Effects of a community intervention program for dementia on mental health: the importance of secondary caregivers in promoting positive aspects and reducing strain

Paúl, Constança; Teixeira, Laetitia; Duarte, Natália; Pires, Cátia L.; Ribeiro, Óscar

doi:10.1007/s10597-018-0345-6

Cited by 18 publications

(21 citation statements)

References 23 publications

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“…Training and support programmes have been demonstrated to help reduce the psychological distress in informal caregivers of people with dementia. Several studies on the efficacy of multicomponent interventions including skills training, psychoeducation, techniques for self-care, changes in the caregiver’s setting, among others, have presented more robust results showing favourable effects of such interventions on caregiver burden, mental health, subjective well-being, skills/knowledge, and self-efficacy (Gilhooly et al., 2016; Parker et al., 2008; Paúl et al., 2019; Selwood et al., 2007; Sörensen et al., 2002). Despite evidence showing a beneficial effect of these interventions on several caregiver outcomes, the face-to-face format in which they are typically implemented have been documented to pose situational barriers to their access (Abreu et al., 2015; Egan & Pot, 2016; WHO, 2015).…”

Section: Introductionmentioning

confidence: 99%

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Training and support for caregivers of people with dementia: The process of culturally adapting the World Health Organization iSupport programme to Portugal

et al. 2020

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Background: Informal caregivers of people with dementia often struggle with several stressors, and their mental and physical health can be negatively affected by providing care. iSupport is an online self-help programme designed by the World Health Organization to provide education, skills training, and support to those caregivers. Purpose: This paper describes the development of an adapted version of iSupport to the Portuguese culture. We present the adaptation process, methods used and results for the country-specific version. Methods: The adaptation of iSupport was operationalised in five steps: needs assessment; content translation by an authorised translator and technical accuracy check by health professionals; cultural adaptation; independent appraisal of contents by an expert panel; and fidelity check by programme authors. Results: Findings indicated the adjustments needed in the original iSupport contents. Overall, 323 text excerpts were proposed to adaptation, comprising semantic and conceptual equivalence of expressions, and adjustments to cultural habits, customs, traditions, local resources, and practices. The expert panel identified the need to reformulate definitions, designations, recommendations, and case studies to fine-tune the original contents to local knowledge and practices. Most adaptations were considered to be in line with the core concepts of the original programme. Conclusions: iSupport is an innovative tool capturing the attention of several organisations around the world interested in translating, adapting, and using the programme. This paper is the first describing the methodological approach for culturally adapting iSupport, constituting an essential resource for those aiming to replicate the process or culturally adapting evidence-based interventions. Tailoring iSupport to the Portuguese context was critical to accommodate the cultural experiences of the target group as well as the knowledge, theoretical approaches, and practices of local professionals. The European-Portuguese version of iSupport introduces the adjustments needed to implement a useful new intervention programme aimed at minimising the psychological distress of Portuguese caregivers.

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Section: Introductionmentioning

confidence: 99%

“…Consequently, support provision to informal dementia caregivers is either absent or depends on scattered initiatives. In Portugal, there are some good examples of such initiatives, but those usually rely on short and hardly renewable funded projects (Figueiredo et al., 2012; Paúl et al., 2019; Sousa et al., 2018).…”

Section: Introductionmentioning

confidence: 99%

Training and support for caregivers of people with dementia: The process of culturally adapting the World Health Organization iSupport programme to Portugal

et al. 2020

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“…While not a new approach, the use of community interventions to address a wide range of health problems has grown internationally in recent years. Examples of the diversity of community interventions include efforts to strengthen social networks among older adults in Japan ( Harada et al, 2017 ), address mental health in low- and middle-income countries ( Kohrt et al, 2018 ), and support caregivers of individuals living with dementia ( Paúl, Teixeira, Duarte, Pires, & Ribeiro, 2019 ). Expanding community intervention work to integrate how individuals experience their communities, such as through neighborhood and community perceptions, as well as the mediating effects of biological dysregulation may lead to more effective interventions.…”

Section: Discussionmentioning

confidence: 99%

The mediating effect of allostatic load on the relationship between neighborhood perceptions and depression

Carbone

2020

SSM - Population Health

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Neighborhood perceptions is an important predictor of both allostatic load in the form of biological dysregulation and major depressive disorder. Furthermore, biological dysregulation is predictive of major depressive disorder. Yet to date, the use of biological dysregulation as one potential causal pathway linking neighborhood perceptions to depression has not been explored. This study examined the relationship between neighborhood perception, biological dysregulation in the form of allostatic load, and depression among individuals who participated in the three waves of the Midlife Development in the United States study (1996–2014). Two-to-one propensity score matching was employed prior the use of causal mediation analyses. Lower neighborhood perceptions at wave one were associated with increased allostatic load at wave two. Allostatic load at wave two is associated with depression at wave three. The mediation analysis shows that 6.0% of the relationship between neighborhood perception and depression is mediated by biological dysregulation. These results can inform future prevention and treatment methods by supporting efforts to integrate individuals and community-level interventions to aid in addressing both the environmental conditions and biological factors associated with depression.

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“…Hasil studi Legget et al, juga menunjukkan skor PAC yang lebih tinggi pada caregiver yang mengikuti program pelatihan caregiver, namun hasil ini signifikan hanya pada caregiver laki-laki (B = 0.19, β = 0.11, SE = 0.08, p = .02) [10]. Pada hasil terlihat bahwa terdapat peningkatan skor PAC sebanyak 0.19 (dengan rentang skala = 0-2) [21].…”

Section: Dukungan Formalunclassified

“…Perbedaan etnis/ ras dan budaya menunjukkan keragaman sumber daya caregiver, penggunaan strategi koping, serta tingkat stressor, hal tersebut seringkali mempengaruhi pengalaman caregiver dan peran mereka dalam merawat ODD [19]. Menurut studi Pope, Baldwin and Lee dan Paúl et al, caregiver dengan usia yang lebih muda memiliki skor PAC lebih tinggi serta mengalami beberapa hal positif selama merawat ODD, antara lain penguatan hubungan keluarga, pengembangan karakter, kepuasan pribadi dalam perawatan yang diberikan, dan manfaat materi, jika dibandingkan dengan caregiver yang lebih tua [21,19].…”

Section: Kualitas Hidup Caregiverunclassified

Factors Associated to Positive Aspects in Caregiving for People Living with Dementia in Family Caregivers

Pratiwi¹,

Indarwati²,

Tristiana³

2021

mki

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Caring for People with Dementia (PwD) has various negative effects that are detrimental to caregivers. The existence of Positive Aspects of Caregiving (PAC) makes the experience of caring for PwD more positive, valuable and protects caregivers from various negative impacts while caring for PwD. This study aims to explain the factors associated with PAC. These literature reviews were accessed from six databases (Scopus, CINAHL, Science Direct, ProQuest, PubMed, and SAGE Journal), with the keywords factor, positive aspects of caregiving, Dementia/ Alzheimer’s, during January 2021, limited to 2016-2020, and in English. A total of 318 journals were selected using PRISMA, then leaving 16 journals to be analyzed using The Joanna Briggs Institution Checklist. Sixteen journals were analyzed and divided into two themes, factors that affect PAC (n = 9) and factors affected by PAC (n = 7). Factors that affect PAC are caregiver characteristics, care-recipient characteristics, and social support. Factors affected by PAC are caregiving outcomes. Factors that increase PAC are lower education level, good social support, severe BPSD, shorter duration of care, and relationship with care-recipient (except spouse), and gender (male). The mediating factors that increase PAC are unmet needs and reciprocal filial piety. Factors that lower PAC are higher education level, the use of avoidance coping, and older age. We found inconsistencies in caregiver marital status and relationship with care-recipient because the finding still uncertain.

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Effects of a community intervention program for dementia on mental health: the importance of secondary caregivers in promoting positive aspects and reducing strain

Cited by 18 publications

References 23 publications

Training and support for caregivers of people with dementia: The process of culturally adapting the World Health Organization iSupport programme to Portugal

Training and support for caregivers of people with dementia: The process of culturally adapting the World Health Organization iSupport programme to Portugal

The mediating effect of allostatic load on the relationship between neighborhood perceptions and depression

Factors Associated to Positive Aspects in Caregiving for People Living with Dementia in Family Caregivers

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