Elaboración de un cuestionario sobre conocimientos y actitudes de la población madrileña frente al final de la vida

Ortiz-Gonçalves, Belén; Santiago‐Sáez, Andrés; Juan, Elena Albarrán; Labajo-González, Elena; Pérez, Bernardo Perea

doi:10.1016/j.gaceta.2017.09.009

Cited by 4 publications

(3 citation statements)

References 12 publications

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“…12 Therapeutic obstinacy, defined in ethical terms, was rejected by the majority. These results are consistent with those of Ortiz Gonçalves et al, 13 who point out that more than 50 % of the population is against therapeutic obstinacy. In other topics, indifference ranged from 5 to 10 % (Table 1), which was significant from the perspective of the comprehension of terms, since it should be nearly absent.…”

Section: Discussionsupporting

confidence: 93%

Survey about end-of-life decision in the general population

Pichardo-García¹,

Martínez²,

Jaimes-Palomera³

et al. 2023

GMM

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Introduction: Concepts related to end-of-life decisions, such as euthanasia, palliative care, advance directives and therapeutic obstinacy, are poorly understood by the general population, which, when facing a terminal situation, is not prepared to choose the best option. Objective: Pilot study (n = 544) to find out what the open population understands about terms used in end-of-life situations in four cities of the Mexican Republic. Method: Survey via Internet with 18 questions about different terms. It was a descriptive, cross-sectional study. Statistical analysis was carried out. Results: People older than 18 years who were not engaged in health-related professional activities were selected. Conclusions: Most terms related to end-of-life decisions were found not to be interesting to or understood by a part of the population. The least recognized term was therapeutic obstinacy (62.8%), and the most widely known, palliative care (91%); there was confusion between the terms euthanasia and assisted suicide (47.8%). Age and education level had more influence in the results, than other demographic variables.

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Section: Discussionsupporting

confidence: 93%

Survey about end-of-life decision in the general population

Pichardo-García¹,

Martínez²,

Jaimes-Palomera³

et al. 2023

GMM

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“…There is now a greater culture of shared decision-making at the end of life, but much has yet to be done. There are still prejudices and taboos about how to face death [39], which makes it difficult to promote an open dialogue on the end of life among the ill, their relatives and health care professionals, thus affecting the completion of ADs.…”

Section: Lack Of a Public Awareness Processmentioning

confidence: 99%

Why have Advance Directives failed in Spain?

et al. 2020

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Background In Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the implementation of ADs can be said to have failed in Spain, because its prevalence is very low, there is a great lack of knowledge about them and they have very little impact on clinical decisions. The purpose of this article is to analyze and discuss the main reasons for the failure of ADs in Spain. Main body The main reasons why ADs have no impact on clinical practice in Spain have been fundamentally four: (1) the training of health professionals about the end of life and AD is lacking; (2) there has been no public process to increase awareness about AD, and therefore people (with the exception of specific highly sensitized groups) know little about them; (3) the bureaucratic procedure to document and implement ADs is excessively complex and cumbersome, creating a significant barrier to their application; (4) in Spain, the remnants of a paternalistic medical culture continue to exist, which causes shared decision-making to be difficult. Conclusion Due to the four reasons mentioned above, AD have not been a useful tool to help honor patients’ autonomous decisions about their future care and, therefore, they have not achieved their objective. However, despite the difficulties and problems identified, it has also been observed that health care professionals and the Spanish public have a very positive view of AD. Having identified the problems which have kept AD from being successful, strategies must be developed to help improve their implementation into the future.

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“…12 La obstinación terapéutica, definida en términos éticos, fue rechazada por la mayoría. Estos resultados coinciden con los de Ortiz Gonçalves et al, 13 quienes señalan que más de 50 % de la población está en contra de la obstinación terapéutica. En otros temas, la indiferencia osciló entre 5 y 10 % (Tabla 1), significativa desde la perspectiva de la comprensión de términos, pues debería ser casi nula.…”

Section: Sí (%) No (%) a Veces (%)unclassified

Encuesta en población abierta respecto a términos relacionados con decisiones al final de la vida

Pichardo-García

Martínez

Jaimes-Palomera³

et al. 2019

GMM

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Introducción: Conceptos relacionados con las decisiones que se toman al final de la vida, como eutanasia, cuidados paliativos, voluntad anticipada y obstinación terapéutica son poco comprendidos por la población en general, que en el momento de enfrentar una situación terminal no está preparada para elegir la mejor opción. Objetivo: Estudio piloto (n = 544) para conocer lo que la población abierta entiende acerca de términos utilizados al final de la vida en cuatro ciudades de la república mexicana. Método: Encuesta vía internet de 18 preguntas sobre los distintos términos. Se trató de un estudio descriptivo, transversal, con análisis estadístico. Resultados: Se eligieron personas mayores de 18 años que no trabajaran en profesiones relacionadas con la salud. Conclusiones: La mayoría de los términos del final de la vida no interesaron ni fueron entendidos por parte de la población. El término menos reconocido fue la obstinación terapéutica (62.8 %) y el más conocido, cuidados paliativos (91 %); se confunden los términos eutanasia y suicidio asistido (47.8 %). La edad y escolaridad resultaron de mayor influencia en los resultados, que las otras variables demográficas.

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Elaboración de un cuestionario sobre conocimientos y actitudes de la población madrileña frente al final de la vida

Abstract: The questionnaire was a useful, indirect method to ascertain the opinion of life's end in the Autonomous Region of Madrid. If it were applied in primary health care and hospital care, comparisons could be made among users in different autonomous regions of Spain.

Cited by 4 publications

References 12 publications

Survey about end-of-life decision in the general population

Survey about end-of-life decision in the general population

Why have Advance Directives failed in Spain?

Encuesta en población abierta respecto a términos relacionados con decisiones al final de la vida

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