End-of-Life Preparations among Lesbian, Gay, Bisexual, and Transgender People: Integrative Review of Prevalent Behaviors

Kcomt, Luisa; Gorey, Kevin M.

doi:10.1080/15524256.2017.1387214

Cited by 23 publications

(29 citation statements)

References 35 publications

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“…Other systematic reviews of the empirical research have revealed the discrimination and social exclusion experienced by transgender individuals generally (McCann & Brown, 2017;Moolchaaem et al, 2015), their interface with the health care system more specifically (Lerner & Robles, 2017), and their increased vulnerability at the end of life in particular (Kcomt & Gorey, 2017). Moreover, researchers have discovered that among the LGBT population, transgender participants were more likely to report the negative effects of disclosure to their provider and thus were more likely to delay seeking health care than their cisgender LGB counterparts (Macapagal, Bhatia, & Greene, 2016).…”

Section: Discussionmentioning

confidence: 99%

Profound health-care discrimination experienced by transgender people: rapid systematic review

Kcomt

2018

Social Work in Health Care

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141

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Transgender people experience interpersonal and structural barriers which prevent them from accessing culturally and medically competent health care. This rapid systematic review examined the prevalence of health care discrimination among transgender people in the U.S. and drew comparisons with sexual minority samples and the general U.S. population. Eight primary studies with 35 prevalence estimates were analyzed. The transgender population experience profound rates of discrimination within the U.S. health care system. Compared to sexual minorities, transgender participants appear to be more compromised in their access to health care. Service providers must change structural inequities which contribute to transgender people's invisibility.

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Section: Discussionmentioning

confidence: 99%

Profound health-care discrimination experienced by transgender people: rapid systematic review

Kcomt

2018

Social Work in Health Care

Self Cite

141

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“… 13 , 15 , 19 – 21 , 40 – 57 , 59 – 61 Roughly half of the studies were conducted in the United Sta-tes 21 , 41 , 43 , 45 , 47 – 49 , 54 , 56 , 57 , 59 , 62 – 64 , 10 in Canada. 15 , 40 , 46 , 51 – 53 , 55 , 60 , 65 , 66 No articles in Portuguese or French were included. Almost all articles (31 out of 33) included data obtained through interviews and/or focus groups.…”

Section: Resultsmentioning

confidence: 99%

A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians

Lintott

Beringer

et al. 2022

Palliat Med

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Background: Lesbian, gay, bisexual, transgender, and queer plus (LGBTQ+) adults face challenges accessing end-of-life care. Understanding the experiences of LGBTQ+ persons within the end-of-life context is crucial in addressing their needs and supporting equity at end of life. Aim: Review recent literature documenting the experiences of LGBTQ+ adults nearing end-of-life, identifying needs, barriers to care, and translating this into clinical recommendations. Design: A rapid review design was chosen for prompt results. The process was streamlined by limiting the literature search to peer-reviewed articles, dissertations, theses, by date and language. Data collection used a predetermined set of items based on Meyer’s Minority Stress and Bronfenbrenner’s Ecological Models including participants’ voices, needs, and barriers. Thematic analysis of collected data was conducted and presented results in a narrative summary. Data Sources: We searched six electronic databases (PubMed, Medline, ProQuest Dissertations and Theses A&I, ProQuest Dissertations and Theses, Open Access Theses and Dissertations, CINAHL, and Google Scholar) for articles published from 2016 to 2020. Results: We included and appraised for quality 33 articles. We uncovered three latent themes: systemic barriers, a lack of lived experience within the literature, and treatment of LGBTQ+ as one homogeneous group. Conclusions: The hybrid Meyer’s Minority Stress and Bronfenbrenner Ecological model elucidated how stressors and social contexts may impact LGBTQ+ adults when accessing end-of-life care. Incorporating LGBTQ+ cultural competence training into continuing education and ensuring that LGBTQ+ individuals participate in the development of end-of-life care programming may better attend to the needs of this population.

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“…In recent years there has been a growing number of studies paying attention to the role of older adults’ sexual orientation in advance care planning (e.g. Addis et al., 2009; Almack, 2018; Almack et al., 2010; Almack et al., 2015b; Cartwright et al., 2012; de Vries et al., 2009; Duffy and Healy, 2014; Gendron et al., 2013; Higgins et al., 2011; Hughes and Cartwright, 2014, 2015; Kcomt and Gorey, 2017; Stein and Bonuck, 2001). Available evidence highlights concerns that LGBT people’s partners, ex-partners and friends are sometimes not fully recognised as having a legitimate role in end-of-life decision-making by biological family members and healthcare providers (Higgins et al., 2011; MAP/SAGE, 2010).…”

Section: Introductionmentioning

confidence: 99%

The role of sexual orientation, age, living arrangements and self-rated health in planning for end-of-life care for lesbian, gay and bisexual (LGB) older people in the UK

2020

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This article reports on findings from the quantitative phase of a two-year research project designed to explore end-of-life care experiences and needs of lesbian, gay, bisexual and transgender people. We draw on a subset of the sample (N = 180/237) to analyse the relationship between advance care planning, sexual orientation, living arrangements and self-rated health. The results contribute to a growing body of evidence on how sexual minorities approach and make decisions on advance care planning. A greater understanding of such patterns could help inform the way healthcare professionals engage in conversations about end-of-life care planning with older LGB people.

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End-of-Life Preparations among Lesbian, Gay, Bisexual, and Transgender People: Integrative Review of Prevalent Behaviors

Cited by 23 publications

References 35 publications

Profound health-care discrimination experienced by transgender people: rapid systematic review

Profound health-care discrimination experienced by transgender people: rapid systematic review

A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians

The role of sexual orientation, age, living arrangements and self-rated health in planning for end-of-life care for lesbian, gay and bisexual (LGB) older people in the UK

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