Emotional and informational support for families during their child’s illness

Abstract

Families' and nurses' suggestions for development of support were related to the time resources of the staff, to the flow of information, to more client-centred attitudes, to being appreciated and listened to and to home care guidance. However, the pervasiveness of this problem in the international literature suggests that deeper consideration of possible underlying reasons for this phenomenon is called for.

Viewpoint of Mothers of Premature Newborns about Nursing Supports in Neonatal Intensive Care Units

“…Mothers of premature newborns often complain about the incomplete information provided by healthcare workers about the condition and treatment of their newborns [11]. Kohan et al studied the experiences of mothers of newborns hospitalized in NICUs and reported that mothers face three basic problems of "dealing with unfamiliar situations" (including NICU and unawareness about the care of premature babies); "the need to be understood" (family's need for support from healthcare team, especially nurses), and "loss of control over the newborn" (limited participation in care and unpredictability of newborn's condition) [12].In fact, the parents of these infants have less confidence [13].The influence of nurses over mothers can empower them in coping with stressors and providing a good maternal role [14].Mothers' experiences in hospitals show that there is insufficient information support, including provision of transparent information to mothers about the condition of the newborn, parental rights and responsibilities during neonatal hospitalization and emotional support that includes listening to and helping the mother to cope with the newborn's disease [15].Therefore, the present study was conducted to determine the viewpoints of mothers of premature newborns about the importance and amount of support received from the nurses in line with the health system goals in Iran.…”

The Effects of an Empowerment Program on the Knowledge, Self-Efficacy, Self-Esteem, and Attitudes of Mothers of Preterm Neonates

“…Borimnejad et al (2013) also suggested that knowledge transfer from nurses to parents can promote parents' participation in the care process, strengthen behaviors such as breastfeeding, and hence, improve neonates' weight gain (16). Sarajarvi et al (2006) and Lindberg and Ohrling (2008) also reported that their empowerment programs significantly alleviated anxiety and stress of families and mothers who had preterm neonates and highlighted that families need neonatal care education in order to get more involvement in the process of care-giving to their neonates (10,27). In addition, JafariMyanaie et al (2011) found the positive effects of education on mothers' anxiety and tension (1).…”

“…to change their immediate situations (7)(8)(9)(10). Previous studies showed the positive effects of family-centered empowerment model (FCEM) on mothers' self-efficacy, stress, and depression (11), knowledge and attitudes of mothers who had a child with thalassemia (12), quality of life of children with asthma and their mothers (7), self-efficacy of patients with diabetes mellitus (8,12,13) and patients who received hemodialysis (14), iron deficiency anemia among girls (9), mothers' stress (6), and health-promoting behaviors of women (15).…”

Observations of health‐care professionals sharing and contributing responsibility in paediatric caring situations

“…For the hcp, support and giving the families information is one of the most important ways for them and their families to be equal partners and this finding is similar to a previous study. 25 …”