Effective Recruitment and Retention of Minority Research Participants

Yancey, Antronette K.; Ortega, Alexander N.; Kumanyika, Shiriki

doi:10.1146/annurev.publhealth.27.021405.102113

Cited by 997 publications

(1,161 citation statements)

References 93 publications

(76 reference statements)

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“…As HPV is sexually transmitted, the topic may be seen as “taboo” or sensitive (Marlow, 2011) and therefore inappropriate to discuss. Furthermore, previous studies have suggested that distrust of scientific investigators and of academic institutions may also act as a barrier to participation for people from BAME backgrounds (Yancy, Ortega, & Kumanyika, 2006). …”

Section: Discussionmentioning

confidence: 99%

It’s hard to reach the “hard-to-reach”: the challenges of recruiting people who do not access preventative healthcare services into interview studies

Rockliffe

Chorley

Marlow

et al. 2018

International Journal of Qualitative Studies on Health and Well

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In this article, we discuss the challenges faced in recruiting “hard-to-reach” groups for interview studies, specifically those who do not access preventative healthcare services. We do this by reflecting on the varying success of different recruitment methods we have used in two recent studies; one investigating ethnic disparities in human papillomavirus vaccination uptake and another exploring difference in cervical screening non-participation. Engaging new community groups to help with recruitment proved particularly difficult, as did recruiting online. Our most successful recruitment methods included recruiting through community groups with whom we had previously established relationships, recruiting through schools and re-contacting participants who previously completed a related survey. We conclude that successful recruitment is dependent on study awareness and engagement. We urge others to be transparent in reporting recruitment methods in order to benefit the qualitative research community and suggest that details are published as supplementary material alongside qualitative articles in future.

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Section: Discussionmentioning

confidence: 99%

It’s hard to reach the “hard-to-reach”: the challenges of recruiting people who do not access preventative healthcare services into interview studies

Rockliffe

Chorley

Marlow

et al. 2018

International Journal of Qualitative Studies on Health and Well

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“…Effective techniques for recruiting hard to reach populations like pregnant smokers include providing an incentive [18][19][20][21] and targeting recruitment messages and materials to the population [5,[22][23][24]. Using emotion to frame messages may be an effective form of targeting.…”

Section: Discussionmentioning

confidence: 99%

Recruiting pregnant smokers from Text4baby for a randomized controlled trial of Quit4baby

Leavitt

Abroms

Johnson

et al. 2016

Behav. Med. Pract. Policy Res.

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Recruiting pregnant smokers into clinical trials is challenging since this population tends to be disadvantaged, the behavior is stigmatized, and the intervention window is limited. The purpose of this study is to test the feasibility and effectiveness of recruiting pregnant smokers into a smoking cessation trial by sending recruitment text messages to an existing subscriber list. Recruitment messages were sent to subscribers flagged as pregnant in Text4baby, a national text messaging program for pregnant women and mothers. Four recruitment messages were rotated to test the effectiveness of different emotional frames and a financial incentive. Study staff called subscribers who expressed interest to screen for eligibility and enroll eligible women. Between October 6, 2015 and February 2, 2016, 10,194 recruitment messages were sent to Text4baby subscribers flagged as pregnant, and 10.18% (1038) responded indicating interest. No significant increase in cancellation was observed compared to subscribers who received other ad hoc messages. Of respondents, 54.05% (561) were reached by phone for follow-up, and 21.97% (228) were found to be eligible. Among the eligible, 87% (199) pregnant smokers enrolled. The recruitment message with a pride emotional appeal had a significantly higher response (p = 0.02) compared to the recruitment message with no emotional appeal, but enrollment did not significantly differ between recruitment messages with different emotional appeals. The recruitment messages with a reference to financial incentive yielded higher response (p < 0.01) and enrollment (p = 0.03) compared to a recruitment message without. This study demonstrates success recruiting pregnant smokers using text message. Future studies should consider building on this approach for recruiting high-risk populations.

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“…The recruitment strategy used evidence‐based techniques for hard to reach and minority groups: culturally sensitive study materials, multiple recruitment strategies and incentives 37, 38, 39, 40, 41, 42, 43. Two recruitment strategies were assessed: recruitment from general practice registers and by a community outreach strategy.…”

Section: Methodsmentioning

confidence: 99%

Alcohol and disadvantaged men: A feasibility trial of an intervention delivered by mobile phone

Crombie

Irvine

Falconer

et al. 2017

Drug and Alcohol Review

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Introduction and AimsDisadvantaged men suffer substantial harm from heavy drinking. This feasibility study developed and evaluated the methods for a trial of a brief intervention delivered by text messages to disadvantaged men. It aimed to test the methods for recruitment and retention, to monitor engagement with the intervention and assess the overall acceptability of study methods.Design and MethodsDisadvantaged men aged 25–44 years who had ≥2 episodes of binge drinking (≥8 units in one session) in the preceding month were recruited. Two recruitment strategies were assessed: recruitment from general practice registers and by a community outreach strategy. Theoretically and empirically based text messages were tailored to the target group.ResultsThe study recruited 67 disadvantaged men at high risk of alcohol‐related harm, exceeding the target of 60. Evaluation showed that 95% of text messages were delivered, and the men engaged enthusiastically with the intervention. Retention at follow up was 96%. Outcomes were successfully measured on all men followed up. This provided data for the sample size calculation for the full trial. Post‐study evaluation showed high levels of satisfaction with the study.Discussion and ConclusionsThis study has shown that disadvantaged men can be recruited and follow‐up data obtained in an alcohol intervention study. The study methods were acceptable to the participants. The men recruited were at high risk of alcohol‐related harms. It also clarified ways in which the recruitment strategy, the baseline questionnaire and the intervention could be improved. The full trial is currently underway. [Crombie IK, Irvine L, Falconer DW, Williams B, Ricketts IW, Jones C, Humphris G, Norrie J, Slane P, Rice P. Alcohol and disadvantaged men: A feasibility trial of an intervention delivered by mobile phone. Drug Alcohol Rev 2017;36:468‐476]

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Effective Recruitment and Retention of Minority Research Participants

Cited by 997 publications

References 93 publications

It’s hard to reach the “hard-to-reach”: the challenges of recruiting people who do not access preventative healthcare services into interview studies

It’s hard to reach the “hard-to-reach”: the challenges of recruiting people who do not access preventative healthcare services into interview studies

Recruiting pregnant smokers from Text4baby for a randomized controlled trial of Quit4baby

Alcohol and disadvantaged men: A feasibility trial of an intervention delivered by mobile phone

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