Education and training methods for healthcare professionals to lead conversations concerning deceased organ donation: An integrative review

Potter, Julie; Elliott, Rosalind; Kelly, Michelle; Perry, Lin

doi:10.1016/j.pec.2021.03.019

Cited by 8 publications

(5 citation statements)

References 54 publications

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“…Although there are many strategies for training coordinators, a review showed that one-day training programs that used role-playing with simulated participants and group discussions alongside feedback were effective for learning [ 11 ]. Furthermore, this study found that a combination of passive learning techniques, such as written information or oral presentations with experiential learning techniques, such as role-playing with feedback, also yielded promising results [ 11 ].…”

Section: Discussionmentioning

confidence: 99%

“…Health care staff’s communication skills and ability to have conversations about donation under circumstances of grief and emotion play a crucial role in families’ decision-making process and, consequently, the consent rate [ 2 ]. To enhance family satisfaction and donation, it is necessary to provide specific communication training for health care professionals to establish a foundation for effective conversations about donation [ 11 ]. Although training has been prioritized for health care professionals, it still seems essential to follow a well-designed approach to education, incorporate all staff members, and use experimental learning.…”

Section: Introductionmentioning

confidence: 99%

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The effect of the Iranian family approach-specific course (IrFASC) on obtaining consent from deceased organ donors’ families

Radi

Ghanavati

Khoundabi

et al. 2022

Korean J Transplant

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Background: A family approach and obtaining consent from the families of potential brain-dead donors is the most important step of organ procurement in countries where an opt-in policy applies to organ donation. Health care staff's communication skills and ability to have conversations about donation under circumstances of grief and emotion play a crucial role in families' decision-making process and, consequently, the consent rate. Methods: A new training course, called the Iranian family approach-specific course (IrFASC), was designed with the aim of improving interviewers' skills and knowledge, sharing experiences, and increasing coordinators' confidence. The IrFASC was administered to three groups of coordinators. The family consent rate of participants in the same intervals (12 months for group 1, 6 months for group 2, and 3 months for group 3) was measured before and after the training course. The Wilcoxon signed-rank test was used to make comparisons. Results: The family consent rate was significantly different for all participants before and after the training, increasing from 50.0% to 62.5% (P=0.037). Furthermore, sex (P=0.005), previous training (P=0.090), education (P=0.068), and duration of work as a coordinator (P=0.008) had significant effects on the difference in families' consent rates before and after IrFASC. Conclusions: This study showed that the IrFASC training method could improve the success of coordinators in obtaining family consent.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The effect of the Iranian family approach-specific course (IrFASC) on obtaining consent from deceased organ donors’ families

Radi

Ghanavati

Khoundabi

et al. 2022

Korean J Transplant

View full text Add to dashboard Cite

show abstract

“…Recruitment occurred at a single centre in Australia. After considering alternatives and the sensitive environment in the ICU (Kentish-Barnes, 2019a ), DSNCs (Potter et al, 2021 ; Tocher et al, 2019 ) were chosen to provide families with Participant Information Forms (PIFs) after finalizing discussions related to OD. PIFs described the study and explained that families could initiate or decline participation early or wait to be contacted after three months.…”

Section: Methodsmentioning

confidence: 99%

The bereavement experiences of families of potential organ donors: a qualitative longitudinal case study illuminating opportunities for family care

Dicks

Northam

Haren

et al. 2022

International Journal of Qualitative Studies on Health and Well

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Objectives To illuminate opportunities for care in the context of deceased organ donation by exploring pre-existing family and healthcare professional characteristics, in-hospital experiences, and ongoing adjustment through the lenses of grief theory, systems theory, meaning-making, narrative, and organ donation literature. Method Qualitative longitudinal case studies explored individual and family change in five Australian families who had consented to Donation after Circulatory Determination of Death at a single centre. Participants attended semi-structured interviews at four, eight, and twelve months after the death. Findings Family values, pre-existing relationships, and in-hospital experiences influenced first responses to their changed lives, understanding of the patient’s death, and ongoing family adjustment. Novel behaviour that was conguent with family values was required at the hospital, especially if the patient had previously played a key role in family decision-making. This behaviour and emerging interactional patterns were drawn into family life over the first year of their bereavement. Recommendations Training that includes lenses introduced in this study will enable healthcare professionals to confidently respond to individual and family psychosocial needs. Conclusion The lenses of grief theory and systems thinking highlight opportunities for care tailored to the unique in-hospital context and needs that emerge in the months that follow.

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“…There is no uniform training on how to hold difficult end-of-life conversations, and advanced communication or empathy training is not the norm for future clinicians [10]. Despite attempts to create continuing education programs to teach providers how to lead these conversations, most are conducted in person and often require expensive simulated patients [13,[48][49][50]. For DPs throughout the US, standardization is lacking across OPOs with most training occurring inhouse or relying on an outdated 'see one, do one, teach one' approach.…”

Section: Teaching Healthcare Professionals To Hold Difficult Conversa...mentioning

confidence: 99%

Developing online communication training to request donation for vascularized composite allotransplantation (VCA): improving performance to match new US organ donation targets

Siminoff,

Alolod,

McGregor

et al. 2024

BMC Med Educ

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Background Approaching families of dying or newly deceased patients to donate organs requires specialized knowledge and a mastery of relational communication. As the transplantation field has progressed, Donation Professionals (DPs) are also leading conversations with family decision makers (FDMs) about the donation of uncommon anatomical gifts, such as face, hands, genitalia, referred to as Vascularized Composite Allotransplants (VCA) without much training or experience. To address the need for training, we adapted and beta tested an evidenced-based communication training program for donation discussions to VCA requests. The overarching goal of Communicating Effectively about Donation for Vascularized Composite Allotransplantation (CEaD-VCA) is to increase the number of VCA authorizations and to improve the socioemotional outcomes of FDMs. Methods We developed CEaD-VCA, an online, on-demand training program based on the previously tested, evidenced-based communication skills training program designed to train DPs to have conversations about solid organ donation. The training was modified utilizing data from a national telephone survey with DPs and results of 6 focus groups conducted with members of the general public. The survey and focus groups assessed knowledge, attitudes, and barriers to VCA donation. The training was shaped by a partnership with a leading industry partner, the Gift of Life Institute.™ Results Using the results as a guide, the existing CEaD training program, consisting of interactive eLearning modules, was adapted to include technical information about VCA, foundational communication skills, and two interactive example VCA donation request scenarios to facilitate active learning. Forty-two DPs from two partner Organ Procurement Organizations (OPOs) participated in the beta test of CEaD-VCA. Pre- and post-test surveys assessed the impact of the training. Conclusions The training was scored highly by DPs in effectiveness and ease of use. This project created a standardized, accessible, and comprehensive training for DPs to communicate about VCA donation. CEaD-VCA is an example of how to develop a communication skills training for difficult conversations utilizing input from stakeholders, guided by communication theory. It also demonstrates how gaps in communication skills during medical education can be filled utilizing advanced online Learning Management Systems. The training specifically addresses new CMS rules concerning OPO performance metrics.

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Education and training methods for healthcare professionals to lead conversations concerning deceased organ donation: An integrative review

Cited by 8 publications

References 54 publications

The effect of the Iranian family approach-specific course (IrFASC) on obtaining consent from deceased organ donors’ families

The effect of the Iranian family approach-specific course (IrFASC) on obtaining consent from deceased organ donors’ families

The bereavement experiences of families of potential organ donors: a qualitative longitudinal case study illuminating opportunities for family care

Developing online communication training to request donation for vascularized composite allotransplantation (VCA): improving performance to match new US organ donation targets

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