Employment and advice regarding careers for adults with congenital heart disease

Crossland, David; Jackson, Sue; Lyall, R; Burn, John; O’Sullivan, John

doi:10.1017/s104795110500082x

Cited by 50 publications

(50 citation statements)

References 15 publications

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“…5,14 As survival rate has improved, good functional outcome including exercise capacity, education and occupation in the longterm become important in patients with CHD. 12,[19][20][21][22] However, in general, many patients with adult CHD may have an inadequate functional outcome. [19][20][21][22] Crossland et al showed that 33% of adult CHD patients were unemployed whatever the severity of CHD.…”

Section: Discussionmentioning

confidence: 99%

Long-term Outcomes after Truncus Arteriosus Repair: A Single-center Experience for More than 40 Years

Asagai

Inai

Shinohara

et al. 2016

Congenital Heart Disease

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A B S T R A C TObjectives. This study aimed to analyze long-term survival and functional outcomes after truncus arteriosus repair in a single institution with more than 40 years of follow-up. Methods. Medical records were analyzed retrospectively in 52 patients who underwent the Rastelli procedure for truncus arteriosus repair between 1974 and 2002. Thirty-five patients survived the initial repair. The median age at the initial operation was 2.8 months (range, 0.1-123 months) and the body weight was 3.9 kg (range, 1.6 to 15.0 kg). Results. The median age at follow-up was 23.6 years (range, 12.4 to 44.5 years). The median follow-up duration was 23.4 years (range, 12.3 to 40.7 years). The actuarial survival rate was 97% at 10 years and 93% at both 20 years and 40 years after the initial operation. At follow-up, most patients were in New York Heart Association (NYHA) functional classes I (73%) and II (24%). Thirty-six percent of patients had full-time jobs, 40% were students, and 21% were unemployed. Most patients (97%) had undergone conduit reoperations. Freedom from reoperation for right ventricular (RV) outflow and pulmonary artery (PA) stenosis was 59% at 5 years, 28% at 10 years, and 3% at 20 years after the initial operation. Freedom from catheter interventions for RV outflow and PA stenosis was 59% at 5 years, 47% at 10 years, and 38% at 20 years after the initial operation. Freedom from truncal valve replacement was 88% at 5 years, 85% at 10 years, and 70% at 20 years after the initial operation. Conclusions. In this single-center retrospective study, with long-term follow-up after repair of truncus arteriosus, long-term survival and functional outcomes were acceptable, despite the requirement for reoperation and multiple catheter interventions for RV outflow and PA stenosis in almost all patients, and the frequent requirement for late truncal valve operations.

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Section: Discussionmentioning

confidence: 99%

Long-term Outcomes after Truncus Arteriosus Repair: A Single-center Experience for More than 40 Years

Asagai

Inai

Shinohara

et al. 2016

Congenital Heart Disease

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show abstract

“…The receipt of structured career/employment advice has been shown to be associated with a higher rate of employment (73%) than no career/ employment counseling (46%). 158 Discrimination is prohibited in all aspects of the work process, including hiring, advancement, compensation, and job training. It is unlawful for the employer to question an applicant about a disability or require a medical examination unless the information is necessary for specific job-related performance.…”

Section: Career Counselingmentioning

confidence: 99%

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Sable¹,

Foster²,

Uzark³

et al. 2011

Circulation

392

280

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“…35 As many adults with CHD prepare to enter the job market and establish a career, 36 careful consideration of both physical and psychological capabilities should be discussed with their cardiologist so that realistic employment options are explored. Crossland et al 37 demonstrated that structured career and employment advice has been shown to be associated with a higher rate of employment (73%) than no such counseling (46%). Therefore, a review of the AHA published guidelines "Recreational and Occupational Recommendations for Young Patients With Heart Disease" 38 with patients with CHD and their parents should be performed to objectively assist with occupational counseling.…”

Section: Knowledge Of the Legislative Aspects Of Employment And Advocacymentioning

confidence: 99%

Task Force 6: Pediatric Cardiology Fellowship Training in Adult Congenital Heart Disease

Stout¹,

Valente²,

Bartz³

et al. 2015

Circulation

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Employment and advice regarding careers for adults with congenital heart disease

Abstract: (2005) Employment and advice regarding careers for adults with congenital heart disease. Cardiology in the Young, 15 (4).

Cited by 50 publications

References 15 publications

Long-term Outcomes after Truncus Arteriosus Repair: A Single-center Experience for More than 40 Years

Long-term Outcomes after Truncus Arteriosus Repair: A Single-center Experience for More than 40 Years

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Task Force 6: Pediatric Cardiology Fellowship Training in Adult Congenital Heart Disease

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