End-User Perception Towards Pervasive Cardiac Healthcare Services: Benefits, Acceptance, Adoption, Risks, Security, Privacy and Trust

Abstract

This study examined patient and caregiver's perception regarding pervasive healthcare technology using five focus groups and a 31-item questionnaire. To further develop an understanding of the benefits and functionalities that prospective patients deem as either desirable, undesirable, inadequate or in need of further development the study was categorized under 7 main headings: Personal Profile; Benefits; Adoption; Acceptance; Risks; Security, Privacy and Trust; (use of) Cell Phone. This study was completed as part of the European Union BRAVEHEALTH project, aimed at the support of cardiac patients in everyday life using in vivo monitoring and diagnosis, thereby enabling the patient to be more proactive in heath management. Most participants felt that there is a great future for this technology and showed positive response in regards to the potential benefits but are (at present) not willing to adopt the system due to concerns over reliability, like security, privacy and trust.

Using design fictions as a tool for engaging citizens in debating future pervasive health systems and services

“…However, citizen awareness of the level of information sharing and storage garnered in their use of personal health technologies is often low [6]. Several of the new personal health systems that are available offer self-health management, independent and assisted living and community healthcare benefits [7, 8,9]. They often rely on personal health data and pervasive monitoring of patients raising many ethical, legal and societal issues, which manifest as both opportunities and challenges [10,11,12,13].…”

A Systematic Approach for Developing Decision Aids: From Cognitive Work Analysis to Prototype Design and Development

“…Although studies show that there is a great future for individualized healthcare systems, user acceptance of these systems imposes greater challenges with regards to the usefulness and reliability issues [Dhukaram et al, ]. One way to address usefulness is to develop systems by understanding the constraints in the work domain, rather than assumptions or task procedures to support unanticipated events.…”

Designing the Health-related Internet of Things: Ethical Principles and Guidelines

“…Users of H-IoT have been shown to place significant trust in devices and service providers to handle their data responsibly and confidentially [36,54,55]. Trust is often a prerequisite for H-IoT systems to be viewed as privacy enhancing in the context of informational privacy [54,[56][57][58][59][60][61]. Users place trust in devices and service providers to handle their data responsibly [36,54,55].…”