Eliciting user perspectives on what works

Stalker, Kirsten; Gilliard, Jane; Downs, Murna

doi:10.1002/(sici)1099-1166(199902)14:2<120::aid-gps947>3.0.co;2-9

Cited by 21 publications

(19 citation statements)

References 47 publications

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“…These ethical issues have often been considered as valid reasons not to include people with dementia in research (Hellstro¨m et al, 2007). Potential ethical problems when including individuals with dementia in research include (a) the risk of intruding unwanted in people's lives; (b) the risk of raising expectations of continuing friendship which may not be realized; (c) the issue of confidentiality; and (d) the need to give people something in return for the data they have provided (Stalker, Gilliard, & Downs, 1999). In dementia research, one may state that there is only seldom direct benefit to the individual, although the primary aim might be the increase of knowledge and improvement of care in the future (Berghmans & Ter Meulen, 1995).…”

Section: Further Ethical Issuesmentioning

confidence: 99%

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How to evaluate quality of care from the perspective of people with dementia: An overview of the literature

et al. 2010

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This article reviews the literature on the inclusion of the perspective of people with dementia when evaluating quality of care. The few identified relevant studies suggest that there is consensus that people with mild to moderate dementia are able to talk about their experiences with care with clarity and insight. A minimum level of orientation to place, attention and language skills in the person with dementia are important for a successful subjective evaluation. On the basis of the relevant literature, we additionally formulated practical guidelines useful when one aims to collect information with interviewing, self-administered questionnaires, or focus groups from people with dementia to assess quality of care. In people with mild to moderate dementia, assessment of quality of care can best be done by individual interviewing and focus groups. Further research is needed to ascertain what people with dementia find important in relation to quality of care.

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Section: Further Ethical Issuesmentioning

confidence: 99%

“…They may have difficulty separating what they themselves want and need from what the person with dementia requires (Biernacki, 2000;Cheston et al, 2000;Stalker et al, 1999). So there can be discrepancy in responses between people with dementia and their proxies .…”

Section: Xmentioning

confidence: 99%

How to evaluate quality of care from the perspective of people with dementia: An overview of the literature

et al. 2010

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“…Furthermore, we asked them for recommendations on how to best approach and work with people with dementia. While this is a standard approach when designing for dementia patients it is often criticized for not sufficiently involving the actual target users [10]. For us, it proved to be useful to guide not only our designs but also the observations and focus groups with people with dementia.…”

Section: Understanding the Usermentioning

confidence: 99%

Lessons learned from participatory design with and for people with dementia

Mayer

Zach

2013

Proceedings of the 15th International Conference on Human-Computer Interaction With Mobile Devices and Services

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In this paper we describe challenges and lessons learned from developing a mobile touch screen based assistive tool for people with dementia. We focus not on features of the tool but the general participatory design process that was applied. Insights presented are gained from interviews, focus groups and observations. We found that projecting problems on imaginary characters and using simple games specifically customized for people with dementia ease the process of eliciting user needs and realistic prototypes allow design evaluations with people with dementia early on.

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“…Yet involving PwDs is imperative to gain an understanding of their very unique needs and requirements [6,38,46]. As Stalker et al [46] point out, if the PwD is the user, then "Reliance on carers for this information is foolhardy".…”

Section: Challenges When Developing For Users With Dementiamentioning

confidence: 99%

Putting Dementia into Context

Vogt

Luyten

Bergh

et al. 2012

Human-Centered Software Engineering

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Abstract.People with dementia face a decline of their cognitive functions, including memory impairment and difficulty to orient in time and space. Assistive applications can ease the effects of dementia by assuming and supporting impaired functions. Context-awareness is an accepted paradigm for assistive applications. It enables interactive systems to react appropriately to situations that occur during daily routines of people with dementia. However, there currently is no recommended framework to view symptoms of dementia in terms of context and context-awareness. The aim of this paper is to inform designers in the early design stages of assistive applications how requirements and needs of people with dementia can be represented in a context-aware application. Based on a systematic literature review, we elicit which context types are linked to the needs of people with dementia and their caregivers and how they are used in existing assistive applications in dementia care. Our focus is on applications evaluated and assessed with people with dementia. We also classify these assistive applications by the offered context-aware services. We observe that these should not be limited within the realm of the local residence; context types that are valuable in-house can, to a certain extent, also be leveraged outside a local residence. We believe the proposed framework is a tool for application builders and interface designers to accomplish an informed design of systems for people with dementia.

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Eliciting user perspectives on what works

Cited by 21 publications

References 47 publications

How to evaluate quality of care from the perspective of people with dementia: An overview of the literature

How to evaluate quality of care from the perspective of people with dementia: An overview of the literature

Lessons learned from participatory design with and for people with dementia

Putting Dementia into Context

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