Effect of perceived stigmatisation on the quality of life among ageing female family carers: a comparison of carers of adults with intellectual disability and carers of adults with mental illness

Chou, Yueh-Ching; Pu, Cheng Yun; Lee, Y. C.; Li, Lin; Kröger, Teppo

doi:10.1111/j.1365-2788.2009.01173.x

Cited by 47 publications

(57 citation statements)

References 26 publications

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“…1 Having a child with the unexpected diagnosis was reported as emotionally overwhelming and stressful for some families. 1 Having a child with the unexpected diagnosis was reported as emotionally overwhelming and stressful for some families.…”

Section: Introductionmentioning

confidence: 99%

Quality of life among Malaysian mothers with a child with Down syndrome

Geok

Abdullah

Kee

2013

Int J of Nursing Practice

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The purpose of this paper is to examine the quality of life (QOL) among mothers with a child with Down syndrome using The World Health Organization Quality of Life scale instrument. A convenience sample of 161 mothers was accessed through the various institutions which provide interventional or educational programmes to children with disabilities within two of the regions of the Borneo State of Malaysia (Sarawak). Nearly half of the group of mothers perceived their QOL as neither poor nor good (n = 73). An overall QOL score of 14.0 ± 1.84 was obtained. The highest and lowest domain scores were found for social relationship domain (Mean = 14.9 ± 2.1) and environmental support domain (Mean = 13.3 ± 2.1) respectively. Correlation analysis of selected background variables (i.e. locality, education, income and marital status) and overall QOL indicated rho (161) = 0.22-0.28 (P < 0.01). Inverse correlation between maternal age and overall QOL score was indicated, with rho (161) = -0.17 (P < 0.05). Linear regression analysis indicated that the combination of these few variables together accounted for 14.5% of the QOL variability in the sample. Findings point to implications for priorities of care provisions by policy-makers and care professionals in their practice.

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Section: Introductionmentioning

confidence: 99%

Quality of life among Malaysian mothers with a child with Down syndrome

Geok

Abdullah

Kee

2013

Int J of Nursing Practice

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“…K. Ekwall, Sivberg, & Hallberg, 2007;Ratcliffe, Lester, Couzner, & Crotty, 2013). Those with poor health, low social support, perceived stigma (Chou, Pu, Lee, Lin, & Kroger, 2009), living alone (Ratcliffe et al, 2013), feeling lonely, and with a small or nonexistent network (A. Ekwall et al, 2004) are also more likely to be affected.…”

Section: Introductionmentioning

confidence: 99%

Quality of Life on the Views of Older Family Carers of People with Dementia

2017

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“…This is not consistent with the findings of previous studies. On the one hand, there are studies that do not compare men and women (Robison et al 2009) and those with sample groups made up entirely of women (Chou et al 2009). Other studies found that the impact on mental health was greater in women than in men (Navaie-Waliser et al 2002;Roth et al 2007).…”

Section: Discussionmentioning

confidence: 97%

The Relationship Between Reproductive Work and Sociodemographic and Psychosocial Factors in Regard to Psychological Distress in Men and Women in Spain

et al. 2011

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Studies have shown that some sociodemographic factors, such as marital status, employment status or social class, can affect mental health in different ways for each gender. However, up until now, few research projects have tried to ascertain if the role that reproductive work or psychosocial factors play in mental health is different for men and women. The aim of this study is to assess the differences between men and women in terms of how reproductive work, sociodemographic and psychosocial factors are linked to psychological distress in Spain. A cross-sectional study of 29,478 male and female adults using data gathered for the Spanish National Health Survey 2006 was carried out. Psychological distress was measured using the GHQ-12. The independent variables analyzed were: sociodemographic, psychosocial (family functionality and functional social support) and those related to reproductive work (living with or being in charge of different types of people needing care and number of hours devoted to caregiver tasks). Different independent logistic regression models were developed for men and women. In general, with the exception of men who were more prone to psychological distress if they were signed off work for 3 months or more, no major differences were observed regarding the effect of sociodemographic and psychosocial characteristics on psychological distress. With regard to reproductive work, the likelihood of psychological distress doubles in both sexes when the person lives with someone who needs care. In women, a greater number of hours devoted to caring for another person is associated with an increase in distress. Men play a less frequent role in caregiving, but the impact on psychological distress is similar to that in women. Women experienced more psychological distress when they had to live with or be in charge of a disabled person or different types of persons needing care, while men were not affected by this. Major differences have been identified in terms of psychological distress in women and men in several aspects of reproductive work to date unexplored.

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Effect of perceived stigmatisation on the quality of life among ageing female family carers: a comparison of carers of adults with intellectual disability and carers of adults with mental illness

Abstract: This study suggests that attempts to improve these female older family carers' health and social support must include their lifelong unmet needs in terms of how to cope with the perceived stigma associated with their position.

Cited by 47 publications

References 26 publications

Quality of life among Malaysian mothers with a child with Down syndrome

Quality of life among Malaysian mothers with a child with Down syndrome

Quality of Life on the Views of Older Family Carers of People with Dementia

The Relationship Between Reproductive Work and Sociodemographic and Psychosocial Factors in Regard to Psychological Distress in Men and Women in Spain

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