Effectiveness of Person-Environment-Occupation Model on a Pediatric Neurodegenerative Disease: A Case Report of a Child with Ataxia-Telangiectasia

Joveini, Ghodsiyeh; Malja, Mohammad; Hejazi-Shirmard, Mahnaz

doi:10.1080/07380577.2022.2059824

Cited by 1 publication

(3 citation statements)

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“…While exercise and function was the most researched theme with a total of 39 sources of evidence reporting findings/guidance on improvement of physical and functional performance, the themes of respiratory and speech were least researched with only seven and six sources reporting evidence, respectively. Where reported, the duration of intervention ranged from 1 day [ 29 ] to 125 weeks [ 30 ] and frequency ranged from one session per week [ 28 ] to three times daily [ 31 ]. The intensity ranged from 20 [ 32 , 33 ] to 120 min per session (with 1–2-min break in between sessions) [ 29 ], the most frequently cited duration being 60 min ( n = 6).…”

Section: Resultsmentioning

confidence: 99%

“…An occupational therapy intervention based on the Person-Environment-Occupation Model (PEO) was investigated on a child with A-T [ 28 ]. Based on the evaluation of the child’s three aspects of occupational performance including the person, occupations, and environment, an individualized plan was designed to promote occupational performance.…”

Section: Resultsmentioning

confidence: 99%

“…The selected 35 research-based sources included more than 600 participants (where reported, female n = 304 and male n = 273) with ataxia as a primary or secondary impairment. The most number of participants included in a study was 101 [17] and the least was one [18][19][20][21][22][23][24][25][26][27][28].) Where reported, the ages of children with ataxia ranged from 1.8 to 18 years (excluding the age of adult participants in mixed participant studies).…”

Section: Source Characteristicsmentioning

confidence: 99%

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The Care and Management of Children and Young People with Ataxia Telangiectasia Provided by Nurses and Allied Health Professionals: a Scoping Review

Khan

Cassidy²,

Parkin

et al. 2023

Cerebellum

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Ataxia telangiectasia (A-T) is a rare, multisystem progressive condition that typically presents in early childhood. In the absence of cure, people with A-T require coordinated multidisciplinary care to manage their complex array of needs and to minimize the disease burden. Although symptom management has proven benefits for this population, including improved quality of life and reduced complications, there is a need for guidance specific to the nursing and allied healthcare teams who provide care within the community. A scoping review, adopting the Joanna Briggs Institute methodology, was undertaken. It aimed to identify and map the available expertise from nursing and allied healthcare and management of children and young people with A-T ≤ 18 years of age. A rigorous search strategy was employed which generated a total of 21,118 sources of evidence, of which 50 were selected for review following screening by experts. A range of interventions were identified that reported a positive impact on A-T-related impairments, together with quality of life, indicating that outcomes can be improved for this population. Most notable interventions specific to A-T include therapeutic exercise, inspiratory muscle training, and early nutritional assessment and intervention. Further research will be required to determine the full potential of the identified interventions, including translatability to the A-T setting for evidence related to other forms of ataxia. Large gaps exist in the nursing and allied health evidence-base, highlighting a need for robust research that includes children and young people with A-T and their families to better inform and optimize management strategies. Supplementary Information The online version contains supplementary material available at 10.1007/s12311-023-01555-z.

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