Empowerment Practice in Families Whose Child Has a Developmental Disability in the Serbian Context

Golubović, Špela; Milutinović, Dragana; Ilić, Snežana; Đorđević, Mirjana

doi:10.1016/j.pedn.2020.09.010

Cited by 5 publications

(2 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Health teams must provide adequate care support, through practices based on scientific evidence (22,26,27), because families of premature infants with special health needs need to make available an important amount of their time for the care of the child, and they require support to readjust their daily life (19,28). Actions are needed for the insertion of parental caregivers into guidance and intervention programs to encourage the neurodevelopment capabilities of premature children, in the short-and long-term (12,18,22,29,30).…”

Section: Discussionmentioning

confidence: 99%

Premature Newborns with the Potential to Develop Special Health Needs: An Approach by Triangulation of Methods

Silva,

Casacio,

Zilly

et al. 2024

Aquichan

View full text Add to dashboard Cite

Introduction: Maternal recognition of special health needs of premature babies is essential, given the importance of early stimuli after discharge to strengthen child development. Objective: To identify premature newborns with potential factors for the development of special health needs and describe maternal recognition of these factors. Materials and methods: Qualitative and quantitative study, performed using a triangulation method, with concomitant incorporation of data, included to analysis Chi-square test (p<0.05) for quantitative data and interpretation of meanings for qualitative. Variables: Birth weight, gestational age, Apgar score, complications, and length of hospital stay from 951 records of hospitalized premature infants; 18 mothers were interviewed during hospitalization, 15 days after discharge at home, 30 days after this at-home visit and at the age of 6 months of the child, by telephone, in Southern Brazil. Results: Identified as potential factors: Extreme prematurity and/or very premature, low birth weight, complications, and prolonged hospitalization. With the incorporation of the data, the relevance of these factors for children at risk of changes in development and behavior was verified. Mothers described their children as having healthy development but recognized prematurity is a factor that predisposes to new hospitalizations, and perinatal factors and those related to hospitalization contribute to the development of special health needs. Conclusion: The importance of early identification of factors that enhance the development of special health needs is understood to initiate the necessary stimuli to strengthen child development.

show abstract

Section: Discussionmentioning

confidence: 99%

Premature Newborns with the Potential to Develop Special Health Needs: An Approach by Triangulation of Methods

Silva,

Casacio,

Zilly

et al. 2024

Aquichan

View full text Add to dashboard Cite

show abstract

“…The conceptual framework of the FES was based on measuring the level of empowerment and the way empowerment expressed in a brief, self-administered questionnaire (Koren et al, 1992). The reliability and validity of the FES have been supported in children with developmental disabilities (Golubovi c et al, 2021), emotional disabilities (Koren et al, 1992), attention deficit hyperactivity disorder (Singh et al, 1995) and chronic health conditions (Segers et al, 2019). The FES was completed by one parent or caregiver and includes the calculation of a total score (34 total items), a 12 item subscale of empowerment in the family (example item: I feel confident in my ability to help my child grow and develop), a 12 item subscale of empowerment in service systems (example item: I feel that I have a right to approve all services my child receives) and a 10 item subscale of empowerment in community/political environments (example item: I feel I can have a part in improving services for children in my community).…”

Section: Methodsmentioning

confidence: 99%

The relationship between family empowerment and fine motor, gross motor and cognitive skills in young children with cerebral palsy

Pierce

Skorup

Paremski

et al. 2022

Child

View full text Add to dashboard Cite

Background Family empowerment in families of young children with cerebral palsy (CP) is an important consideration because the first few years of life can be overwhelming for parents. The purpose of this research was to investigate the relationship between family empowerment, fine motor (FM), gross motor (GM) and cognitive development in children with CP who were under 3 years of age. Methods Forty‐one children with a mean age of 23.8 months participated in this study. The Family Empowerment Scale (FES) was completed by the participants' parents, whereas the FM, GM and cognitive subscales of the Bayley Scales of Infant and Toddler Development Third edition (B‐III) were administered by physical therapists. Results Statistically significant positive correlations were found between the FES total and B‐III raw scores for FM, GM and cognitive subscales with coefficients ranging from 0.35 to 0.41. Significant relationships were also found between the FES Community subscale and the B‐III FM, GM and cognitive subscales. Conclusions This study provides evidence of a relationship between family empowerment and FM, GM and cognitive abilities in young children with CP, with a greater severity of impairments related to lower levels of caregiver empowerment.

show abstract

Problems Experienced by Families of Children with Disabilities and Nursing Approaches

Sarman,

Tuncay

2024

The Palgrave Encyclopedia of Disability

View full text Add to dashboard Cite

Empowerment Practice in Families Whose Child Has a Developmental Disability in the Serbian Context

Cited by 5 publications

References 29 publications

Premature Newborns with the Potential to Develop Special Health Needs: An Approach by Triangulation of Methods

Premature Newborns with the Potential to Develop Special Health Needs: An Approach by Triangulation of Methods

The relationship between family empowerment and fine motor, gross motor and cognitive skills in young children with cerebral palsy

Problems Experienced by Families of Children with Disabilities and Nursing Approaches

Contact Info

Product

Resources

About