1964
DOI: 10.1542/peds.33.3.367
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Emotional Implications of Congenital Heart Disease in Children

Abstract: Mothers of 25 children with congenital heart disease were interviewed to elicit family reactions to the patient's disorder. Problems for parents included: vague apprehension about the behavior of the newborn, uncertainty about the diagnosis, anxiety about the child's symptoms, fears of death, feelings of guilt, disappointment and irritation with their burden, overprotective attitudes, attempts to provide the child with a normal active life, difficulties with discipline, and various problems related to hospital… Show more

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Cited by 64 publications
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“…Scholars and clinicians acknowledge that receiving an unexpected diagnosis of congenital heart disease is significant, usually resulting in parental grief and adaptation [8][9][10]. For more than fifty years, investigators have endeavoured to understand the nuclear (couple and dependent children) and wider extended family experience when parents receive a diagnosis of a congenital cardiac anomaly [11]. The continuum of intense stress from the time of lifethreatening (often fatal) diagnosis onwards leads to anxiety, depression and post-traumatic stress disorder, negatively affecting parenting practices and infant-parent bonding [12][13][14][15][16][17][18][19].…”
Section: Introductionmentioning
confidence: 99%
“…Scholars and clinicians acknowledge that receiving an unexpected diagnosis of congenital heart disease is significant, usually resulting in parental grief and adaptation [8][9][10]. For more than fifty years, investigators have endeavoured to understand the nuclear (couple and dependent children) and wider extended family experience when parents receive a diagnosis of a congenital cardiac anomaly [11]. The continuum of intense stress from the time of lifethreatening (often fatal) diagnosis onwards leads to anxiety, depression and post-traumatic stress disorder, negatively affecting parenting practices and infant-parent bonding [12][13][14][15][16][17][18][19].…”
Section: Introductionmentioning
confidence: 99%