Enabling Conversations: African American Patients’ Changing Perceptions of Kidney Transplantation

Lewis, Lauren; Dolph, Beth; Said, M.; Feeley, Thomas Hugh; Kayler, Liise K.

doi:10.1007/s40615-018-00552-x

Cited by 8 publications

(24 citation statements)

References 44 publications

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“…Previous research has found 5 common barriers to delivering LDKT education to dialysis patients and to increasing patient curiosity and learning about it. These barriers are (1) limited provider knowledge and comfort educating about transplant and LDKT [6,7], (2) limited time to educate about transplant and LDKT [6][7][8]16], (3) insufficient educational resources for patients with low health literacy [9][10][11], diverse patients [14,17,18], and those less ready to pursue transplant [19], (4) high rates of patient fears and misconceptions about transplant and LDKT [12,14,18], and (5) difficulty reaching family, friends, or potential living donors to learn about transplant and LDKT [7,20].…”

Section: Educational Barriers To Transplant In Dialysis Centersmentioning

confidence: 99%

“…Previous research has demonstrated the prevalence of low health literacy among patients with CKD and ESRD, which is associated with lower likelihood to pursue transplant, especially LDKT [9][10][11], and the need for culturally tailored materials for use with African American and Latinx populations [14,17,18]. While interventions us-Blood Purif 2021;50:655-661 DOI: 10.1159/000512651 ing health literate, culturally sensitive educational resources in print, Web, or video formats have been shown to be effective with minority groups [21,22] and patients who are earlier in their readiness to pursue transplant and LDKT [19,23], this type of tailored information written for low health literacy audiences is not always available.…”

Section: Insufficient Educational Resources For Some Patient Populationsmentioning

confidence: 99%

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Storytelling to Inspire Dialysis Patients to Learn about Living Donor Kidney Transplant

Wood¹,

Waterman

Pines

2021

Blood Purif

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Background: Policy changes including the Advancing American Kidney Health initiative and CMS’s ESRD Quality Incentive Program recommend increasing educational initiatives within dialysis centers to increase living kidney donor transplant (LDKT) rates. LDKT education can be challenging in dialysis centers due to limited provider time to educate, patient fears or reluctance to learn about LDKT, and difficulty educating potential living donors. New educational innovations that increase dialysis patient curiosity about pursuing LDKT are needed. Summary: Digital first-person storytelling, or the sharing of narratives by individuals in their own words, is a culturally competent, health literate, patient-driven approach to expanding patient understanding about LDKT that can supplement traditional educational strategies without additional burden for dialysis providers. The Living Donation Storytelling Project is an online digital library of over 150 video stories told by diverse kidney recipients, donors, those in search of a donor, and their family/friends. By honestly discussing how they overcame fears and challenges related to LDKT, these stories address sensitive topics that can be hard for providers to introduce by using easily accessible learning methodology that may better connect with racial/ethnic minorities, scared patients, and patients facing health literacy challenges. Key Messages: Supplementing traditional educational approaches with digital storytelling may help overcome time limitations in educating for busy providers, boost providers’ own knowledge about LDKT, serve as a free supplemental resource for patients, reduce fears and increase self-efficacy about transplant, help more patients to share about transplant with their social networks, and ultimately increase LDKT rates.

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Section: Educational Barriers To Transplant In Dialysis Centersmentioning

confidence: 99%

Section: Insufficient Educational Resources For Some Patient Populationsmentioning

confidence: 99%

Storytelling to Inspire Dialysis Patients to Learn about Living Donor Kidney Transplant

Wood¹,

Waterman

Pines

2021

Blood Purif

View full text Add to dashboard Cite

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“…Family views of patients’ declining health and limitations motivated patients to receive a kidney transplant to fulfill family responsibility and social roles. 22,23,26 Family support and preferences encouraged patients to focus on the health and quality of life benefits that transplantation can offer, which helped them to overcome fear and reluctance to change treatment modalities. 8,11,26…”

Section: Information-motivation-behavioral Constructs For Activating Patient Access To Kidney Transplantationmentioning

confidence: 99%

“…16 In contrast, seeing and talking to successful transplant recipients during visits to dialysis centers provided encouragement to seek referral. 19,26 Peers were sources of support, helping patients cope with the reality of their disease progression and make decisions about transplant pursuit. 6…”

Section: Information-motivation-behavioral Constructs For Activating Patient Access To Kidney Transplantationmentioning

confidence: 99%

“…8 They also worried about the impact of these conversations on interpersonal relationships. 26 Others struggled to express their need for emotional and instrumental support if they were older, did not have a partner, or did not have close ties to family or friends living nearby. 23,26 To identify a living donor, many were unwilling to initiate conversations about donation with their social network, feeling very uncomfortable bringing up this topic.…”

Section: Information-motivation-behavioral Constructs For Activating Patient Access To Kidney Transplantationmentioning

confidence: 99%

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A Narrative Review of Qualitative Studies Describing Access to Kidney Transplantation

et al. 2021

Self Cite

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Background: This review used the Information-Motivation-Behavioral Skills (IMB) model of health behavior change to conceptualize the determinants of kidney transplant access behavior for adult patients with end-stage renal disease (ESRD). Methods: A narrative review of qualitative studies of patient access to kidney transplantation was undertaken. Only articles in English were accessed. The existing literature was critically analyzed using theoretical constructs of the IMB model and thematic synthesis was performed. Results: Results suggest patients having more information (greater transplant knowledge), more personal motivation (higher transplant outcomes expectations), more social motivation (more social and provider support), and more selfefficacy (confidence in navigating the transplant continuum) may be more likely to perform transplant access behaviors. Conclusion: Our findings provide a framework for considering patients’ levels of knowledge, motivation, and self-efficacy in future educational and behavioral interventions for ESRD patients.

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Parental Expression of Emotions and Surgeon Responses During Consultations for Obstructive Sleep-Disordered Breathing in Children

Leu

Links

Park

et al. 2022

JAMA Otolaryngol Head Neck Surg

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IMPORTANCELittle is known about emotional communication between parents and surgeons. Understanding the patterns and correlates of emotional communication may foster collaboration during surgical consultations.OBJECTIVE To describe the emotional expressions by parents when bringing their child for evaluation of obstructive sleep-disordered breathing (SDB) as well as surgeon responses to these emotional expressions and to evaluate the association between parental demographic characteristics and surgeon response types. DESIGN, SETTING, AND PARTICIPANTSThis cross-sectional study analyzed the audio-recorded consultations between otolaryngologists and parents of children who underwent their initial otolaryngological examination for obstructive SDB at 1 of 3 outpatient clinical sites in

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Enabling Conversations: African American Patients’ Changing Perceptions of Kidney Transplantation

Cited by 8 publications

References 44 publications

Storytelling to Inspire Dialysis Patients to Learn about Living Donor Kidney Transplant

Storytelling to Inspire Dialysis Patients to Learn about Living Donor Kidney Transplant

A Narrative Review of Qualitative Studies Describing Access to Kidney Transplantation

Parental Expression of Emotions and Surgeon Responses During Consultations for Obstructive Sleep-Disordered Breathing in Children

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