End-of-life Care and Good Death of Dying Non-cancer Patients from the Perspective of Bereaved Family Members

Unesoko, Akiko; Sato, Kazuki; Onishi, Yuka; Morita, Tatsuya; Iseki, Masahiro; Goto, Yuna; Kinoshita, Hiroya

doi:10.2512/jspm.14.177

Cited by 2 publications

(1 citation statement)

References 16 publications

(3 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The manual was initially developed as a questionnaire to assess QOD for patients with cancer but has been recently adapted for patients without cancer. 25 , 26 …”

Section: Methodsmentioning

confidence: 99%

Relationship between implementation of systematic advance care planning and the quality of death among nursing home residents: a survey

Toyoda,

Tokumasu,

Minato

et al. 2024

Palliat�Care

View full text Add to dashboard Cite

Background: Advance care planning (ACP) is beneficial for the quality of death (QOD). However, the effects of ACP on the QOD may vary across cultures. Objectives: This study aimed to explore the relationship between the 15-step ACP program and the QOD among Japanese nursing home residents. Design: A cross-sectional survey. Methods: A cross-sectional survey was conducted among the family members of 39 nursing home residents who died between April 2017 and March 2019 by distributing the survey questionnaire by post. The survey included questions about the QOD of residents, and responses were evaluated using the Good Death Inventory (GDI) scale. Results: Responses were obtained from 30 of the 39 bereaved families (76.9%). Data were analyzed using hierarchical clustering to determine five groups and conduct multiple comparisons. The following three domains of interest were identified: ‘Dying in a favorite place’, ‘Good relationship with the medical staff’, and ‘Independence’. GDI scores were significantly higher for residents with higher ACP completion rates than for those with lower rates ( p < 0.01). Residents who had taken ACP interviews had significantly higher GDI scores ( p < 0.01) than those who had not taken interviews. Conclusion: Overall, these findings suggest that systematic ACP might be related to the QOD among Japanese nursing home residents in the above mentioned three domains. Limitations of the present study were small sample size, cross-sectional survey design as opposed to a cohort survey design, and multiple biases, including the emotional instability of bereaved family members, the length of stay of the residents, the degree of dementia of the residents, and their tendency to talk about the place of death and to develop good relationships with the medical staff.

show abstract

“…The manual was initially developed as a questionnaire to assess QOD for patients with cancer but has been recently adapted for patients without cancer. 25 , 26 …”

Section: Methodsmentioning

confidence: 99%

Relationship between implementation of systematic advance care planning and the quality of death among nursing home residents: a survey

Toyoda,

Tokumasu,

Minato

et al. 2024

Palliat�Care

View full text Add to dashboard Cite

show abstract

Bereaved family members’ perspectives on quality of death in deceased acute cardiovascular disease patients compared with cancer patients – a comparison of the J-HOPE3 study and the quality of palliative care in heart disease (Q-PACH) study

Suzuki,

Miyashita,

Kohno

et al. 2024

BMC Palliat Care

View full text Add to dashboard Cite

Background Outcome measures during acute cardiovascular disease (CVD) phases, such as quality of death, have not been thoroughly evaluated. This is the first study that compared the family members’ perceptions of quality of death in deceased CVD patients and in deceased cancer patients using a bereaved family survey. Methods Retrospectively sent questionnaire to consecutive family members of deceased patients with CVD from ten tertiary hospitals from October 2017 to August 2018. We used the short version of the Good Death Inventory (GDI) and assessed overall care satisfaction. Referencing the GDI, the quality of death was compared between CVD patients admitted to a non-palliative care unit (non-PCU) and cancer patients in palliative care units (PCU) and non-PCUs in the Japan Hospice and Palliative Care Evaluation Study (J-HOPE Study). Additionally, in the adjusted analysis, multivariable linear regression was performed for total GDI score adjusted by the patient and participant characteristics to estimate the difference between CVD and other patients. Results Of the 243 bereaved family responses in agreement (response rate: 58.7%) for CVD patients, deceased patients comprised 133 (54.7%) men who were 80.2 ± 12.2 years old on admission. The GDI score among CVD patients (75.0 ± 15.7) was lower (worse) than that of cancer patients in the PCUs (80.2 ± 14.3), but higher than in non-PCUs (74.4 ± 15.2). After adjustment, the total GDI score for CVD patients was 7.10 points lower [95% CI: 5.22–8.97] than for cancer patients in PCUs and showed no significant differences compared with those in non-PCUs (estimates, 1.62; 95% CI [-0.46 to 5.22]). Conclusions The quality of death perceived by bereaved family members among deceased acute CVD patients did not differ significantly from that of deceased cancer patients in general wards, however, was significantly lower than that of deceased cancer patients admitted in PCUs.

show abstract

End-of-life Care and Good Death of Dying Non-cancer Patients from the Perspective of Bereaved Family Members

Cited by 2 publications

References 16 publications

Relationship between implementation of systematic advance care planning and the quality of death among nursing home residents: a survey

Relationship between implementation of systematic advance care planning and the quality of death among nursing home residents: a survey

Bereaved family members’ perspectives on quality of death in deceased acute cardiovascular disease patients compared with cancer patients – a comparison of the J-HOPE3 study and the quality of palliative care in heart disease (Q-PACH) study

Contact Info

Product

Resources

About