Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice

Aoun, Samar; Toye, Christine; Deas, Kathleen; Howting, Denise; Ewing, Gail; Grande, Gunn; Stajduhar, Kelli

doi:10.1177/0269216315583436

Cited by 38 publications

(38 citation statements)

References 40 publications

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“…Funnenes troverdighet i denne studien er styrket ved at de er underbygget med sitater og at de sammenfaller med andre studier (Aoun et al 2015;Candy et al 2015;Claxton-Oldfield 2015;Claxton-Oldfield et al 2010;Luijkx og Schols 2009;Solbjør et al 2014). En studies troverdighet inkluderer også funnenes overførbarhet.…”

Section: Metodiske Overveielserunclassified

“…Studier viste også at det å motta støtte og avlastning, påvirket pårørendes psykiske helse positivt på lang sikt (Ferrario, Cardillo, Vicario, Balzarino og Zotti 2004;Grande, Farquhar, Barclay og Todd 2004). Det ble derfor viktig å forbygge pårørendes helse, ved å iverksette tiltak som kunne avlaste de pårørende i forhold til den belastningen det innebar å ha hjemmeboende alvorlige syke pasienter (Aoun, Toye, Deas, Howting, Ewing, Grande og Stajduhar 2015).…”

Section: Referee* Introduksjonunclassified

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Pårørendes erfaringer med bruk av frivillige ved alvorlig sykdom i hjemmet

et al. 2017

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Section: Metodiske Overveielserunclassified

Section: Referee* Introduksjonunclassified

Pårørendes erfaringer med bruk av frivillige ved alvorlig sykdom i hjemmet

et al. 2017

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“…The palliative care clinician works in partnership with caregivers and seeks to ensure that their needs are also being met . By giving caregivers permission to ask for help when they need it, including respite care, the palliative care clinician facilitates optimal patient care . Honest, clear, open communications with anticipatory guidance about what to expect as the patient's condition progresses is extremely important.…”

Section: Role Of the Palliative Care Clinicianmentioning

confidence: 99%

“…They view their patients as whole people, not simply as a diagnosis, condition, or disease. Midwives and palliative care clinicians strive to provide patient‐centered care in which the locus of control remains firmly with the patient and work in partnership with the patient's family to provide support . They recognize the need to balance technological interventions with a humanistic approach, using technology to enhance rather than drive patient care .…”

Section: Characteristics Of Midwives and Palliative Care Cliniciansmentioning

confidence: 99%

Midwifing the End of Life: Expanding the Scope of Modern Midwifery Practice to Reclaim Palliative Care

Hoover¹,

Holt²

2016

J Midwife Womens Health

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Historically, midwives held an important role in society as cradle-to-grave practitioners who eased individuals, families, and communities through difficult transitions across the life span. In the United States, during the first half of the 20th century, physicians assumed care for people during birth and death, moving these elements of the human experience from homes into the hospital setting. These changes in practice resulted in a dehumanization of birth and death experiences and led to detachment from what it means to be human among members of society. There is a current movement across the United States to incorporate palliative care and hospice care into both the home setting and the inpatient setting. Through their education and training, certified nurse-midwives/certified midwives (CNMs/CMs) are well equipped to serve as hospice and palliative care clinicians. Current midwives, skilled in assisting women and families through the transition of pregnancy to motherhood, can use their education and skills to help individuals and their families through the transition from life to death. The similarities between these states of the human experience (pregnancy to birth and terminal illness to death) allow for a fluidity between these experiences from the midwife perspective. The many parallels between these 2 elements of the human condition include stress, anxiety, and pain. Training in holistic approaches to symptom management and supporting individuals through difficult experiences (eg, birth) gives midwives a unique perspective that is readily translatable to assist individuals and families through the passage between life and death.

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“…The CSNAT's effectiveness and utility have been tested with FCs of patients with cancer at end of life (Aoun, Deas, et al., ; Aoun, Grande, et al., ; Aoun, Toye, et al., ) showing a decrease in carer strain. Results of a trial with FCs of older people discharged home from hospital showed that FCs in the intervention group were significantly more prepared to provide care and reported reduced carer strain and distress compared to FCs in the control group (Toye et al., ).…”

Section: Introductionmentioning

confidence: 99%

A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia

Aoun

Toye

Slatyer

et al. 2018

Health Soc Care Community

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This feasibility study aimed to identify and address the support needs of family carers (FCs) of people living with dementia and to assess whether the use of the Carer Support Needs Assessment Tool (CSNAT) intervention in home-based care was acceptable and relevant to FCs. The CSNAT intervention comprised two FC support needs assessment visits, 7 weeks apart, plus associated actions addressing prioritised needs by the Client Care Advisors of a community care service in Western Australia in 2015. Telephone interviews were conducted with FCs on their experience using the CSNAT at the end of the intervention. Twenty-one FCs were involved in the intervention and 15 of them completed the feedback interviews. Care recipients had moderate to severe dementia. The top five support needs reported by FCs were: having time to yourself in the day; knowing what to expect in the future; practical help in the home; looking after your own health and dealing with your feelings and worries. Three themes summarised their experience: a straightforward structured approach; awareness, acknowledgement and acceptance of their situation; and provision of support. FCs appreciated the opportunity to be heard and acknowledged, to have their practical and psychosocial support needs facilitated, to identify what is important to them and to receive a response in a timely manner. The CSNAT approach offered a structured carer-led, person-centred, supportive intervention that facilitated discussion between the family carer and the service provider about support needs and strategies to address them.

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Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice

Cited by 38 publications

References 40 publications

Pårørendes erfaringer med bruk av frivillige ved alvorlig sykdom i hjemmet

Pårørendes erfaringer med bruk av frivillige ved alvorlig sykdom i hjemmet

Midwifing the End of Life: Expanding the Scope of Modern Midwifery Practice to Reclaim Palliative Care

A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia

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