Effect of Individual Psychotherapy with a Focus on Self-Efficacy on Quality of Life in Patients with Thalassemia Major: 
A Clinical Trial

Taheri, Parisa; Nooryan, Kh.; Karimi, Zohreh; Zoladl, Mohammad

doi:10.52547/jccs.1.2.49

Cited by 1 publication

(3 citation statements)

References 12 publications

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“…Previous studies have shown that adolescents with thalassemia who perform self-care have a higher quality of life compared to adolescents who are unable to perform self-care. 44,65 This is supported by other studies which show that adolescents who are able to carry out independent care have a high quality of life. 56,76 In addition, other studies also show that there is a relationship between self-care and quality of life in adolescents with thalassemia.…”

Section: Discussionmentioning

confidence: 54%

“… (Jabbarifard et al 2019) [ 43 ] Quality of life Egypt RCT 173 children age ranging between 8–18 years Educational Programme Regarding Chelation Therapy The pediatric quality-of-life inventory tool The impact of this program can improve the quality of life of children with thalassemia Mean Pre-test= 51.05 Mean Post-test= 55.30 P value= 0.001 5. (Taheri et al 2020) [ 44 ] Quality of life, self-efficacy Iran RCT 50 children older than 15 years (mean= 20.4±3.2) Individual Psychotherapy SF-36 questionnaire This intervention can significantly improve the quality of life of children with thalassemia Mean ± SD Pre-test= 1184.2±365.5 Mean ± SD Post-test= 1873.0±21.6 P value<0.05 6. (Jabbarifard et al 2019) [ 43 ] Stress, resilience, and quality of life Iran Quasi-experiment 40 children age range of 18–35 years old (mean= 25.53±5.06) Acceptance and Commitment Therapy World Health Organization Quality of Life (SF-26) After being given therapy, participants experienced a significant improvement in quality of life and survival.…”

Section: Resultsmentioning

confidence: 99%

“…The second psychological intervention that can be done is individual psychotherapy (cognitive-behavioral therapy). 44 This intervention was opened with an introduction to the program, an assessment of the quality of life and self-efficacy of the participants, interviews with participants related to the fear of disease, and identifying psychological problems. Then participants were given training on the détente method, which is to train muscle relaxation and deep breathing for 15 minutes.…”

Section: Resultsmentioning

confidence: 99%

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Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

Mardhiyah¹,

Panduragan²,

Mediani³

et al. 2023

JMDH

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Thalassemia is an inherited blood disorder affecting hemoglobin synthesis which leads to chronic hemolysis that can reduce the quality of life of children with it due to the disease and the treatment given. However, the intervention still focuses on handling physical problems due to thalassemia. So that an intervention that focuses on improving the quality of life of children with thalassemia is needed. The purpose of this study is to explore interventions that could improve the quality of life of children with thalassemia. A scoping review study design was used in this study. The databases used are CINAHL, PubMed, and Scopus. Articles published from last five years (2018–2022), open access full-text, in English, and with the type of randomized controlled trial (RCT). The keywords used in English are “thalassemia or beta-thalassemia” AND “quality of life OR Life Quality OR Health-Related Quality of Life” AND “nursing intervention OR nursing care”. From ten articles analyzed, we found five types of nursing intervention: Health Care Instructions, Psychological Program, Educational Program, Counseling Program, and Self-care Model, which were carried out for 1–7 months. The articles in this study are from Egypt and Iran. The sample in this study is the range of 20–173 respondents. The thalassemia patients in this study were in the age range of 7–35 years, but the average age of the patients was in their 20s. Nursing intervention can potentially improve the quality of life in children and adolescents with thalassemia. Nurses need to pay attention to the patient’s age, family and patient knowledge about the disease, length of stay, and the patient’s physical and psychological condition in providing nursing care to patients with thalassemia. Implementation of nursing is given by paying attention to the stages of child development and involving the family. Nursing interventions can be carried out by nurses or nurses teach families to intervene at home. This nursing intervention has the potential to improve the quality of life of patients with thalassemia while still taking into account the conditions of the patient and family in a comprehensive manner.

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