Empirically based recommendations to support parents facing the dilemma of paediatric cadaver organ donation

Bellali, Thalia; Papazoglou, Irene; Papadatou, Danai

doi:10.1016/j.iccn.2007.01.002

Cited by 21 publications

(18 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…These results contrast with the large body of literature that attempts to explain low organ donation for transplant rates, pointing to the discomfort or distress experienced by medical professionals in approaching families for organ donation as one factor for the low rate, due to fears of adding to the burden of grieving families (Bellali et al 2007; Sque et al 2000; Wakeford and Stepney 1989). Wakeford and Stepney (1989) found that the main factor restricting organ harvest in intensive care units was staff dislike of adding to relatives’ distress, followed by inadequate training in approaching relatives and negative media publicity.…”

Section: Introductioncontrasting

confidence: 89%

“…In relation to organ donation for transplant, research has shown that two of the key issues hampering organ procurement are: (1) fear by medical staff of increasing relatives’ distress, and (2) a lack of training in the communication skills needed to approach families to request donation (Wakeford and Stepney 1989; Bellali et al 2007). To address these (and other) issues, a number of researchers have suggested ways to facilitate the process of requesting organ donation by medical staff.…”

Section: Discussionmentioning

confidence: 99%

“…Developing specialist training programs for health professionals working in critical care (Bellali et al 2007). …”

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Families’ reflections on the process of brain donation following coronial autopsy

2010

View full text Add to dashboard Cite

This study aims to explore families' reflections on their decision to donate brain tissue to the NSW Tissue Resource Centre (NSW TRC), Australia. Specifically, the study aims to investigate respondents' initial reactions to the request for donation, primary reasons for their decision, and subsequent satisfaction levels. Participants were next-of-kin (NOK) contacted between May 2002 and May 2008, on the day of their relative's autopsy, who agreed to donate brain tissue to the NSW TRC for medical research. All 111 NOK were invited to participate, and those who agreed completed an anonymous questionnaire. Fifty completed questionnaires were received. Results showed that 74% of respondents were not upset by the donation call and 98% were satisfied with their decision to donate. Of the 22% who reported having been upset, many indicated that their distress was partly related to their circumstances. When asked the main reason for their donation, 66% had wanted to help others, or help research, while 24% stated their primary reason as a belief that they were respecting the wishes of their deceased relative. These findings show that NOK are not further distressed by being asked to donate brain tissue, give altruistic reasons for consent and are satisfied with the decision they made. In both this study and previous literature, the importance of discussion about organ donation amongst relatives is a recurring theme. Knowledge about a relative's wishes is likely to help facilitate decision-making, overcoming at least one crucial barrier to lifting rates of organ donation for transplantation and research.

show abstract

Section: Introductioncontrasting

confidence: 89%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Families’ reflections on the process of brain donation following coronial autopsy

2010

View full text Add to dashboard Cite

show abstract

“…As noted earlier, previous research has addressed the emotional turmoil experienced by families during the donation decision process. However, only 1 empirical study 38 was found-and it was limited to parents of brain-dead children-that recommends particular staff behaviors that may address parents' emotional needs. Such behaviors included giving parents the opportunity to be at their child's bedside and to say goodbye.…”

Section: Logistic Regression Analysesmentioning

confidence: 99%

Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin

Jacoby

Jaccard²

2010

American Journal of Critical Care

View full text Add to dashboard Cite

Background Families' experiences in the hospital influence their decisions about donating organs of brain-dead relatives. Meeting families' support needs during this traumatic time is an obligation and a challenge for critical care staff. Objectives (1) To elicit family members' accounts of various types of support received and perceived quality of care for themselves and their loved ones when they made the donation decision, and (2) to examine the relationship between these factors and the families' donation decision. Methods Retrospective telephone interviews of 199 families from different regions of the country were completed. Aside from demo graphic data, the survey addressed perceptions of informational, emotional, and instrumental support and quality of care. Results One hundred fifty-four study participants consented to donation; 45 declined. White next of kin were significantly more likely than African Americans to consent. Specific elements of reported support were significantly associated with consent to donate. Donor and nondonor families had differing perceptions of quality care for them selves and their loved ones. Receiving understandable information about organ donation was the strongest predictor of consent. Conclusions Specific supportive behaviors by staff as recounted by family members of potential donors were significantly associated with consent to donation. These behaviors lend themselves to creative training and educational programs for staff. Such interventions are essential not only for next of kin of brain-dead patients, but also for staff and ultimately for the public as a whole. (American Journal of Critical Care. 2010;19:e52-e62) Notice to CE enrollees:A closed-book, multiple-choice examination following this article tests your under standing of the following objectives:1. Identify at least 2 types of information that family members found to be helpful when considering organ donation for a brain-dead relative. 2. Describe bereavement care. 3. Discuss at least 3 reasons why relatives did not consent to donation for their loved ones.

show abstract

“…Nie bez znaczenia jest również dostateczna ilość czasu potrzebnego na przedyskutowanie ostatecznej decyzji. Jak bowiem podkreślają opiekunowie, największe ich obawy wynikają z braku informacji w zakresie następstw podjętych kroków [14,15]. Jak podaje piśmiennic-two, głównym spośród wielu powodów, dla których opiekunowie są przeciwni transplantacji, jest ich przekonanie o jeszcze większym cierpieniu dziecka wynikającym z samego pobrania narządów czy tkanek [16].…”

Section: Pacjenci I Metodyunclassified

Najmłodsi dawcy narządów – opis przypadków oraz analiza problemu w Polsce

Bursa¹,

Dorobisz²,

Barczyk³

et al. 2015

Pediatria Polska

View full text Add to dashboard Cite

Empirically based recommendations to support parents facing the dilemma of paediatric cadaver organ donation

Cited by 21 publications

References 31 publications

Families’ reflections on the process of brain donation following coronial autopsy

Families’ reflections on the process of brain donation following coronial autopsy

Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin

Najmłodsi dawcy narządów – opis przypadków oraz analiza problemu w Polsce

Contact Info

Product

Resources

About