Purpose
To overcome literacy-related barriers in the collection of electronic family health histories, we developed VICKY, an animated “virtual counselor”. This study examines the acceptability and accuracy of using VICKY to collect family histories, among underserved patients, compared to My Family Health Portrait (MFHP).
Methods
Participants were recruited from a patient registry at a safety net hospital and randomized to use either VICKY or MFHP. Accuracy was determined by comparing tool-collected histories to those obtained by a genetic counselor.
Results
A total of 70 participants completed this study. Participants rated VICKY easy to use (91%) and easy to follow (92%), would recommend VICKY to others (83%) and were highly satisfied (77%). VICKY identified 86% of first degree relatives, and 42% of second degree relatives; combined accuracy was 55%. Compared to MFHP, VICKY identified a greater number of health conditions overall (49% VICKY vs 31% MFHP, IRR: 1.59, 95% CI 1.13, 2.25, p=.008); in particular, hypertension (47% vs 15%; IRR = 3.18; 95% CI: 1.66, 6.10; p=.001) and type 2 diabetes (54% vs 22%; IRR = 2.47; 95% CI: 1.33, 4.60; p=.004).
Conclusion
These results demonstrate that technological support for documenting family history risks can be highly accepted, feasible, and effective.