“…In the case reports, some acknowledged ''self-report'' (Bhat et al, 2010, Chen et al, 2015, Crouse et al, 2017 but without further detail of the patient perspective. There was variation in the brief reporting of patient concerns, with the majority of descriptions reflecting patient complaints of swallowing difficulty (Bhat et al, 2010, Crouse et al, 2017, Duggal and Mendhekar, 2008, Dziewas et al, 2007, Lin et al, 2012, Nieves et al, 2007, Osman and Devadas, 2016, Varghese et al, 2006, or feeling unable to eat (Cicala et al, 2019, Lin et al, 2012. Other accounts suggested patient complaints of sialorrhea (Osman andDevadas, 2016, Sagar et al, 2005), and concerns regarding tremor (Leopold, 1996).…”