Dying in Long-Term Care: Perspectives from Sexual and Gender Minority Older Adults about Their Fears and Hopes for End of Life

Kortes-Miller, Katherine; Boulé, Jessica; Wilson, Kimberley; Stinchcombe, Arne

doi:10.1080/15524256.2018.1487364

Cited by 46 publications

(92 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Apart from modifying their physical environment, patients ultimately needed a space where they felt safe and accepted.You need to make sure you have an environment where LGBTQ people will feel accepted, comfortable, acknowledged, and not have to go back into the closet in order to be there. (Patient) 39 …”

Section: Resultsmentioning

confidence: 99%

“…You need to make sure you have an environment where LGBTQ people will feel accepted, comfortable, acknowledged, and not have to go back into the closet in order to be there. (Patient) 39…”

Section: Resultsmentioning

confidence: 99%

“…Throughout the narratives, the authors noted several recurring elements: Isolation, where (a) patients were exempted from updates on their prognosis and treatment planning and received disempowering attention 39,54 and (b) family caregivers experienced overwhelming caregiving responsibilities and immense emotional turmoil without adequate support. 42,52 Self-judgment, where (a) patients criticized their value as a dignified person due to the gradual losses in their bodily functions 10,43 and (b) family caregivers experienced conflicted feelings over their roles in caregiving and making surrogate decisions.…”

Section: Discussionmentioning

confidence: 99%

“…Isolation, where (a) patients were exempted from updates on their prognosis and treatment planning and received disempowering attention 39,54 and (b) family caregivers experienced overwhelming caregiving responsibilities and immense emotional turmoil without adequate support. 42,52…”

Section: Discussionmentioning

confidence: 99%

“…The literature search identified 303 articles as potentially relevant, and of these, 120 articles were selected for full-text screening and 48 articles were included in the final analysis. 7,10 -56 The screening process is presented in Figure 1, and the overview of the 48 articles is presented in Table 2.…”

Section: Methodsmentioning

confidence: 99%

See 4 more Smart Citations

Reciprocal Dynamics of Dignity in End-of-Life Care: A Multiperspective Systematic Review of Qualitative and Mixed Methods Research

Choo

Tan-Ho

Dutta

et al. 2019

Am J Hosp Palliat Care

View full text Add to dashboard Cite

Background: Preserving terminally ill patients’ dignity and well-being through dignified and holistic care has become the overarching goal in palliative care services. However, dignity is a multifaceted concept with a wide range of interpretations under different cultural contexts. Aim: The aim of this review is to understand the variations in subjective interpretations and constitutions of dignity in palliative or end-of-life care via an integrative worldview. Design: This systematic review adhered to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guideline and used SPIDER tool to screen for appropriate and relevant articles for analysis. Data Sources: Four major databases were searched including CINAHL, ERIC, Medline, and PsycARTICLES between 2009 and 2018. Forty-eight qualitative studies that examined dignity from the perspectives of patients, family caregivers, and health-care professionals were selected for full text data analysis using thematic synthesis. Results: Analysis of the various concepts of dignity revealed 18 themes that were further categorized into 7 conceptual categories: (1) self-determination, (2) existential liberty, (3) relational connectedness, (4) caregiving revitalization, (5) mindful humanity, (6) patient–family care, and (7) sustainable culture. These 7 categories span across individual, familial, and institutional dimensions, forming a new Dynamic Reciprocity of Dignity model. Conclusions: The Dynamic Reciprocity of Dignity model highlights the importance of adopting a systemic lens to address dignity-related needs and concerns at the end of life, while providing insights on how compassionate care and self-compassion can serve as the foundation of dignified care, which in turn serve as a buffer against patients’ existential suffering as well as caregivers’ burnout and fatigue. Recommendations for clinical practice and future research directions are discussed.

show abstract

Section: Resultsmentioning

confidence: 99%

“…You need to make sure you have an environment where LGBTQ people will feel accepted, comfortable, acknowledged, and not have to go back into the closet in order to be there. (Patient) 39…”

Section: Resultsmentioning

confidence: 99%