Ecologies of Care for Serious Mental Illness in Uganda: a Scoping Review

Cohen, Flora

doi:10.1007/s40609-020-00193-1

Cited by 4 publications

(2 citation statements)

References 66 publications

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“…Bronfenbrenner’s ecological systems theory (Bronfenbrenner & Morris, 2006) considers individual growth within the context of a system. This theory has served as the frame for studies of adults within the mental health system (e.g., Cohen, 2020; Low et al, 2019) and the APFU setting is such a system. Participants in my research study were members of the writing group microsystem.…”

Section: Framing the Datamentioning

confidence: 99%

Theory-Responsive Data Analysis: Searching for the Closest Fit

Jaeger

2022

International Journal of Qualitative Methods

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Qualitative researchers differ in their beliefs about the role of theory in data analysis. Some begin with theoretical constructs employed as codes in a deductive process while others hold theory at bay until late in an inductive process ( Gibbs, 2007 ). Still others toggle back and forth from theory to data to theory and so on. Researchers have offered comprehensive accounts of inductive coding (e.g., grounded theory; Charmaz, 2006 ) or general descriptions of the application of theory within data analysis ( Anfara & Mertz, 2006 ; Dressman, 2008 ). Absent from the literature, however, is a detailed description of a back-and-forth analysis practice. The current article fills this gap in the literature by presenting a specific procedure in which the researcher begins with an initial theoretical position and then examines the data to establish a key question raised by that data. The process continues as the researcher considers a variety of theories which address the question, selects the “best fit” theory, carefully applies that theory to the data and supporting literature, and finally reflects on ways in which study findings may enhance the theory. I exemplify this activity with data from a study of members of a writing group for adults with major mental illness.

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Section: Framing the Datamentioning

confidence: 99%

Theory-Responsive Data Analysis: Searching for the Closest Fit

Jaeger

2022

International Journal of Qualitative Methods

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“…Therefore, focusing interventions solely on the clinical perspective of the illness tends to be less effective because it does not address the multiple dimensions of a person's development 22 , 23 . In this sense, the difficulty in accepting the illness, negative experiences with medications and healthcare professionals, loss of autonomy and identity, internalized stigma, and lack of social support also contribute to making recovery more challenging 18 , 24 – 28 . A person-centered recovery model that respects the singularities and experiences of those living with the condition has been proposed.…”

Section: Introductionmentioning

confidence: 99%

A grounded theory on acceptance of diagnosis as a pathway to recovery in bipolar disorder

Pereira,

Padoan,

Silva

et al. 2024

Sci Rep

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The recovery process in bipolar disorder is a subjective and multidimensional experience that seeks to develop new meanings and purposes for living a satisfying life despite the limitations imposed by the disorder. Thus, this qualitative study aimed to explore the perceptions of recovery and the meanings attributed by individuals undergoing treatment for bipolar disorder to the elements considered relevant in this process. Semi-structured interviews with open-ended questions were conducted to explore the experiences and perspectives of recovery in individuals undergoing treatment for bipolar disorder. Grounded Theory was used as the method for qualitative analysis. The study included 26 participants aged between 18 and 65 years. Based on the analysis of participant reports, we identified two main themes: living with the illness and what it means to be in recovery. The perception of recovery is an individual process and can differ from the medical model. Participants suggest that accepting the diagnosis of bipolar disorder and finding meaning in life are essential to their recovery. They also describe how mental health professionals can facilitate or hinder this process. Understanding patients’ perceptions can facilitate access to healthcare services and treatment adherence.

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Patients’ perspectives on the experience of absconding from a psychiatric hospital: a qualitative study

et al. 2021

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Background Absconding (i.e., escaping) is common among patients with mental illness admitted to psychiatric hospitals. Patients use various strategies to make absconding successful due to the experiences faced during admission. We conducted a study to identify patients’ perspectives on the experience of absconding from the psychiatry facility. Methods We conducted 10 in-depth interviews with patients with a history of absconding from the hospital who were accessing care at the Mbarara Regional Referral Hospital in Mbarara city Uganda. Interviews were audio-recorded, translated when required, transcribed into English, and analyzed thematically to identify relevant themes. Results Participants ranged in age from 18 to 55 and the majority (n = 9) were male. Most had absconded at least twice from a psychiatric facility. We identified different experiences that influenced patients’ engagement in absconding from the psychiatry hospital ward. These included: (1) stigma, (2) experiences with caregivers: mixed emotions, (3) poor resources and services, and (4) the influence of mental illness symptoms. The loneliness of stigma, negative emotions associated with the loss of important roles given the nature and framework of caregiving on the psychiatric ward, as well as the stress of limited resources were a salient part of the patient experience as it relates to absconding. Conclusion Our findings indicate that absconding is a symptom of a larger problem with a mental health system that perpetuates stigma in its design, isolates patients and makes them feel lonely, and forces patients to rely on caregivers who infantilize them and take away all their freedom in a facility with no basic services. For many patients, this makes absconding the only option. Within such a system, all stakeholders (policymakers, health-care providers, caregivers, and patients) should be involved in rethinking how psychiatric facilities should be operated to make the journey of patient recovery more positive.

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Ecologies of Care for Serious Mental Illness in Uganda: a Scoping Review

Cited by 4 publications

References 66 publications

Theory-Responsive Data Analysis: Searching for the Closest Fit

Theory-Responsive Data Analysis: Searching for the Closest Fit

A grounded theory on acceptance of diagnosis as a pathway to recovery in bipolar disorder

Patients’ perspectives on the experience of absconding from a psychiatric hospital: a qualitative study

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