were used for data analysis. Results: The patients' scores in 18 out of 25 items of PDI were 3 or greater which indicate the importance of considering these items in clinical settings. Also, the score of patients in three sub-scales of PDI including illnessrelated concerns, personal dignity, and social dignity were 74, 65 and 57, respectively (based on a total 100). The overall score of PDI was statistically associated with age, history of disease recurrence, education, employment and economic status of participants. Conclusions: According to the study findings the dignity of Iranian cancer patients is not completely respected in clinical settings which require special considerations. As nurses spend more time at patients' bedsides, they have an important role in maintaining and promoting dignified care.

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Section: Discussionmentioning

confidence: 99%

Perceptions of Iranian Cancer Patients Regarding Respecting their Dignity in Hospital Settings

Avestan¹,

Rahmani²,

Nabavi³

et al. 2015

Asian Pacific Journal of Cancer Prevention

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“…Studies also state that caregivers experience physical, social, psychological, and economical issues during the time they provide care to the patient; ultimately, causing an increase in care burdens and a deterioration in their quality of life (Morımoto, 2003). Studies report that characteristics such as age, gender, education level, income status, care period, changes in social life, and lack of family support have an effect on the quality of life of caregivers providing cancer patients with care (Tang et al, 2008;Özer et al, 2009;O'Hara et al, 2010;Alptekin et al, 2010;Kim, 2010;Tamayo et al, 2010;Collins, 2011;Hacıalioğlu et al, 2011;Kim et al, 2011;Song et al, 2011).…”

Section: Effects Of Care Burdens Of Caregivers Of Cancer Patients On mentioning

confidence: 99%

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Türkoğlu¹,

Kılıç²

2012

Asian Pacific Journal of Cancer Prevention

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In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was 36.6±11.2; and their score mean of CQOLC was 81.4±17.3. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.

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“…For example, both cancer survivors and their caregivers frequently report elevated stress and fear of cancer recurrence, which have been associated with poor mental and physical health outcomes, decreased quality of life [3], and reduced adherence to follow-up care [4]. Research has also documented the interdependence of mental and physical health within survivor-caregiver dyads [5][6][7] and shown that dyadfocused approaches to reducing breast cancer patients' depressive symptoms may be more efficacious than individual-oriented approaches [8]. Thus, there is increasing interest in developing dyad-focused research studies and interventions that involve both breast cancer survivors and their caregivers [9].…”

Section: Introductionmentioning

confidence: 99%

Recruitment of breast cancer survivors and their caregivers: implications for dyad research and practice

Bazzi

Clark

Winter

et al. 2016

Translational Behavioral Medicine

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Breast cancer survivors' informal caregivers experience adverse health outcomes and could benefit from interventions. Studies of caregivers' participation in research, to date, have assumed heterosexuality. The aim of this study is to identify factors associated with caregiver participation among survivors with diversity in sexual orientation. We recruited breast cancer survivors into a telephone survey and asked them to invite a caregiver. Logistic regression identified factors associated with caregivers' participation. Among 297 survivors, 12 (4 %) had no caregivers, 82 (28 %) refused to provide caregiver information, 203 (68 %) provided caregiver contact, and 167 (56 %) had caregivers participate. Caregiver participation was more likely among sexual minority than heterosexual survivors (aOR: 1.89; 95 % CI: 1.08, 3.32), dyads with higher cohesion, and among caregivers who were partners. Caregiver participation was less likely among survivors with lower education and higher comorbidity. Findings provide insight into recruitment of diverse dyads into cancer survivorship research that will ultimately inform intervention design.

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Dyadic effects of fear of recurrence on the quality of life of cancer survivors and their caregivers

Cited by 98 publications

References 48 publications

Perceptions of Iranian Cancer Patients Regarding Respecting their Dignity in Hospital Settings

Perceptions of Iranian Cancer Patients Regarding Respecting their Dignity in Hospital Settings

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Recruitment of breast cancer survivors and their caregivers: implications for dyad research and practice

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