Dyadic effects of social support, illness uncertainty on anxiety and depression among lung cancer patients and their caregivers: a cross-sectional study

Sun, Jiejie; Gu, Danfeng; Shen, Sa; Zhou, Yiwen; Wang, Zhiqiang

doi:10.1007/s00520-023-07876-3

Cited by 11 publications

(3 citation statements)

References 40 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A telephone self‐management intervention for patients awaiting liver transplant was not effective at improving uncertainty, uncertainty management, depression, anxiety, self‐efficacy, or quality of life [34]. Prior studies of uncertainty in patients with pulmonary diseases have largely been qualitative and focused on a narrow selection of illnesses, including lung cancer [36], COPD [12, 37, 38], critical illness [39], and pulmonary nodules [40]. The degree of uncertainty measured by the MUIS‐A in our study was similar to other chronically ill patient populations including those with Hepatitis C [41], awaiting liver transplant [28], and COPD [38] (Table A.4).…”

Section: Discussionmentioning

confidence: 99%

Uncertainty and Communication Preferences Among Patients Undergoing Lung Transplant Evaluation: A Mixed‐Methods Study

Lange,

Mehta,

Ramos

et al. 2024

Clinical Transplantation

View full text Add to dashboard Cite

ObjectiveHigher uncertainty is associated with poorer quality of life and may be impacted by clinician communication about the future. We determined how patients undergoing lung transplant evaluation experience uncertainty and communication about the future from clinicians.MethodsWe performed a convergent parallel mixed‐methods study using a cross‐sectional survey and semistructured interviews. Patients undergoing lung transplant evaluation at the University of Colorado and the University of Washington answered questions about future communication and completed the Mishel Uncertainty in Illness Scale‐Adult (MUIS‐A; range 33–165, higher scores indicate more uncertainty). Interviews were analyzed using content analysis. Integration of survey and interview results occurred during data interpretation.ResultsA total of 101 patients completed the survey (response rate: 47%). Twelve survey participants completed interviews. In the survey, most patients identified changing family roles as important (76%), which was infrequently discussed with clinicians (31%). Most patients (86%) worried about the quality of their life in the future, and 74% said that not knowing what to expect in the future prevented them from making plans. The mean MUIS‐A score was 85.5 (standard deviation 15.3). Interviews revealed three themes: (1) uncertainty of the future distresses participants; (2) participants want practical information from clinicians; and (3) communication preferences vary among participants.ConclusionParticipants experienced distressing uncertainty and wanted information about the future. Communication topics that were important to participants were not always addressed by physicians. Clinicians should address how chronic lung disease and lung transplant can directly impact patients’ lives and support patients to cope with uncertainty.

show abstract

Section: Discussionmentioning

confidence: 99%

Uncertainty and Communication Preferences Among Patients Undergoing Lung Transplant Evaluation: A Mixed‐Methods Study

Lange,

Mehta,

Ramos

et al. 2024

Clinical Transplantation

View full text Add to dashboard Cite

show abstract

“…The results of the study showed that the family resilience among caregivers of stroke patients was negatively correlated with disease uncertainty (r = −0.481, P < 0.01). When the caregiver has knowledge of the disease risk factors, causes, treatment programmers, rehabilitation plans, etc., their level of uncertainty about the disease will be reduced, which reduces the level of anxiety and depression, 42 thus increasing individual resilience. 43 At this point, if the core family members can share the responsibility and actively utilize the internal resources of the family, they will successfully withstand the crisis, restore the stability of the family, and improve family resilience.…”

Section: Family Resilience In Relation To Illness Uncertainty and Per...mentioning

confidence: 99%

Relationship Between Illness Uncertainty and Family Resilience Among Caregivers of Stroke Patients in Chinese Nuclear Families: The Mediating Role of Perceived Stress

Li,

Luo,

et al. 2024

PPA

View full text Add to dashboard Cite

“…Although there have been many studies on illness uncertainty in cancer and other chronic disease populations [ 38 – 40 ], little research has focused on illness uncertainty in family members for ICU trauma patients. To our knowledge, although more and more evidence is available in additional fields, relationships among family function, psychological resilience, and illness uncertainty of family members of ICU trauma patients are largely unclear.…”

Section: Introductionmentioning

confidence: 99%

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

Yu,

Zhang,

et al. 2024

BMC Psychiatry

View full text Add to dashboard Cite

Background Severe trauma accounts for a main factor inducing mortality for individuals aged < 45 years in China, which requires admission to intensive care unit (ICU) to receive comprehensive treatment. Family members of patients with unanticipated and life-threatening trauma during their ICU stays often experience psychosocial distress due to illness uncertainty. Previous research has shown that family function and psychological resilience are associated with illness uncertainty, respectively. However, little is known about the current situation and interacting mechanism between family function, psychological resilience, and illness uncertainty of family members for ICU trauma patients. Therefore, this study focused on exploring the current situation and relationships between these three factors in family members for ICU trauma patients. Methods The convenience sampling approach was adopted in the present cross-sectional survey, which involved 230 family members for ICU trauma patients from 34 hospitals in Chongqing, China. Related data were extracted with self-reporting questionnaires, which included sociodemographic characteristic questionnaire, the Family Adaptability, Partnership, Growth, Affection and Resolve Scale (APGAR), the 10-item Connor-Davidson Resilience Scale (10-CD-RISC) and the Mishel’s Illness Uncertainty Scale for Family Members (MUIS-FM). Pearson correlation analysis was conducted to examine the correlations between various variables. Additionally, a structural equation model was adopted to assess the mediating effect of psychological resilience on family function and illness uncertainty. Results According to our results, family members for ICU trauma patients experienced high illness uncertainty with moderate family dysfunction and low psychological resilience. Family function directly affected illness uncertainty and indirectly affected illness uncertainty through psychological resilience in family members of ICU trauma patients. Conclusions Family function and psychological resilience are the protective factors for reducing illness uncertainty. Healthcare providers should take effective measures, including family-functioning improvement and resilience-focused interventions, for alleviating illness uncertainty in family members of ICU trauma patients.

show abstract

Dyadic effects of social support, illness uncertainty on anxiety and depression among lung cancer patients and their caregivers: a cross-sectional study

Cited by 11 publications

References 40 publications

Uncertainty and Communication Preferences Among Patients Undergoing Lung Transplant Evaluation: A Mixed‐Methods Study

Uncertainty and Communication Preferences Among Patients Undergoing Lung Transplant Evaluation: A Mixed‐Methods Study

Relationship Between Illness Uncertainty and Family Resilience Among Caregivers of Stroke Patients in Chinese Nuclear Families: The Mediating Role of Perceived Stress

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

Contact Info

Product

Resources

About