Efficacy of the Brain Injury Family Intervention

Kreutzer, Jeffrey S.; Marwitz, Jennifer H.; Sima, Adam P.; Godwin, Emilie E.

doi:10.1097/htr.0000000000000144

Cited by 63 publications

(39 citation statements)

References 58 publications

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“…In 2000, we began a clinical research project designed to evaluate the effectiveness of a family intervention program. The program was further refined and manualized in the form of the Brain Injury Family Intervention (BIFI; Kreutzer & Taylor, ). The BIFI was designed to improve survivors' and family members' life satisfaction and well‐being.…”

Section: Application Of Ambiguous Loss Theory To Family Intervention mentioning

confidence: 99%

Ambiguous Loss and Emotional Recovery After Traumatic Brain Injury

Kreutzer

Mills

Marwitz

2016

J of Family Theo & Revie

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Ambiguous Loss and Emotional Recovery AfterTraumatic Brain Injury Traumatic brain injury (TBI) is highly prevalent, with many survivors experiencing long-term disability as a consequence of cognitive impairments, adverse personality changes, and emotional and communication difficulties. Because family members most often assume the long-term role of caregiver, their feelings, relationships, and life plans are often negatively affected. Boss has defined a type of ambiguous loss in which the person is physically present but psychologically absent, which is the case for many families after brain injury. Over the past 2 decades we have developed interventions incorporating ambiguous loss theory to enhance resilience and improve psychological outcomes in families after TBI. This article provides a brief overview of TBI, discusses ambiguous loss in families after TBI, and describes the therapeutic goals and framework of empirically supported family interventions using the lens of ambiguous loss theory. Traumatic brain injury is like an incomplete death: You've lost a person, or parts of that person, but he's still here . -Crimmins (2000, p. 218) With an estimated annual incidence rate of 1.7 million, traumatic brain injury (TBI) is a leading cause of death and disability in the United

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Section: Application Of Ambiguous Loss Theory To Family Intervention mentioning

confidence: 99%

Ambiguous Loss and Emotional Recovery After Traumatic Brain Injury

Kreutzer

Mills

Marwitz

2016

J of Family Theo & Revie

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“…15 The central hypothesis underpinning this research is that a theory-based, caregiver-centered intervention focused on skill building and problem-solving will improve stroke survivor physical function while reducing caregiver negative outcomes and increasing accessibility of participation. Recognizing that caregiver interventions frequently exclude the patients, CARE-CITE addresses the caregiver-stroke survivor interactions, similar to work in traumatic brain injury by Kreutzer and Arango-Lasprilla 16–18 and in stroke by Lutz, 19, 20 and Oswald 21 and colleagues. Caregiver training intervention trials initiated during inpatient rehabilitation have had mixed results.…”

Section: Introductionmentioning

confidence: 99%

Content validity and satisfaction with a caregiver-integrated web-based rehabilitation intervention for persons with stroke

Blanton

Dunbar

Clark

2018

Topics in Stroke Rehabilitation

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Background Family members provide valuable contributions during rehabilitation after stroke, but frequently report higher incidences of burden, depression and social isolation during caregiving. Thus, effective interventions to reduce stroke impact on the family are needed. Objective To evaluate the content validity and satisfaction of a caregiver focused web-based intervention designed to improve stroke survivor physical function while reducing caregiver negative outcomes. Method Caregivers of individuals with stroke (N=6) and expert rehabilitation researchers (N=4) were presented with a novel, web-based intervention (CARE-CITE) designed to foster problem solving and skill-building while facilitating caregiver involvement during constraint-induced movement therapy. Caregivers rated CARE-CITE for usefulness, ease of use, acceptability, and time to complete. Rehabilitation experts evaluated content for accuracy, feasibility, acceptability, problem relevance and ease of use. Ratings were assessed using a 5-point Likert-type response scales (1=strongly disagree to 5=strongly agree). Results On average, all caregivers agreed or strongly agreed that the modules were useful (4.42), easy to use (4.60) and acceptable (4.41). Mean total satisfaction score was 4.45, and average review time was 15 minutes per module. Expert reviewers agreed or strongly agreed that each module was accurate (4.95), feasible (4.8), easy to use (4.86) acceptable (4.96) and had appropriate problem relevance (4.65). Conclusions The CARE-CITE intervention may be a viable program for caregivers of patients with stroke. Currently a pilot study is underway to evaluate the impact of the intervention on caregiver mental health, family conflict around stroke recovery and stroke survivor upper extremity function.

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“…Family members undergo substantial and abrupt role changes from the onset of ABI and the scope of caregiving includes providing assistance for activities of daily living, emotional support, managing finances and medication, as well as helping with transportation (Cameron et al, 2013;Kreutzer, Marwitz, Sima, & Godwin, 2015;Weiss et al, 2011). Some family members in this study described feeling simply grateful that their relative was alive and reported a willingness to do anything for them, which is consistent with other qualitative findings on the experiences of family members of individuals with ABI (Braine, 2011).…”

Section: Discussionmentioning

confidence: 99%

“… Support family members in developing problem solving skills to overcome barriers and challenges (Kreutzer et al, 2015;Rivera, Elliott, Berry, & Grant, 2008). It may be common for family members to rely on healthcare professionals for solutions or continue the use of initially generated strategies beyond the time they are effective or when they are causing burden.…”

Section: Facilitating Long-term and Sustainable Solutionsmentioning

confidence: 99%

“…The domains of caregiving are wide ranging, and include providing practical care for daily activities, finances, transport, medication and emotional support (Kreutzer et al, 2015). It is only in the recent decade that the literature has started to highlight that the provision of transport during driving disruption has its own set of unique challenges for family members.…”

Section: Introductionmentioning

confidence: 99%

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Family members’ needs and experiences related to driving disruption following acquired brain injury

Liang¹

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Family members often assume the caregiving role after an individual sustains an acquired brain injury (ABI). A mandated period of driving disruption following an ABI means that individuals will often rely heavily on family members for transport and emotional support.However, research on driving disruption has largely focused on the impact, assessment and rehabilitation of the individual with ABI, with little attention given to family members. In order to develop an understanding for approaches to support family members better, this thesis aimed to explore the needs and experiences of family members during driving disruption following an ABI.The first aim of the thesis was to gain a broader understanding of the issue by conducting a scoping review of the literature on family members' needs and experiences during driving disruption across all health conditions. The scoping review found that driving disruption is a stressful and complex issue with communication and emotional implications for family members. The review highlighted differences in experiences according to health condition, permanence of driving disruption and nature of the caregiver occupation, and identified the need for further research on the issue of driving disruption for family members of individuals with ABI.A prospective, mixed methods, longitudinal study, with a phenomenological approach was conducted with family members of individuals with ABI who were experiencing driving disruption. Recruitment was stratified according to time post-ABI to gain a range of perspectives. Data were collected from 15 family members at three time-points: recruitment to study, 3 and 6 months later. Self-report questionnaires measuring family members' quality of life and well-being were administered at the first time-point, and semistructured interviews were conducted at each time-point. All interviews incorporated the use of a map to elicit qualitative and quantitative data about family members' current travel patterns as a result of driving disruption. The data were analysed using different approaches in a series of four studies.The first two studies aimed to gain an in-depth understanding about the experiences of family members of individuals experiencing driving disruption due to ABI across the recovery continuum. Both studies examined the mixed methods cross-sectional data from the first time-point. The first study explored the differences in family members' experiences iii at the early (<1 year post-ABI) and later stages (>1 year post-ABI) using a mixed methods, phenomenological approach. Family members in the later group reported more challenges with greater intensity. These challenges included changes in everyday activities, the impact on their emotions, consequences for the whole family, and effects on physical health. The later group had lower ratings of health and well-being, and higher caregiver strain.The second study investigated the specific changes family members experienced in everyday activities with a focus on the impact of driving disru...

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Efficacy of the Brain Injury Family Intervention

Cited by 63 publications

References 58 publications

Ambiguous Loss and Emotional Recovery After Traumatic Brain Injury

Ambiguous Loss and Emotional Recovery After Traumatic Brain Injury

Content validity and satisfaction with a caregiver-integrated web-based rehabilitation intervention for persons with stroke

Family members’ needs and experiences related to driving disruption following acquired brain injury

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