End-of-life conversations and care: an asset-based model for community engagement

Matthiesen, M; Froggatt, Katherine; Owen, Elaine; Ashton, John

doi:10.1136/bmjspcare-2013-000516

Cited by 20 publications

(45 citation statements)

References 7 publications

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“…Initiatives such as ‘Dying well matters’ or the current vogue for ‘Big Conversations’ in these areas may subliminally open the door, so that healthcare professionals can then discuss these important topics with patients and their families/carers 20 22 23…”

Section: Discussionmentioning

confidence: 99%

The importance of identifying preferred place of death

Ali

Capel²,

Jones

et al. 2015

BMJ Support Palliat Care

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ObjectivesThe majority of people would prefer to die at home and the stated intentions of both statutory and voluntary healthcare providers aim to support this. This service evaluation compared the preferred and actual place of death of patients known to a specialist community palliative care service.DesignAll deaths of patients (n=2176) known to the specialist palliative care service over a 5-year period were examined through service evaluation to compare the actual place of death with the preferred place of death previously identified by the patient. Triggers for admission were established when the patients did not achieve this preference.ResultsBetween 2009 and 2013, 73% of patients who expressed a choice about their preferred place of death and 69.3% who wanted to die at home were able to achieve their preferences. During the course of their illness, 9.5% of patients changed their preference for place of death. 30% of patients either refused to discuss or no preference was elicited for place of death.ConclusionsDirect enquiry and identification of preferences for end-of-life care is associated with patients achieving their preference for place of death. Patients whose preferred place of death was unknown were more likely to be admitted to hospital for end-of-life care.

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Section: Discussionmentioning

confidence: 99%

The importance of identifying preferred place of death

Ali

Capel²,

Jones

et al. 2015

BMJ Support Palliat Care

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“…Most videos focused on the traditional approach to ACP by directing people to complete an advance directive or any other legal medical document. Given that national and international community campaigns exist to promote ACP,3–5 19 it is possible that ACP videos would garner more attention in terms of viewership if they were to be closer aligned to such campaigns. Only a relatively small number of videos contained either style elements (upbeat music, dynamic voices, personal stories delivered by real people as opposed to actors) or content elements (framed around living and quality of life specifically) as endorsed by our stakeholders (ie, ACP Conversations; Why Families Should Make an Advance Care Plan ).…”

Section: Discussionmentioning

confidence: 99%

“…Another avenue of support includes facilitated conversations with a trained healthcare professional 17 18. While most initiatives have originated from within the healthcare arena, ACP extends beyond this boundary and recent work advocates for community-based initiatives to help advance ACP 7 19…”

Section: Introductionmentioning

confidence: 99%

Why don't end-of-life conversations go viral? A review of videos on YouTube

Mitchell

Schuster

Lynch

et al. 2015

BMJ Support Palliat Care

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None of the ACP videos on YouTube went viral and a relatively small number of them contained elements endorsed by stakeholders. In emphasising the completion of legal medical documents, videos may have failed to support more meaningful ACP. Further research is needed to understand the features of videos that will engage patients and the wider community with ACP and palliative and end-of-life care conversations.

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“…These communities can then develop their own solutions to palliative care issues, working in partnership with professional agencies. [51][52][53][54] They put forward a socially oriented alternative to medical models of palliative care. They refer to ''persons'' with an illness rather than ''palliative care patients'' and see the person at the center of concentric ''circles of care''.…”

Section: Palliative Care Campaigns S-31mentioning

confidence: 99%

“…These fit in with the empowerment model described above and usually involve different groups coming together for a common purpose. 33,52 On a larger scale, the Respecting Choices program is one example of a complex intervention for advance care planning across a healthcare system where involvement and awareness raising in the local community have been shown to be essential to success. 72 What are the key features of successful campaigns?…”

Section: Palliative Care Campaigns S-31mentioning

confidence: 99%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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Objective: The right to health includes a right of access to good quality palliative care, but inequalities persist. Raising awareness is a key plank of the public health approach to palliative care, but involves consideration of subjects most of us prefer not to address. This review addresses the question: ''do public health awareness campaigns effectively improve the awareness and quality of palliative care''? Background: The evidence shows that public awareness campaigns can improve awareness of palliative care and probably improve quality of care, but there is a lack of evidence about the latter. Methods: Rapid review and synthesis. Results: A comprehensive public awareness campaign about palliative care (including advance care planning and end-of-life decision making) should be based on clear and shared terminology, use well piloted materials, and the full range of mass media to suit different ages, cultures, and religious/spiritual perspectives. Arts and humanities have a role to play in allowing individuals and communities to express experiences of illness, death, and grief and encourage conversation and thoughtful reflection. There is evidence about key factors for success: targeting, networking, and use of specific, measurable, achievable, realistic time-bound objectives; continuous evaluation; and complementarity to national and international policy. Discussion: Campaigns should be located within the framework of public health promotion and the synergy between short national mass media campaigns and longer term local community action initiatives carefully considered. National and local projects to raise awareness should identify and address any barriers at the level of individuals, communities, and systems of care, for example, literacy skills and unequal access to resources.

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End-of-life conversations and care: an asset-based model for community engagement

Cited by 20 publications

References 7 publications

The importance of identifying preferred place of death

The importance of identifying preferred place of death

Why don't end-of-life conversations go viral? A review of videos on YouTube

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

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