Effects of Informal Caregivers' Health on Care Recipients

Yuda, Michio; Lee, Jinkook

doi:10.1111/jere.12102

Cited by 11 publications

(8 citation statements)

References 34 publications

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“…Research has shown that the health of informal caregivers is a major influence on care recipients’ health and well-being, as informal caregivers’ declining health can negatively impact care recipients’ health [45]. Moreover, if informal caregivers lack effective coping styles, this can lead to poorer health outcomes for care recipients, such as increased risk for falls and development of preventable secondary complications (i.e., pressure sores) [46].…”

Section: Resultsmentioning

confidence: 99%

The role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers: a scoping review

Newman

Wang

et al. 2019

BMC Public Health

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BackgroundIn Canada, 8.1 million people informally provide care without payment, primarily to family members; 6.1 million of them are employed at a full-time or part-time job. Digital technologies, such as internet-based tools, can provide informal caregivers’ access to information and support. This scoping review aimed to explore the role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers.MethodsA systematic search for relevant peer-reviewed literature was conducted of four electronic databases, guided by Arksey and O’Malley’s framework. An extensive search for relevant grey literature was also conducted.ResultsThe screening process yielded twenty-three papers. The following themes were generated from the reviewed studies: searching for and receiving support; gaining a sense of social inclusion and belonging; and benefits and challenges of web-based support. The studies noted that, to connect with peers and obtain social support, informal caregivers often turn to online platforms. By engaging with peers in online communities, these caregivers reported regaining a sense of social inclusion and belonging.ConclusionsThe findings suggest that internet-based digital tools can be a cost-effective and convenient way to develop programs that help unpaid caregivers form communities, gain support, and access resources. Service providers can leverage digital tools to deliver support to caregivers within online communities.

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Section: Resultsmentioning

confidence: 99%

The role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers: a scoping review

Newman

Wang

et al. 2019

BMC Public Health

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“…We can observe in the results, which reveal that caregivers with previous experience have difficulties in some areas. The pre-existing difficulties, often associated to the low level of education and the high level of complexity of the problems suffered by the dependent person, result in high levels of anxiety and insecurity for the caregiver, which leads to them being afraid of performing some tasks [30, 31]. In this regard, the tasks which require manual dexterity and technique to carry them out, such as well as hygiene tasks (bed bathing), transfers and mobility, medication and feeding through a tube, and tracheal aspiration have caused great concern in the caregiver [30].…”

Section: Discussionmentioning

confidence: 99%

Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

et al. 2019

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Background The world is facing many socio-demographic changes, such as an increased average life expectancy and the presence of chronic and non-communicable diseases, which in turn, leads to an enhanced dependency on others. Consequently, the demand for informal caregivers has significantly increased during the past few years. Caring for a dependent person is linked to a series of burdens that often leads to physical, psychological and emotional difficulties. Taking into consideration the difficulties faced by informal caregivers, knowing in which areas of functioning they need more guidance may help to relieve their burden. Therefore, the main goal of this study is to better understand the needs and competencies of the informal caregiver when caring for a dependent person in the different self-care domains. Methods This cross-sectional study used a questionnaire administered on a single occasion by face-to-face interview. Descriptive and inferential statistics alongside non-parametric statistical techniques such as the Mann-Whitney test and Spearman’s correlation were used. Results The average age of the 143 informal caregivers is 58 years old, with the youngest in our sample being 21 years of age. Most of them are female, and 50% of them are children taking care of one of their parents. Most of the dependent people are completely dependent in the areas of comfort and hygiene (53.8%) and medication management (55.9%). The female informal caregivers see themselves as having more competencies in sanitary hygiene than the male ones, with no significant differences in their competencies’ perception in the other areas of self-care. Older caregivers see themselves as less competent in certain areas of self-care such as feeding, mobility, transfers, medication and symptoms management and communication. Most of the information given to the informal caregiver is about the disease (82.3%) and the medication management (80.4%). There are still a lot of areas of self-care, where no information, or almost none, is given to the informal caregivers. Conclusions Before home discharge of a dependent person, it is important to acknowledge the needs and competencies of the informal caregiver, to capacitate them in looking after their relatives, to help decrease their burden and consequently, decrease the number of hospital readmissions.

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“…Informal caregivers could be family members, relatives, friends or even neighbours, except care provided by professionals or through organised voluntary services [ 2 ]. Informal care has significant preventative properties in terms of avoiding or delaying institutionalisation [ 3 ] and can be seen as a practical measure to contain the costs of health services while at the same time support the widespread preferences among older people to be cared for at their own home and their familiar environment [ 4 , 5 ].…”

Section: Introductionmentioning

confidence: 99%

Factors associated with informal caregiving and its effects on health, work, and social activities of adult informal caregivers in Malaysia: findings from the National Health and Morbidity Survey 2019

et al. 2021

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Background The increase in the elderly population, chronic and degenerative diseases, as well as accidents at work and on the road in Malaysia would result in an increased demand for informal care. This paper aimed to determine the associated factors of informal caregiving and its effects on health, work and social activities of adult informal caregivers in Malaysia. Methods The data from the 2019 National Health and Morbidity Survey (NHMS), a nationwide cross-sectional survey with a two-stage stratified random sampling design, was used in this research. The study included respondents who were 18 years and older (n = 11,674). Data were obtained via face-to-face interviews using validated questionnaires. Descriptive and complex sample logistic regression analyses were employed as appropriate. Results 5.7% of the adult population were informal caregivers. Provision of informal care were significantly associated with the female sex (OR = 1.52, 95% CI [1.21, 1.92]), those aged 36–59 years (OR = 1.61, 95% CI [1.15, 2.25]), and those who reported illness in the past 2 weeks (OR = 1.79, 95% CI [1.38, 2.33]). The risk of having their health affected were associated with female caregivers (OR = 3.63, 95% CI [1.73, 7.61]), those who received training (OR = 2.10, 95% CI [1.10, 4.00]) and those who provided care for 2 years or more (OR = 1.91, 95% CI [1.08, 3.37]). The factors associated with the effects on work were ethnicity, received training and had no assistance to provide the care. In terms of effect on social activities, female caregivers (OR = 1.96, 95% CI [1.04, 3.69]) and caregivers who received training were more likely (OR = 2.19, 95% CI [1.22, 3.93]) to have their social activities affected. Conclusion Our study revealed that sex, age, and self-reported illness were factors associated with being an informal caregiver in Malaysia. Informal caregivers faced effects on their health, work, and social activities which may be detrimental to their well-being. This understanding is crucial for planning support for caregivers.

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Effects of Informal Caregivers' Health on Care Recipients

Cited by 11 publications

References 34 publications

The role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers: a scoping review

The role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers: a scoping review

Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

Factors associated with informal caregiving and its effects on health, work, and social activities of adult informal caregivers in Malaysia: findings from the National Health and Morbidity Survey 2019

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