E07-B Improving End-of-Life Care in First Nations Communities: Lessons Learned from a 5-year CIHR Research Project

Prince, Holly; Brazil, Kevin; Crow, Maxine; Fruch, Verna; Hanson, Gaye; Kelley, Mary Lou; Kohoko, Sharol; Koski, Jessica; Maki, Luanne; Monture, Lori; Musquash, Chris; O’Brien, Valerie; Ramsbottom, Kimberly; Smith, J. Bruce; Wawia, Melody

doi:10.1016/j.jpainsymman.2016.10.115

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“…15 First Nations communities hold an enormous amount of traditional knowledge and expertise in supporting individuals and families at the end of life. 16 However, lack of access to local palliative care services and poor health services integration require that many First Nations community members travel to urban and regional centers to receive care in hospitals and long-term care homes. 16 – 21…”

Section: Introductionmentioning

confidence: 99%

An Analysis of Journey Mapping to Create a Palliative Care Pathway in a Canadian First Nations Community: Implications for Service Integration and Policy Development

et al. 2017

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Providing palliative care in Indigenous communities is of growing international interest. This study describes and analyzes a unique journey mapping process undertaken in a First Nations community in rural Canada. The goal of this participatory action research was to improve quality and access to palliative care at home by better integrating First Nations’ health services and urban non-Indigenous health services. Four journey mapping workshops were conducted to create a care pathway which was implemented with 6 clients. Workshop data were analyzed for learnings and promising practices. A follow-up focus group, workshop, and health care provider surveys identified the perceived benefits as improved service integration, improved palliative care, relationship building, communication, and partnerships. It is concluded that journey mapping improves service integration and is a promising practice for other First Nations communities. The implications for creating new policy to support developing culturally appropriate palliative care programs and cross-jurisdictional integration between the federal and provincial health services are discussed. Future research is required using an Indigenous paradigm.

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Section: Introductionmentioning

confidence: 99%