End‐of‐life trajectory of coping and self‐care of patients with idiopathic pulmonary fibrosis: A meta‐synthesis using meta‐ethnography

Igai, Yasuko

doi:10.1111/jjns.12213

Cited by 4 publications

(10 citation statements)

References 29 publications

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“…8 Concerning nursing, it is also noted that, in the care processes, autonomy is, in a way, neglected, with care directed only to the person’s physical-functional independence in daily life activities, designating this type of interventions as promoters of autonomy. 9 In health-disease processes, the person is losing their autonomy. It is necessary to obtain positive feedback from the health professional and needed support relative to these oscillations, 10 since hospitalization, for several reasons, namely bureaucratic issues and organizational aspects, promotes changes in dependence at various levels of a person’s life.…”

Section: Introductionmentioning

confidence: 99%

From the challenge of assessing autonomy to the instruments used in practice: A scoping review

Lima

Martins

Ferreira

et al. 2022

Porto Biomedical Journal

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Antecedents: Autonomy is one of the essential components to live a quality life. Monitoring this autonomy is, in effect, essential, to allow the nurses to conceive, implement and evaluate interventions aimed at its promotion or even maintenance. For this reason, this scoping review aims to map the evidence to identify and analyze the instruments used to assess the person's autonomy, which emerges from scientific production.Methods: Scoping review based on the recommended principles by the Joanna Briggs Institute. The research was realized in the databases: Scopus (excluding MEDLINE), CINAHL complete (via EBSCO, Excluding MEDLINE), and MEDLINE (via PubMed). Two independent reviewers evaluated the articles' pertinence for the study's investigation, the extraction, and synthesis of articles.Results: After the analysis, according to the inclusion criteria established, 34 articles were selected, allude to 7 different instruments to assess autonomy. Conclusions:The need for further development at this level is highlighted, namely through the construction and validation of more comprehensive instruments, integrating the different components of the concept of autonomy.

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Section: Introductionmentioning

confidence: 99%

From the challenge of assessing autonomy to the instruments used in practice: A scoping review

Lima

Martins

Ferreira

et al. 2022

Porto Biomedical Journal

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“…In addition to the commencement of oxygen therapy being a life-changing event, many voiced concerns about the unwanted attention it attracted and how they viewed themselves as being “judged” by society. Whilst many tolerated the benefits of oxygen therapy at home, some described it as a “double-edged sword” [ 24 ]. Caregivers described oxygen as an “in your face” reminder of being sick [ 25 ].…”

Section: Resultsmentioning

confidence: 99%

Barriers to and facilitators of the use of oxygen therapy in people living with an interstitial lung disease: a systematic review of qualitative evidence

Tikellis,

Hoffman,

Mellerick

et al. 2023

Eur Respir Rev

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Background:Oxygen therapy is prescribed to treat hypoxaemia in people with interstitial lung disease (ILD); however, uptake and adherence remain an ongoing challenge. This systematic review aimed to identify the barriers to and facilitators of use of oxygen therapy in people with ILD, caregivers and health professionals.Methods:A systematic search for qualitative literature was undertaken using five electronic databases (MEDLINE, CINAHL, Embase, PsycINFO, PubMed). Qualitative analysis identified themes that were mapped to the Theoretical Domains Framework and the Consolidated Framework for Implementation Research and classified as barriers, facilitators or both.Results:A total of 13 studies were eligible for inclusion. Commonly represented domains were associated with the design of the oxygen delivery system, the associated cost, financing, stigmatisation, the physical environment and the individual needs that acted as barriers to and facilitators of the optimisation of oxygen therapy.Conclusion:Effective implementation of oxygen therapy in ILD requires more robust evidence to strengthen international guidelines, sustainable and equitable funding models, and improved oxygen delivery systems that meet the needs of users. Increased information and support for users will be critical to optimise the uptake and outcomes of this important therapy.

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“…A previous study proved that lung rehabilitation was the most effective for patients with ILD, particularly for IPF (23). Lung rehabilitation for patients with IPF includes lung rehabilitation exercise (24), symptom management (25), lung rehabilitation education, and daily care (26). Lung rehabilitation exercises can improve cardiovascular function, effectively reduce IPF-associated cardiovascular morbidity and mortality (27), improve the physical activity and quality of life of patients with late stage IPF (28,29), significantly improve the scores of SGRQ-1 and International Physical Activity Questionnaire in 24 patients with IPF (30,31), and extend the duration of constant-load exercise in patients with moderate to severe IPF (32).…”

Section: Discussionmentioning

confidence: 99%

New pulmonary rehabilitation exercise for pulmonary fibrosis to improve the pulmonary function and quality of life of patients with idiopathic pulmonary fibrosis: a randomized control trial

Shen¹,

Zhang²,

Su³

et al. 2021

Ann Palliat Med

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Background: The aim of our study is to investigate the impact of the simple breathing exercises (LHP's respiratory rehabilitation for pulmonary fibrosis, LHP's RRPF) on patients with idiopathic pulmonary fibrosis (IPF).Methods: (I) The safety and effectiveness of LHP's RRPF were first verified in 20 healthy individuals. (II) A total of 101 patients with IPF administrated in Shanghai Pulmonary Hospital between January 2015 and May 2017 were screened, and 82 cases were randomly assigned to receive a 12-month LHP's RRPF program (exercise group) or usual medical care (control group). Lung function, chest X-ray, 6-minute walk distance (6MWD), quality of life (St. George's Respiratory Questionnaire, SGRQ), and EKG were measured at the 6 th and 12 th month during the trial.Results: At the 6 th month visit, the exercise group showed improved SGRQ score and lung function parameters (FVC, FEV1, and DLCO). At the 12 th months visit, the exercise group had significantly improved SGRQ score, 6MWD, and lung function (FVC, FEV1, and DLCO) compared to the control group (P<0.05).No obvious adverse events occurred in the exercise group. The incidence of acute exacerbation and one-year mortality were 7.69% and 2.56%, respectively in the exercise group, which were lower than those (20.9% and 9.3%, respectively) in the control group.Conclusions: LHP's RRPF can delay the pulmonary function decline of patients with IPF and improve their quality of life. This breathing exercise may be an adjunct to pulmonary rehabilitation for IPF.

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End‐of‐life trajectory of coping and self‐care of patients with idiopathic pulmonary fibrosis: A meta‐synthesis using meta‐ethnography

Cited by 4 publications

References 29 publications

From the challenge of assessing autonomy to the instruments used in practice: A scoping review

From the challenge of assessing autonomy to the instruments used in practice: A scoping review

Barriers to and facilitators of the use of oxygen therapy in people living with an interstitial lung disease: a systematic review of qualitative evidence

New pulmonary rehabilitation exercise for pulmonary fibrosis to improve the pulmonary function and quality of life of patients with idiopathic pulmonary fibrosis: a randomized control trial

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