Educational Priorities for Individuals with Angelman Syndrome: A Study of Parents’ Perspectives

Abstract

The priorities of parents of children with intellectual disability should be considered when selecting educational goals. To this end, 77 parents of children with Angelman syndrome (AS) completed a questionnaire that involved rating their child's abilities and prioritizing educational goals across a range of adaptive and maladaptive domains. A factor analysis was used to determine if parents prioritized the training of skills in which their child showed a major, moderate or minor deficit. Results suggest that skills related to communication, recreation, self-care, motor and academic domains are high priorities. Further, parents of children under the age of 18 indicated that

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“…Furthermore, differences in the type of resources parents seek out have been shown to vary across genetic syndrome populations (Pearson et al, 2018 ). Parents of children with Angelman syndrome, for example, have reported locating information and resources related to communication is a top priority (Radstaake et al, 2014 ).…”