End-stage renal disease adherence questionnaire: translation and validation to the portuguese language

Abstract

Non-adherence to medical plans is recognized as an important problem in dialysis patients, since it has been associated with increased morbidity and mortality, resulting in disproportionately high costs of care. The success of renal replacement therapy depends on the adherence of patients to the different aspects of the therapeutic strategy, which includes a complex drug regimen involving a wide variety of drugs and doses, several prescribed dialysis sessions with different durations, dietetic recommendations and restriction of fluid intake. In this work, we aimed to translate and validate a previously described self-reported end-stage renal disease questionnaire (ESRD-AQ) to the Portuguese language (PESRD-AQ). After ESRD-AQ translation, a validation was performed by experts and by using a cohort of 185 Portuguese dialysis patients. PESRD-AQ reliability analysis showed strong test-retest stability across all items, with an intra-class correlation of 0.931. The average of the item-level content validity index by experts for the 46 items was 0.98, ranging from 0.94 to 1. Moreover, we found that PESRD-AQ scores indicative of non-adherence were associated with alterations in some biological and biochemical markers of non-adherence, including interdialytic weight gain. In conclusion, our results showed that PESRD-AQ, which presented an acceptable reliability and validity, is a valid tool to be used for adherence evaluation by Portuguese-speaking dialysis patients.

A modified version of the Greek Simplified Medication Adherence Questionnaire for hemodialysis patients

“…The two items of the second group cover the aspect of attendance at HD session (items 5 and 6) while the last two items of the third group focus on Fluid/Diet restrictions (items 7 and 8). The three factors (Attendance to HD session, Diet/Fluid restrictions) revealed from this study are similar to those of the study of Kim and Evangelista (2013) using the Spanish version (End Stage Renal Disease Adherence Questionnaire, ESRD-AQ) and Portuguese (PESRD-AQ) version of the End Stage Renal Disease Adherence Questionnaire (Poveda et al , 2016) while one factor (Diet/Fluid restrictions) is similar to the studies of Vlaminck et al (2001) and Albayrak Cosar & Cinar Pakyuz (2016). …”

Being on hemodialysis during the COVID‐19 outbreak: A mixed‐methods’ study exploring the impacts on dialysis adequacy, analytical data, and patients’ experiences

“…Patients from this study’ believed that adherence to protection measures was an important prevention strategy as it helped increase sense of control over the situation 42 . It is also important to highlight that the majority of patients from this sample (75%) felt well informed about the COVID‐19 pandemic and protective measures, and satisfaction with information was previously associated with adherence in patients with ESRD 43 . Therefore, this study’ findings are in line with the Frankenhaeuser's effort–distress model, 44‐47 which suggests that high distress and high coping efforts may co‐exist when the situation is perceived as highly demanding and threating.…”

Adherence to Management in Patients With End Stage Renal Disease

“…A study done in palestine using the same questionnaire as ours revealed good adherence in 55.5% cases 11 . Almost three-fourth (72.4%) patients were non-adherent to at least one aspect of the therapeutic strategy in a Portuguese study using ESRD-AQ 12 .…”