Effects of patient satisfaction and confidence on the success of treatment of combined rheumatic disease and interstitial lung disease in a multidisciplinary outpatient clinic

Jeong, Shin Ok; Uh, Soo‐Taek; Park, Suyeon; Kim, Hyun‐Sook

doi:10.1111/1756-185x.13331

Cited by 9 publications

(7 citation statements)

References 35 publications

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“…HRCT was usually acquired only at baseline during the diagnostic process (24/27 studies). In 3 studies including longitudinal information, HRCT was repeated after 3–6 months in two studies (22, 31), and not specified in one study (35). Baseline chest X-ray was described in only one study (37).…”

Section: Resultsmentioning

confidence: 99%

“…PFT were not performed in the same two previously described studies, in which even HRCT was not performed (25, 39). In 21 studies, PFTs were performed only at the baseline while in 6 studies repetition was described during follow-up with different timing: 1–3 months (38), 3 months (22), 3–6 months (31), annually (27), and not specified (32). The parameters considered were in most cases the forced vital capacity (FVC), the ability to spread carbon monoxide (DLCO) and forced expiratory volume in the 1st second (FEV1); less frequently, total lung capacity (TLC); and residual volume (RV).…”

Section: Resultsmentioning

confidence: 99%

“…In a study by Kalluri, subjects with ILD secondary to rheumatic diseases referred to the MDT (composed of pneumologist and rheumatologist), were compared with patients suffering from IPF followed according to a normal care setting. While the disease progression assessed through the worsening of the HRCT and PFT parameters was comparable, patients evaluated by MDD experienced greater satisfaction and more participation in their care path (22). A multidisciplinary approach in palliative care involving the participation of ILD experts, a palliative respiratory care expert, nurse, respiratory therapist, physiotherapist, and a dietitian, compared to the standard approach (namely ILD experts and a nurse) proved efficacy in improving the management of a small series of 32 patient, in terms of reduced number of emergency visits and hospital admissions (25).…”

Section: Resultsmentioning

confidence: 99%

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The Role of the Multidisciplinary Evaluation of Interstitial Lung Diseases: Systematic Literature Review of the Current Evidence and Future Perspectives

et al. 2019

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The opportunity of a multidisciplinary evaluation for the diagnosis of interstitial pneumonias highlighted a major change in the diagnostic approach to diffuse lung disease. The new American Thoracic Society, European Respiratory Society, Japanese Respiratory Society, and Latin American Thoracic Society guidelines for the diagnosis of idiopathic pulmonary fibrosis have reinforced this assumption and have underlined that the exclusion of connective tissue disease related lung involvement is mandatory, with obvious clinical and therapeutic impact. The multidisciplinary team discussion consists in a moment of interaction among the radiologist, pathologist and pulmonologist, also including the rheumatologist when considered necessary, to improve diagnostic agreement and optimize the definition of those cases in which pulmonary involvement may represent the first or prominent manifestation of an autoimmune systemic disease. Moreover, the proposal of classification criteria for interstitial lung disease with autoimmune features (IPAF) represents an effort to define lung involvement in clinically undefined autoimmune conditions. The complexity of autoimmune diseases, and in particular the lack of classification criteria defined for pathologies such as anti-synthetase syndrome, makes the involvement of the rheumatologist essential for the correct interpretation of the autoimmune element and for the application of classification criteria, that could replace clinical pictures initially interpreted as IPAF in defined autoimmune disease, minimizing the risk of misdiagnosis. The aim of this review was to evaluate the available evidence about the efficiency and efficacy of different multidisciplinary team approaches, in order to standardize the professional figures and the core set procedures that should be necessary for a correct approach in diagnosing patients with interstitial lung disease.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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The Role of the Multidisciplinary Evaluation of Interstitial Lung Diseases: Systematic Literature Review of the Current Evidence and Future Perspectives

et al. 2019

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“…The impact of social support on psychological well-being has been preliminarily studied ( 124 ). Small observational studies in ILD have reported on general well-being indices, patient satisfaction, and perceived stress in the context of a mindfulness-based stress reduction program ( 125 – 127 ). Although this is a terrific start, more research is needed.…”

Section: Discussion Of Specific Patient-centered Outcomes and Research Recommendationsmentioning

confidence: 99%

Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement

Aronson¹,

Danoff²,

Russell³

et al. 2021

Am J Respir Crit Care Med

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Background: In the past two decades, many advances have been made to our understanding of interstitial lung disease (ILD) and the way we approach its treatment. Despite this, many questions remain unanswered, particularly those related to how the disease and its therapies impact outcomes that are most important to patients. There is currently a lack of guidance on how to best define and incorporate these patient-centered outcomes in ILD research.Objectives: To summarize the current state of patient-centered outcomes research in ILD, identify gaps in knowledge and research, and highlight opportunities and methods for future patientcentered research agendas in ILD.Methods: An international interdisciplinary group of experts was assembled. The group identified top patient-centered outcomes in ILD, reviewed available literature for each outcome, highlighted important discoveries and knowledge gaps, and formulated research recommendations.Results: The committee identified seven themes around patientcentered outcomes as the focus of the statement. After a review of the literature and expert committee discussion, we developed 28 research recommendations.Conclusions: Patient-centered outcomes are key to ascertaining whether and how ILD and interventions used to treat it affect the way patients feel and function in their daily lives. Ample opportunities exist to conduct additional work dedicated to elevating and incorporating patient-centered outcomes in ILD research.

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“…The findings of high patient satisfaction appear to be consistent across disciplines with comparable results reported in multidisciplinary HIV, pediatric allergy, rheumatic disease, interstitial lung disease, and gender dysphoria clinics. 20-23…”

Section: Discussionmentioning

confidence: 99%

Patient Satisfaction and Efficiency Benefits of a Novel Multidisciplinary Rhinology and Allergy Clinic

Fang

Ferastraoaru

et al. 2020

Ann Otol Rhinol Laryngol

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Background: Chronic rhinosinusitis (CRS) is a chronic inflammatory disease of the sinonasal mucosa and with strong associations to other immune-mediated comorbidities. Patients often require referral to both an otolaryngologist and an allergist/immunologist. This study is the first in the literature to describe a multidisciplinary clinic that offers patient care by subspecialists in rhinology and in allergy/immunology. Methods: One hundred twenty-nine patients were seen in the Comprehensive Sinus and Allergy Clinic (CSAC) between January 2016 and June 2017 and 43 selected patients were seen in both the standalone allergy and rhinology clinics over the same time period. Patient satisfaction was retrospectively assessed using a modified Press-Ganey satisfaction survey. Time to evaluation and time to follow up appointment were compared between the CSAC and both the standalone rhinology and allergy/immunology clinics. Results: Patients seen in the CSAC reported high satisfaction with the amount of time spent with the physicians (98.3%), quality of medical care (9.3 ± 1.0), and most importantly, the convenience of seeing two physicians in one day (9.5 ± 1.2). Time from referral placement to clinic evaluation ( P ≤ .02) and time to follow up appointment ( P ≤ .002) was significantly shorter for the CSAC than for the standalone Rhinology or Allergy clinics. Conclusion: Patients reported high satisfaction with the medical care provided and were also seen much faster in our multidisciplinary clinic as compared to standalone rhinology or allergy/immunology clinics. Overall, a multidisciplinary approach may be beneficial to patients presenting to tertiary referral centers with CRS and atopic conditions.

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Effects of patient satisfaction and confidence on the success of treatment of combined rheumatic disease and interstitial lung disease in a multidisciplinary outpatient clinic

Abstract: MDDs afforded satisfactory management compared with standardized medical care. The MDD group felt better attention fromand satisfaction with medical staff, and had greater identification in their treatment. Further research engaging in MDDs with a comparable control group is required.

Cited by 9 publications

References 35 publications

The Role of the Multidisciplinary Evaluation of Interstitial Lung Diseases: Systematic Literature Review of the Current Evidence and Future Perspectives

The Role of the Multidisciplinary Evaluation of Interstitial Lung Diseases: Systematic Literature Review of the Current Evidence and Future Perspectives

Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement

Patient Satisfaction and Efficiency Benefits of a Novel Multidisciplinary Rhinology and Allergy Clinic

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