Dying in the Hospital: What Happens and What Matters, According to Bereaved Relatives

Witkamp, Frederika E.; Zuylen, Lia van; Borsboom, Gerard; Rijt, Carin C.D. van der; Heide, Agnes van der

doi:10.1016/j.jpainsymman.2014.06.013

Cited by 44 publications

(45 citation statements)

References 53 publications

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“…The six themes elucidated in our study overlap broadly with findings from studies focused on quality of end-of-life care in other care settings, such as the general hospital ward or the ICU. 27,28 Although end-of-life care also may be provided in other settings, PCUs serve as specialized centers of excellence for such care, and thus exemplify its optimal provision in a specialized setting.…”

Section: Discussionmentioning

confidence: 99%

Quality of Care and Satisfaction With Care on Palliative Care Units

Wentlandt

Seccareccia

Kevork

et al. 2016

Journal of Pain and Symptom Management

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Section: Discussionmentioning

confidence: 99%

Quality of Care and Satisfaction With Care on Palliative Care Units

Wentlandt

Seccareccia

Kevork

et al. 2016

Journal of Pain and Symptom Management

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“…6,7 Nonetheless, to date, few studies have explored the clinical significance of the family's presence or absence at the moment of a patient's death and meaningful communication (saying ''goodbye'') in terms of post-bereavement outcomes. 8 The primary aim of this study was to explore the potential associations between psychological outcomes on measures of depression and complicated grief on the one hand, and presence at the moment of death and meaningful communication between the patient and bereaved family members on the other.…”

Section: Introductionmentioning

confidence: 99%

Meaningful Communication Before Death, but Not Present at the Time of Death Itself, Is Associated With Better Outcomes on Measures of Depression and Complicated Grief Among Bereaved Family Members of Cancer Patients

Otani

Yoshida

Morita

et al. 2017

Journal of Pain and Symptom Management

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Many families wished to be present at the moment of the patient's death; however, meaningful communication (saying "goodbye") between the patient and family members, and not their presence or absence itself, was associated with better outcomes on measures of depression or complicated grief. Health care professionals could consider promoting both mutual communication (relating to preparation for death) between family members and patients before imminent death, as well as the family's presence at the moment of death.

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“…This nding is plausible and supported by earlier surveys conducted in the United States (US), the UK, and the Netherlands, which reported that the quality of the end of life in hospitals was not satisfactory. (22)(23)(24) The main limitations of this study should be addressed. First, the test-retest was not performed.…”

Section: Discussionmentioning

confidence: 98%

The McGill Quality of Life Questionnaire-Revised (MQOL-R). Psychometric Properties and Validation of a Brazilian Version on Palliative Care Patients: A Cross-sectional Study

Serrano¹,

Serrano

Torres

et al. 2020

Preprint

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Background: To assess the psychometric properties, including internal consistency, construct validity, criterion validity, criterion-group validity, and responsiveness, the Reviewed McGill Quality of Life Questionnaire (MQOL-R), into Brazilian Portuguese-(BrP). Also, to analyze the relationship of the BrP-MQOL-R with the scores on the Karnofsky Performance Scale (KPS) and on the Numerical Pain Scale (NPS 0-10).Methods: The BrP-MQOL-R was administered to a sample of 146 adults (men = 78). A team of experts translated the MQOL-R according to international guidelines. Convergent validity and Conﬁrmatory factor analysis (CFA) were performed. Results: The BrP-MQOL-R Cronbach´s alfa was 0.85. CFA supported the original four-factor structure, with the following revised model fit-indices: PCLOSE = 0.131, Tucker-Lewis Index (TLI) rho2= 0.918, incremental fit index (IFI) delta 2 = 0.936. The convergence validity is supported by a significant correlation between BrP-MQOL-R total scores and their subscales with KPS and with the single item related to the quality of life. And by a converse correlation with the pain scores in the NPS (0-10). Receiver operator characteristics (ROC) analysis showed subjects with KPS equal to or lower than 30% could be discriminated from those with scores on KPS higher 30% by an area under the curve (AUC) = 0.71, sensitivity = 97% and specificity = 92%). Conclusion: The BrP-MQOL-R proves to be a reliable instrument for assessing the quality of life (QOL) in palliative care (PC), with primary evidence of validity. BrP-MQOL-R presented adequate discriminate properties to identify distinct conditions that impact the QOL in PC.

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Dying in the Hospital: What Happens and What Matters, According to Bereaved Relatives

Abstract: Relatives rated QOD as sufficient. A majority of patients and relatives were not sufficiently prepared for imminent death, and relatives experienced many problems. QOD appears to be a multidimensional construct, strongly affected by medical care and staff attentiveness.

Cited by 44 publications

References 53 publications

Quality of Care and Satisfaction With Care on Palliative Care Units

Quality of Care and Satisfaction With Care on Palliative Care Units

Meaningful Communication Before Death, but Not Present at the Time of Death Itself, Is Associated With Better Outcomes on Measures of Depression and Complicated Grief Among Bereaved Family Members of Cancer Patients

The McGill Quality of Life Questionnaire-Revised (MQOL-R). Psychometric Properties and Validation of a Brazilian Version on Palliative Care Patients: A Cross-sectional Study

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