Effects of a self‐management course for patients with systemic lupus erythematosus

Sohng, Kyeong-Yae

doi:10.1046/j.1365-2648.2003.02647.x

Cited by 65 publications

(62 citation statements)

References 17 publications

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“…So far, relatively few studies have been carried on compared to what has been done with other chronic diseases (Sohng, 2003).…”

Section: Discussionmentioning

confidence: 99%

“…However, there is a subset of patients (approximately 40%) that remain in discomfort and they can benefit from psychosocial interventions (Dobkin et al, 2001). None of the studies found significant immunological changes in the index of disease activity (Navarrete-Navarrete et al, 2010;Sohng, 2003).…”

Section: Pre-and Post-test (N=10)mentioning

confidence: 93%

“…Dobkin et al, 1999;Rinaldi et al, 2006;Da Costa et al, 2000;Friedman et al, 1999;Abu-Shakra et al, 2006;Bennett, Fuertes, Keitel & Phillips, 2011;Dobkin et al, 2002;Haupt et al, 2005;Dobkin et al, 2001) who qol-Brief scales 2 (Hyphantis et al, 2011;Abu-Shakra et al, 2006) Focus groups 1 (Robbins, Allegrante, & Paget, 1993;Beckerman, 2011) Coping: The Coping Style Inventory (csi) 1 (Kozora, et al, 2005) Freiburg questionnaire on coping with illness (fkv) 1 (Haupt et al, 2005) The Coping Orientation to Problems Experienced (cope) 1 (Rinaldi et al, 2006) Lupus erythematosus needs questionnaire (slenq) 1 (Auerbach, Beckerman & Blanco, 2013) Lupuspro 1 (Jolly et al, 2014) General Health Questionnaire-30 (ghq-30) 1 (Ng & Chan, 2007) Coping skills 10 items questionnaire designed by Arthritis Foundation. 1 (Sohng, 2003) Focus groups 3 (Beckerman, 2011;Beckerman & Sarracco, 2012;Robbins, Allegrante & Paget, 1993) in different significant domains of life experience, such as social relationships, personal development and intimacy. Other interventions showed effective results focused in specific areas.…”

Section: Copingmentioning

confidence: 99%

“…Other interventions showed effective results focused in specific areas. For example Sohng (2003), through a group of self-management for patients with sle, achieved significant improvement in areas such as fatigue, depression and coping strategies. Regarding the psychosocial aspects, Ng and Chan (2007) performed a group intervention that allowed the creation of a platform for patients with sle where they could share their sorrow and grief about the disease.…”

Section: Copingmentioning

confidence: 99%

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Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Córdoba-Sánchez

Limonero

2015

Pensando Psicol.

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Background: Systemic lupus erythematosus (sle) is characterized by uncertain prognosis, severe symptoms and a negative impact on quality of life (qol) of patients. Purpose: The aim of this review is to generate a comprehensive approach in order to improve psychological intervention in these patients. Methods: A qualitative review of articles indexed in medline, Psycinfo and Scopus up to July 2015 was conducted. Articles reporting sle, coping strategies and qol were included. Results: Twenty-four studies were found, covering different research designs, forms of assessment and intervention. Coping strategies and their relationship with qol were analyzed in order to describe the best strategies for dealing with sle. Conclusions: There are no adaptive or maladaptive strategies, and the suitability of these depends on the situation that a patient could sustain; nevertheless, an active coping style seems to help preserve the qol. The main goal of psychological intervention should be to diversify and expand the number of coping strategies used by patients.

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“…So far, relatively few studies have been carried on compared to what has been done with other chronic diseases (Sohng, 2003).…”

Section: Discussionmentioning

confidence: 99%

Section: Pre-and Post-test (N=10)mentioning

confidence: 93%

Section: Copingmentioning

confidence: 99%

Section: Copingmentioning

confidence: 99%

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Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Córdoba-Sánchez

Limonero

2015

Pensando Psicol.

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“…Fatigue usually occurs before the other findings develop and it is the most important problem in one-third of patients. [8,9] Fatigue is a constant problem and causes a decrease in functions. [10,11] Fatigue affects activities, physical functions and working life and thus causes a decrease in the quality of life.…”

Section: Introductionmentioning

confidence: 99%

The Effects of Fatigue and Pain on Daily Life Activities in Systemic Lupus Erythematosus

Özel

Argon

2015

Agri

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Summary objectives:The aim of this study was to determine the effects of pain and fatigue on daily life activities of systemic lupus erythematosus (SLE) patients. Methods:The study sample included 74 SLE patients who presented to outpatient departments of a university hospital and two local hospitals between 30.9.2009 and 15.5.2010. Data was collected using the Fatigue Severity Scale, Katz's Activity's Daily Living Index, Lawton and Brody's Instrumental Activities of Daily Living, and the McGill Pain Questionnaire. results:The mean scores were 6.0 (fatigue) on the Fatigue Severity Scale, 18.0 (independent) on the Daily Life Activities Index, 24.0 (independent) on the Instrumental Daily Life Activities Index, and 1.56 (discomforting) on the McGill Pain Scale for pain felt at the moment of questioning. A low-level negative relationship was observed between the scores on the Fatigue Severity Scale and the Daily Life Activities Index (p<0.05, r=-0.298), and between Fatigue and Instrumental Daily Life Activities scores (p<0.05, r=-0.354). A medium-level positive relationship was observed between the scores on the Fatigue Severity Scale and the McGill Pain Scale (p<0.05, r=0.478). Conclusion:This study determined that pain and fatigue affected the daily lives of SLE patients. The study should be repeated on a larger sample.

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Effectiveness of Nonpharmacologic Interventions for Decreasing Fatigue in Adults With Systemic Lupus Erythematosus: A Systematic Review

Pino-Sedeño

Trujillo‐Martín

Ruiz‐Irastorza

et al. 2015

Arthritis Care & Research

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Objective. Survival of patients with systemic lupus erythematosus (SLE) has significantly improved over the past decades. As SLE patients live longer they inevitably experience a range of clinical manifestations and somatic symptoms. Quality of life may also be impacted through a range of subjective indicators. Among these parameters, fatigue is the most prevalent complaint. Nonpharmacologic strategies seem regularly utilized for fatigue management in SLE; however, their real effects are not known. Methods. A systematic review was conducted to analyze the effectiveness of nonpharmacologic interventions to reduce fatigue in SLE patients. Medline/PreMedline, Embase, PsycINFO, SCI-EXPANDED, Social Sciences Citation Index, and the Cochrane Library were searched (June 2014). Studies were included and assessed for quality if they fulfilled prespecified criteria. Results. A total of 12 studies were finally included (n 5 549): 7 randomized trials, 1 nonrandomized trial, and 4 prospective observational studies. They assessed 5 main intervention categories: exercise, behavioral and psychological approaches, diets, acupuncture, and phototherapy. All interventions produced reductions in fatigue, as measured using at least 1 instrument. Aerobic exercise was found to be effective and suitable for reducing fatigue, but results were not always consistent across instruments used. The diversity of psychological interventions limits the significance of the results; however, data point to a positive impact on fatigue. There are still few data on the effect of acupuncture, diets, and ultraviolet A radiation. Conclusion. Studies are few and heterogeneous; however, nonpharmacologic interventions applied to SLE patients can be effective in reducing fatigue.

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Effects of a self‐management course for patients with systemic lupus erythematosus

Abstract: The systemic lupus erythematosus self-management course had effects in reducing fatigue and depression and improving coping skills and self-efficacy. This course is potentially a good nursing intervention that can be offered in community settings.

Cited by 65 publications

References 17 publications

Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

The Effects of Fatigue and Pain on Daily Life Activities in Systemic Lupus Erythematosus

Effectiveness of Nonpharmacologic Interventions for Decreasing Fatigue in Adults With Systemic Lupus Erythematosus: A Systematic Review

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