Dynamic generation of a Health Topics Overview from consumer health information documents

Miller, Trudi; Leroy, Gondy

doi:10.1504/ijbet.2008.020069

Cited by 14 publications

(6 citation statements)

References 12 publications

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“…The use of consumer health vocabulary may help lower the reading grade level on both English and Korean stroke websites. In the United States, the Open-Access, Collaborative Consumer Health Vocabulary provides 156,826 consumer-friendly health phrases and synonyms for professional clinical terms [ 34 , 54 ]. In South Korea, a consumer vocabulary system for health information was developed in a study [ 55 ].…”

Section: Discussionmentioning

confidence: 99%

“…The incorporation of self-assessments of risks or symptom changes and modeling of desirable health behaviors into the website will promote self-efficacy in learning. Miller and Leroy [ 54 ] suggested that it would be ideal if a consumer would go to a website, answer a few questions, and in a few seconds, a document written specifically for their needs and appropriate to their reading skill would appear in their Web browser. The features of dynamic discussions and communication will lead to co-learning with each other [ 28 , 61 ].…”

Section: Discussionmentioning

confidence: 99%

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Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation

Lee

Shin

2018

Interact J Med Res

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BackgroundWebsites are common sources of health information to stroke survivors and caregivers for continual management of stroke and its long-term sequelae. The presence of risk factors and mortality rates related to stroke are high in Korean Americans. A vast majority of this group are active Web users and rely on the Web-based information due to lack of insurance and, thus, limited access to long-term stroke care. Thus, it is critical to evaluate existing stroke websites for their trustworthiness, readability, and suitability.ObjectiveThe objective of our study was to provide a systematic evaluation of stroke-related websites regarding (1) trustworthiness, (2) readability, and (3) suitability for stroke prevention and self-management for Korean Americans.MethodsWe selected a total of 156 websites using search terms “stroke,” “CVA,” “중풍 (jungpung),” and “뇌졸증 (noejoljung)” on Google and Yahoo. After eliminating duplicates and irrelevant websites (n=116), we evaluated a total of 42 websites (15 in English and 27 in Korean) using the National Library of Medicine’s health website’s evaluation tool for trustworthiness; Simple Measure of Gobbledygook for readability; and Suitability Assessment of Materials for suitability. All three instruments used the 3-point Likert scale: superior (=2), adequate (=1), or not suitable (=0).ResultsOf the 42 websites evaluated, we rated 62% (26/42) websites as “adequate” or above for trustworthiness. The information on 48% (20/42) websites had not been updated for more than a year, which indicates poor currency; 33% (14/42) websites failed to provide the publisher and contact information, which yields poor authority; 50% (21/42) websites did not cite sources of health information, which indicates lack of accuracy. Only 2 websites met the recommended readability (5th grade or lower reading level). The suitability was also suboptimal; only 1 website was rated as “superior”; 60% (25/42) websites were “adequate,” and 38% (16/42) were “not suitable.” Most websites were limited in graphical directions, interactive motivations for desired healthy behaviors, and multiple language translations.ConclusionsThe existing stroke-related websites in either English or Korean are trustworthy and suitable, yet precise citation of evidence-based information will improve trustworthiness. The contents requiring high reading level may set a barrier to the utilization of Web-based health information for Korean Americans with a lower level of education. In addition, supplementing graphical examples, interaction features, and culturally relevant information in multiple languages are the areas for improvement in suitability. The improved features can reduce the reading burden of stroke patients or caregivers and build their confidence when applying the information for stroke management in daily living. These strategies are especially crucial to Korean Americans, who inevitably seek Web-based information to fill the gap between their demand and access to health care for a long-term self-management after a stroke.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation

Lee

Shin

2018

Interact J Med Res

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“…The use of consumer health vocabulary may help lowering reading grade level on both English and Korean stroke websites. In the U.S., the Open-Access, Collaborative Consumer Health Vocabulary provides 156,826 consumer-friendly health phrases and synonyms for professional clinical terms [32,42]. In South Korea, there is research to develop a consumer vocabulary system for health information [43].…”

Section: Readabilitymentioning

confidence: 99%

“…The incorporation of self-assessments of risks or symptom changes and modeling of desirable health behaviors into the website will promote self-efficacy in learning. Miller & Leroy [42] suggested it would be ideal if a consumer would go to a website, answer a few questions, and in a few seconds, a document written specifically for their needs and appropriate to their reading skill would appear in their web browser. The features of dynamic discussions and communication will lead colearning with each other [26,50].…”

Section: Suitabilitymentioning

confidence: 99%

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation (Preprint)

Lee¹,

Shin²,

An³

2018

Preprint

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Background: The websites are common resources of health-information to stroke survivors and caregivers to obtain information and resources for continual management of stroke and the long-term sequels. Korean Americans (KAs) are frequent users of the webbased health information related to stroke management. The high stroke risk factors and mortality in KAs and lack of insurance, thus limited access to long-term care explains KAs' reliance on the web-based information. Quality of information on the websites is often questioned. Objective: This study aimed to provide a systematic evaluation of stroke-related websites regarding (1) trustworthiness (2) readability, and (3) the suitability for stroke prevention and self-management in KAs. Methods: The search terms 'stroke,' 'CVA,' '중풍 [jungpung],' and '뇌졸증[noejoljung]' were used to find stroke-related websites on Google and Yahoo. A total of 156 websites appeared on the 1 st and 2 nd pages. After eliminating duplicates and irrelevant websites (n=116), a total of 42 websites (15 in English and 27 in Korean) were evaluated using the National Library of Medicine's health websites evaluation tool for trustworthiness; SMOG for readability; and Suitability Assessment of Materials (SAM) for suitability. All three instruments used the 3-point Likert scale: superior (=2), adequate (=1), or not suitable (=0). Results: Overall, 26 (61.9%) websites received a rating of "adequate" or above for trustworthiness; however, in currency/timeline, the information on 47.6% hasn't been updated more than a year. In terms of authority, 33% failed to provide the publisher and contact information. Regarding accuracy, 50% of the websites didn't cite sources of health information. The overall readability was not suitable; only two (4.8%) websites were rated 5 th grade or lower reading level. In the suitability evaluation, only one website was rated as "superior," 25 (59.5%) websites were "adequate," and 16 (38.1%) websites were "not suitable." Among the suitability subcategory criteria, many websites were limited in graphical directions, interactive motivations for desired healthy behaviors, and multiplelanguage translations. Conclusion: The existing stroke-related websites in either English or Korean are trustworthy and suitable, yet precise citation of evidence-based information will improve trustworthiness. The high reading level of the information may set a barrier to utilization of web-based health information to KAs with a lower level of education. With the consideration of culturally relevant information in multiple languages, graphical examples, multimedia, and interaction features are the areas for improvement in suitability. The improved features can reduce the reading burden of stroke patients/caregivers and build more confidence or self-efficacy when applying the information for condition management and rehabilitation in daily living. These strategies are especially crucial to KAs, who inevitably seek web-based information to fill the gap between their demand and access to he...

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“…The Health Topic Overview (HTO) system uses NLP techniques to facilitate the readability and navigation of health information by organizing and grouping the information in the internet pages into patient-preferred categories. [41] This takes the form of a topic overview. HTO uses the CHV and UMLS standards to categorize the most commonly used UMLS concepts semantically, generate topic overviews for these concepts and present them in an internet page.…”

Section: Related Workmentioning

confidence: 99%

10 Patient empowerment via technologies for patient-friendly personalized language

Adnan

Warren

Suominen

2015

Information Technology for Patient Empowerment in Healthcare

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Free-text reports are used in health care to transfer information between working shifts and sites. This text, written by a physician, nurse, specialist, ward secretary or other healthcare worker, is full of jargon, idioms and shorthand that patients find difficult to understand. If patients are to be empowered to take an active role and make informed decisions in their health care, they need support for understanding these reports. This chapter discusses language technologies as a way to provide support for patients to better understand free-text reports with difficult clinical language. This includes expanding shorthand, replacing words with patient-centric terms, providing term definitions, hyperlinking to further information on patientfriendly and reliable sites on the internet , and personalizing medication advice and other content. To conclude, statistical evaluations and benchmarks in shared tasks give evidence of language technologies being successful in making text easier to understand and better personalized. Moreover, electronic health record s that both patients and clinicians use to read, write and share information are becoming more commonplace and provide a platform for language technologies to assist patients in reading free-text reports.

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Dynamic generation of a Health Topics Overview from consumer health information documents

Cited by 14 publications

References 12 publications

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation (Preprint)

10 Patient empowerment via technologies for patient-friendly personalized language

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