Educational and vocational goal disruption in adolescent and young adult cancer survivors

Vetsch, Janine; Wakefield, Claire E.; McGill, Brittany C.; Cohn, Richard J.; Ellis, Sharon; Stefanic, Natalie; Sawyer, Susan Μ; Zebrack, Brad; Sansom-Daly, Ursula M

doi:10.1002/pon.4525

Cited by 78 publications

(65 citation statements)

References 45 publications

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“…Vetsch et al . () and Bellizzi et al . () found similar positive shifts in life goals and priorities after cancer treatment for YACS, while Park and Blank () found no such changes.…”

Section: Discussionmentioning

confidence: 84%

“…They experienced a changed perspective including appreciating everyday life more, taking nothing for granted and using their time wisely to follow their dreams. Vetsch et al (2018) and Bellizzi et al (2012) found similar positive shifts in life goals and priorities after cancer treatment for YACS, while Park and Blank (2012) found no such changes.…”

Section: Discussionmentioning

confidence: 87%

“…The participants struggled with future-oriented concerns, especially related to fear of cancer recurrence and death, being able to provide for themselves and starting their own family. These are highly realistic concerns, as YACS are at higher risk of recurrence, the development of new cancers and serious illnesses (Bhuller, Zhang, Li et al, 2016), self-image, sexual and fertility problems (Benedict, McLeggon, Thom et al, 2018;Graugaard et al, 2018;Olsson, 2018), as well as financial and career challenges than older cancer survivors are (Nass et al, 2015;Parsons, Harlan, Lynch et al, 2012;Vetsch et al, 2018). Here, a highly concerning finding is that the participants tended to keep these concerns to themselves.…”

Section: Discussionmentioning

confidence: 98%

“…In contrast, few studies have focused on positive outcomes in YACS. Vetsch, Wakefield, McGill et al (2018) found a positive shift in YACS' life goals and priorities post treatment and two studies showed that positive outcomes seemed to depend on social support and close relationships, completed education, using appropriate coping strategies and regular physical activity (Love & Sabiston, 2011;Zebrack & Butler, 2012).…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

“It's been a life‐changing experience!” A qualitative study of young adult cancer survivors’ experiences of the coexistence of negative and positive outcomes after cancer treatment

Hauken

Grue

Dyregrov

2019

Scandinavian J Psychology

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The aim of this study was to illuminate the coexistence of negative and positive experiences of young adult cancer survivors after cancer treatment. Using an interpretive descriptive design, 20 young adult cancer survivors were interviewed. The participants stated that the cancer was a life‐changing experience followed by both negative and positive outcomes. The range of negative outcomes was identified in the main theme “the cancer still hampers me,” subdivided into three subthemes “impaired function and changed body,” “intrusion of thoughts and feelings” and “negative impact on relationships.” Simultaneously, the informants experienced positive outcomes identified in the main theme “I have acknowledged what's important in life,” where “a changed perspective,” “personal growth” and “the significance of close relationships” were important facets. The findings indicate that young adult cancer survivors need close and sustained follow up with screening and tailored interventions to minimize negative physical, emotional and social outcomes. In addition, actions that promote positive outcomes such as increasing social support, prioritizing close relationships and facilitating positive changes in values and life goals should be fostered during the entire cancer trajectory.

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“…Vetsch et al . () and Bellizzi et al . () found similar positive shifts in life goals and priorities after cancer treatment for YACS, while Park and Blank () found no such changes.…”

Section: Discussionmentioning

confidence: 84%

Section: Discussionmentioning

confidence: 87%

Section: Discussionmentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

“It's been a life‐changing experience!” A qualitative study of young adult cancer survivors’ experiences of the coexistence of negative and positive outcomes after cancer treatment

Hauken

Grue

Dyregrov

2019

Scandinavian J Psychology

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“…Their cancer diagnoses and treatments significantly disrupt their developmental trajectories and construction of personal identity in crucial areas such as education, career, and social relationships. [2][3][4][5] After treatment, they face multifaceted survivorship issues including fatigue, 6,7 psychosocial problems, 8 and practical financial concerns [9][10][11] that can greatly impede their transition back to work or school. 12 A growing body of literature has elucidated AYA cancer survivors' diverse needs.…”

Section: Introductionmentioning

confidence: 99%

Optimizing Survivorship Care Services for Asian Adolescent and Young Adult Cancer Survivors: A Qualitative Study

Tan

et al. 2020

Journal of Adolescent and Young Adult Oncology

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Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptions of current and prospective survivorship services from both groups in Singapore to propose service design and delivery strategies. Methods: Focus group discussions with 23 AYA cancer survivors between the ages of 16 and 39 years at diagnosis and 18 HCPs were conducted in National Cancer Centre Singapore (NCCS) and Singapore Cancer Society (SCS). All focus group discussions were transcribed verbatim. Deductive thematic analysis was performed according to the components of a design thinking model: empathizing with AYA survivors, defining care gaps, proposing services, and implementation strategies. Results: AYA survivors preferred age-specific services that are aligned with their personal goals. Current survivorship care failed to address the needs of survivors' dependents (caregivers and children) and to consider the utility of each service temporally. Prospective services should clarify disease disclosure obligation in job search and introduce a care navigator. Key implementation strategies included (1) training HCPs on communication techniques with AYA, (2) selecting engagement platforms that complement survivors' informationseeking behavior, (3) improving outreach to survivors through appropriate branding and publicity, and (4) consolidating services from multiple providers. Conclusions: The design of survivorship care services for AYA survivors should be systematic in its conceptualization process and employ implementation strategies. The coordination of the wide spectrum of services warrants a concerted effort by cancer centers, community partners, and the government.

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Optimizing the measurement of health‐related quality of life in adolescents and young adults with cancer

Salsman

Danhauer

Moore

et al. 2020

Cancer

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To date, the health‐related quality of life experiences of adolescents and young adults (AYA) with cancer have been inconsistently and incompletely captured by existing patient‐reported outcome (PRO) measures. The National Institutes of Health Patient‐Reported Outcomes Measurement Information System (PROMIS) represents the state of the art for measurement science of PROs and provides an optimal approach for addressing these measurement challenges and catalyzing future patient‐centered research in AYA oncology.

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Educational and vocational goal disruption in adolescent and young adult cancer survivors

Cited by 78 publications

References 45 publications

“It's been a life‐changing experience!” A qualitative study of young adult cancer survivors’ experiences of the coexistence of negative and positive outcomes after cancer treatment

“It's been a life‐changing experience!” A qualitative study of young adult cancer survivors’ experiences of the coexistence of negative and positive outcomes after cancer treatment

Optimizing Survivorship Care Services for Asian Adolescent and Young Adult Cancer Survivors: A Qualitative Study

Optimizing the measurement of health‐related quality of life in adolescents and young adults with cancer

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