Empowering family carers of people with multimorbidity as partners in chronic health care: Insights from health professionals

Giunta, Sarah; Butow, Phyllis; Juraskova, Ilona; Sharpe, Louise; Ferguson, Eliza M; Laidsaar-Powell, Rebekah

doi:10.1016/j.pec.2022.08.019

Cited by 5 publications

(2 citation statements)

References 33 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The tendency to overlook caregiver burden in clinical practice is a worldwide issue, not limited to any single cultural or healthcare setting (Adelman et al, 2014;Giunta et al, 2022). This universal challenge highlights the critical need for research focused on family caregiver-reported outcomes, aiming to provide a comprehensive understanding of caregiving's impact on quality of life, which is vital for developing effective early intervention strategies.…”

Section: Introductionmentioning

confidence: 99%

“…However, the increasing burden and psychological distress faced by family caregivers as a patient's condition worsens is a global concern, mirrored in China's experience (Bahrami & Farzi, 2014; Türkben Polat & Kiyak, 2023). The tendency to overlook caregiver burden in clinical practice is a worldwide issue, not limited to any single cultural or healthcare setting (Adelman et al., 2014; Giunta et al., 2022). This universal challenge highlights the critical need for research focused on family caregiver‐reported outcomes, aiming to provide a comprehensive understanding of caregiving's impact on quality of life, which is vital for developing effective early intervention strategies.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study

Gao,

Li,

Guo

et al. 2024

Nursing Open

View full text Add to dashboard Cite

AimThe purpose of this study was to understand the caregiving experiences of breast cancer family caregivers and explore the profound impacts of those experiences on their quality of life.DesignA qualitative research method was used.MethodsWe extended invitations to 23 family caregivers of outpatients and inpatients receiving breast surgery and oncology treatments in Taiyuan, China, to participate in semi‐structured interviews. The interviews were audio‐recorded and transcribed verbatim. Thematic analysis was employed to analyse the interview data.ResultsFour themes and associated categories were identified: (1) changes in family dynamics, (2) the socio‐medical context, (3) interactions between family and society, (4) self‐efficacy and nine subthemes and their related categories, where virtually all participants expressed future uncertainty, emotional contagion, and personal challenges, and self‐efficacy had a moderating influence on the first three themes.Patient or Public ContributionThis study did not involve direct participation of patients or the public. However, their experiences and perspectives on caregiving were indirectly reflected through the insights provided by the family caregivers who participated in the interviews. Their valuable input contributed to a deeper understanding of the caregiving experience and its impact on the quality of life for Chinese breast cancer family caregivers.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study

Gao,

Li,

Guo

et al. 2024

Nursing Open

View full text Add to dashboard Cite

show abstract

Psychosocial effects of the corona pandemic on people with cancer: a qualitative study

Hoppe¹,

Büntzel²,

Paradies³

et al. 2023

J Cancer Res Clin Oncol

View full text Add to dashboard Cite

Introduction The Corona pandemic caused far-reaching changes since 2020. We wanted to find out which factors determined the psycho-social well-being of cancer patients during the pandemic. Methods From May to July 2021, structured interviews were conducted concerning lockdown, social limitations, the virus itself, the treatment situation, and opportunities. Results Twenty people took part in the study (doctors, psychologists, nurses, social workers, patients). One of the most important aspects was the ban on visits. Others were the fear of infection and the possibility of vaccination. Wearing a mask seem to have been worse for the experts. Conflicts in families about the “right” behavior to protect yourself from infection have been a stressful issue for patients, just as the lack of balance and recreation in free time. Conclusion Patients in the third wave of corona have become accustomed to the rules. Especially loneliness and the organization of time at home are psycho-social stress factors.

show abstract

Interventions and management on multimorbidity: An overview of systematic reviews

Zhou

Dai

et al. 2023

Ageing Research Reviews

View full text Add to dashboard Cite

Empowering family carers of people with multimorbidity as partners in chronic health care: Insights from health professionals

Cited by 5 publications

References 33 publications

Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study

Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study

Psychosocial effects of the corona pandemic on people with cancer: a qualitative study

Interventions and management on multimorbidity: An overview of systematic reviews

Contact Info

Product

Resources

About