Emotional well-being and adjustment to vision loss in later life: a meta-synthesis of qualitative studies

Nyman, Samuel R.; Dibb, Bridget; Victor, Christina; Gosney, Margot

doi:10.3109/09638288.2011.626487

Cited by 119 publications

(154 citation statements)

References 118 publications

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“…Refractive corrections generally reduced these limitations. However, specific issues were affected by type of correction, for example wearing thick rimmed glasses reduced peripheral vision making driving difficult (quotes [11][12][13][14][15][16][17][18][19][20].…”

Section: Resultsmentioning

confidence: 99%

“…17 Although quantitative studies may be important in measuring strengths of relationships between variables, qualitative studies are more important in capturing contextual information from peoples' experiences on determining impact of refractive error on QoL. 18 Ideally, patient consultation through in-depth interviews or focus group discussions is one of the most important stages of developing the content of a high quality patient-reported outcome (PRO) instrument. 14,15 Surprisingly, these preceding qualitative studies have not been discussed or published in detail for any of the publication that reported the development of the existing refractivespecific PRO instruments.…”

Section: Introductionmentioning

confidence: 99%

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Impact of refractive error on quality of life: a qualitative study

Kandel

Khadka

Goggin

et al. 2017

Clinical Exper Ophthalmology

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Impact of refractive error on quality of life: a qualitative study

Kandel

Khadka

Goggin

et al. 2017

Clinical Exper Ophthalmology

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“…Patients recently diagnosed with wAMD can therefore have that expectation of going blind. Previous qualitative and mixed-methods studies on adults with serious vision disorders suggested that the fear of further vision loss and blindness can be an important source of emotional distress (32,51,52), which can ultimately lead to depression (32). In light of this, patients at early stages of anti-VEGF treatment might be at higher risk of having depression due to their fear of going blind because of wAMD.…”

Section: Discussionmentioning

confidence: 99%

Experience of Anti-VEGF Treatment and Clinical Levels of Depression and Anxiety in Patients With Wet Age-Related Macular Degeneration

Senra

Balaskas

Mahmoodi

et al. 2017

American Journal of Ophthalmology

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Purpose: To investigate detailed patient experiences specific to receiving vascular endothelial growth factor inhibitors (anti-VEGF) for wet Age-Related Macular Degeneration (wAMD), and to acquire a snapshot of the frequency of clinically significant levels of depression, anxiety and post-traumatic stress among patients and levels of burden in patients' carers. Design: Observational cross-sectional mixed-methods study Methods: 300 patients with wAMD receiving anti-VEGF treatment and 100 patient carers were recruited. Qualitative data on patients' experience of treatment were collected using a structured survey. Standardised validated questionnaires were used to quantify clinically significant levels of anxiety, depression, post-traumatic stress, as well as cognitive function and carers' burden. Results: Qualitative data showed that 56% of patients (n =132) reported anxiety related to anti-VEGF treatment. The main sources of anxiety were fear of going blind due to intravitreal injections, and concerns about treatment effectiveness rather than around pain. From validated questionnaires, 17% of patients (n=52) showed clinical levels of anxiety, and 12% (n=36) showed clinical levels of depression. Depression levels, but not anxiety, were significantly higher in patients who received up to 3 injections compared to patients who received from 4 to 12 injections (ANOVA P=.027) and compared to patients who received more than 12 injections (ANOVA P=.001). Conclusions: Anti-VEGF treatment is often experienced with some anxiety related to treatment regardless of the number of injections received. Clinical levels of depression seem to be more frequent in patients at early stages of anti-VEGF treatment. Strategies to improve patient experience of treatment and minimise morbidity are suggested.Key Words: Wet Age-Related Macular Degeneration; Anti-VEGF; Depression; Anxiety; Experience.Abstract (MUST be submitted as a separate file) 1

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“…In general, the psycho-rehabilitation programs bring the hope and self-management ability in visually impaired people [22], giving them a chance to explore the environment and enjoy the outdoor activities like participating in meetings [23], improving the psychosocial well-being, and making adjustment [24,25].…”

Section: Discussionmentioning

confidence: 99%

“…Visual impairment can have a negative impact on individuals' psychosocial wellbeing and the emotional needs of those people are easily neglected. Therefore, the psychological intervention, counseling intervention, and peer support groups are necessary to help them meet their psychological and social needs and make lives better [24]. Thus, the training on the concepts of choice theory can be effective on the quality of life and raise hope among blind people.…”

Section: Discussionmentioning

confidence: 99%

The Effectiveness of Group Training of Choice Theory on Quality of Life and Hope in Blind People

Koolaee

Mosalanejad

Mamaghanirad³

2017

IRJ

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Objectives: Choice theory is rooted in psychological concepts like self-concept, successful identity, and quality of the world. This theory could be useful for people seeking for hope and a better life. The purpose of this research was to investigate the effectiveness of group training of choice theory on life quality and hope in blind people. Methods:The statistical population of this research includes all the blind members of the Asaye Sefid Charity of Tehran in 2015. The research sample included 30 blind people from the Asaye Sefid Charity, selected via simple random sampling. The data in this study have been collected using the Life Quality questionnaire of the World Health Organization (the brief 26-question form) and the Snyder Hope questionnaire. Data analysis was performed by covariance analysis. Results:The results indicate that the training of choice theory concepts affected the quality of life (F=22.5, P<0.001) and on hope (F=35.17, P<0.001). Therefore, it seems that the training of choice theory concepts could improve the quality of life and hope for blind people. Discussion:The choice theory concepts have positive effects on people with visual impairments. In addition, the findings of this research suggest that mental health professionals can use this psychological intervention for improving the life satisfaction and hope in those blind people.

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Emotional well-being and adjustment to vision loss in later life: a meta-synthesis of qualitative studies

Cited by 119 publications

References 118 publications

Impact of refractive error on quality of life: a qualitative study

Impact of refractive error on quality of life: a qualitative study

Experience of Anti-VEGF Treatment and Clinical Levels of Depression and Anxiety in Patients With Wet Age-Related Macular Degeneration

The Effectiveness of Group Training of Choice Theory on Quality of Life and Hope in Blind People

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