Effects of a Patient-Centered Intervention to Reduce Alcohol Use Among Youth With Chronic Medical Conditions

Weitzman, Elissa R.; Wisk, Lauren E.; Minegishi, Machiko; Cox, Rachele; Lunstead, Julie; Brogna, Melissa; Levy, Sharon

doi:10.1016/j.jadohealth.2021.10.017

Cited by 14 publications

(16 citation statements)

References 32 publications

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“…We analyzed dyadic data from a cross-sectional survey study to quantify associations among YCMC alcohol use and their parents’ alcohol-related beliefs and guidance. Data are from baseline of a previously described randomized controlled trial of a psychoeducational intervention to reduce alcohol use informed by epidemiological and qualitative research with YCMC 10,11 …”

Section: Methodsmentioning

confidence: 99%

“…YCMC (14–18 years) in care for type 1 diabetes, juvenile idiopathic arthritis, systemic lupus erythematosus, or inflammatory bowel disease were recruited from subspecialty clinics at an academic children’s hospital and assented to participate 10 …”

Section: Methodsmentioning

confidence: 99%

“…Data are from baseline of a previously described randomized controlled trial of a psychoeducational intervention to reduce alcohol use informed by epidemiological and qualitative research with YCMC. 10,11 Adolescent and Parent Participants YCMC (14-18 years) in care for type 1 diabetes, juvenile idiopathic arthritis, systemic lupus erythematosus, or inflammatory bowel disease were recruited from subspecialty clinics at an academic children's hospital and assented to participate. 10 Parents of participants who were present at enrollment were consented to complete a survey.…”

Section: Methodsmentioning

confidence: 99%

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Parent Guidance on Alcohol Use for Youth With Chronic Medical Conditions

Calihan,

Minegishi,

Levy

et al. 2023

J Addict Med

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Purpose Youth with chronic medical conditions are vulnerable to unique alcohol-related health consequences, yet there are few prevention strategies targeting this group. Youth with chronic medical conditions parents’ beliefs and provision of alcohol-related guidance have not yet been explored, which limits the development of effective family-based interventions. Methods We evaluated baseline surveys of youth with chronic medical conditions and their parents (n = 268 dyads) enrolled in a randomized controlled trial of a psychoeducational intervention to reduce alcohol use by youth with chronic medical conditions. Surveys evaluated youth alcohol use, parent beliefs about their child’s alcohol use, and parental provision of alcohol guidance, including disease-related and disease-independent (ie, “drinking and driving”) topics. Paired bivariate tests (χ2, Fisher exact) were used to measure associations between youth with chronic medical conditions alcohol use and parent alcohol-related beliefs and provision of alcohol-related guidance. Results In this study of 268 parent-youth dyads, many parents did not provide guidance on disease-specific topics, such as mixing alcohol with medications (47.8%) or risk of flares (37.6%). Furthermore, youth with chronic medical conditions whose parents had expectant beliefs about alcohol use (ie, alcohol use is “inevitable” or “OK with supervision”) were more likely to report alcohol use (all P values <0.05). Discussion These findings suggest parent beliefs may influence youth with chronic medical conditions alcohol use. Proactive, disease-specific education from medical providers to parents of youth with chronic medical conditions may help to reduce adverse consequences of alcohol use in these vulnerable youth.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Parent Guidance on Alcohol Use for Youth With Chronic Medical Conditions

Calihan,

Minegishi,

Levy

et al. 2023

J Addict Med

Self Cite

View full text Add to dashboard Cite

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“…The development and dissemination of the online survey instrument to the social media cohort was accomplished in collaboration with the Patients, Advocates, and Rheumatology Teams Network for Research and Service (PARTNERS), a patient-powered research network funded by the Patient-Centered Outcomes Research Institute. The development of the survey instrument was informed by a prior survey of adolescents with PRDs (14), and the survey was adapted and edited by the authors in collaboration with parents of children with PRDs belonging to the PARTNERS member organizations. The survey was available in English (Supplement 1).…”

Section: Methodsmentioning

confidence: 99%

Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research

Hausmann

Vizcaino‐Riveros

Marin

et al. 2022

ACR Open Rheumatology

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Objective We aimed to determine the feasibility and efficacy of online strategies to recruit parents of children with pediatric rheumatic diseases (PRDs) for research and to evaluate the degree to which known features of various rheumatic disease groups were present in the online cohort. Methods We studied two cohorts; the first was composed of respondents from a cross‐sectional parental survey of children with PRDs contacted through patient support groups and social media platforms, and the second cohort was composed of participants from the Childhood Arthritis and Rheumatology Research Alliance (CARRA) legacy clinical registry. Results In the social media cohort, 712 complete surveys were analyzed. Most (65.9%) were referred from Facebook. The most common rheumatic disease was juvenile idiopathic arthritis (JIA) (27.1%), followed by juvenile dermatomyositis (22.1%). In the CARRA registry cohort, 7985 records were included. JIA was the largest disease group (70.3%), followed by systemic lupus erythematosus (12.0%). The age at disease onset for most PRDs was similar between those in the social media and CARRA registry cohorts (mean difference = 1.3 years). Conclusion Recruitment through Facebook was the most fruitful. The clinical characteristics of the social media cohort were similar to those of patients recruited through a clinical registry, suggesting the utility of online recruitment for engaging disease‐relevant cohorts. Parents of children with rare PRDs were overrepresented in the social media cohort, perhaps reflecting the increased need of those parents to find online information and receive emotional support. Social media recruitment for research studies may help expand the number and diversity of participants in clinical research, especially by including those with rare diseases.

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“…Results of the initial projects have been described previously. [25][26][27][28] The initial group was comprised of AYA who received primary care at a general adolescent/young adult medicine clinic (N = 473) and AYA with a chronic medical condition who received subspecialty care in the rheumatology, endocrinology, or gastroenterology departments (N = 410) at a medical institution in the United States (Figure 1). Of those invited, N = 501 (56.7%) agreed to participate in the follow-up survey.…”

Section: Participantsmentioning

confidence: 99%

The Association of Vaping With Social/Emotional Health and Attitudes Toward COVID-19 Mitigation Measures in Adolescent and Young Adult Cohorts During the COVID-19 Pandemic

et al. 2023

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Background: Vaping is a major health risk behavior which often occurs socially. Limited social activity during the COVID-19 pandemic contributed to worsening social and emotional health. We investigated associations among youth vaping, and reports of worsening mental health, loneliness, and relationships with friends and romantic partners (ie, social health), as well as perceived attitudes toward COVID-19 mitigation measures. Methods: From October 2020 to May 2021, a clinical convenience sample of adolescents and young adults (AYA) reported on their past-year substance use, including vaping, their mental health, COVID-19 related exposures and impacts, and their attitudes toward non-pharmaceutical COVID-19 mitigation interventions, via a confidential electronic survey. Multivariate logistic regressions were used to estimate associations among vaping and social/emotional health. Results: Of 474 AYA (mean age = 19.3 (SD = 1.6) years; 68.6% female), 36.9% reported vaping in the prior 12 months. AYA who self-reported vaping were more likely than non-vaping AYA to report worsening: anxiety/worry (81.1%; P = .036), mood (78.9%; P = .028), eating (64.6%; P = .015), sleep (54.3%; P = .019), family discord (56.6%; P = .034), and substance use (54.9%; P < .001). Participants who vaped also reported easy access to nicotine (63.4%; P < .001) and cannabis products (74.9%; P < .001). No difference in perceived change in social wellbeing was seen between the groups. In adjusted models, vaping was associated with symptoms of depression (AOR = 1.86; 95% CI = 1.06-3.29), less social distancing (AOR = 1.82; 95% CI = 1.11-2.98), lower perceived importance of proper mask wearing (AOR = 3.22; 95% CI = 1.50-6.93), and less regular use of masks (AOR = 2.98; 95% CI = 1.29-6.84). Conclusions: We found evidence that vaping was associated with symptoms of depression and lower compliance with non-pharmaceutical COVID-19 mitigation efforts among AYA during the COVID-19 pandemic.

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Effects of a Patient-Centered Intervention to Reduce Alcohol Use Among Youth With Chronic Medical Conditions

Cited by 14 publications

References 32 publications

Parent Guidance on Alcohol Use for Youth With Chronic Medical Conditions

Parent Guidance on Alcohol Use for Youth With Chronic Medical Conditions

Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research

The Association of Vaping With Social/Emotional Health and Attitudes Toward COVID-19 Mitigation Measures in Adolescent and Young Adult Cohorts During the COVID-19 Pandemic

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