Endometriosis Cost Assessment (the EndoCost Study): A Cost-of-Illness Study Protocol

Simoens, Steven; Hummelshøj, Lone; Dunselman, G.A.J.; Brandes, Iris; Dirksen, Carmen D.; D’Hooghe, Thomas

doi:10.1159/000316055

Cited by 83 publications

(69 citation statements)

References 31 publications

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“…feeling downhearted and blue), dyspareunia and pain interfering with daily activities [14]. Endometriosis decreases patients' quality of life [15] and results in a considerable loss of work productivity and associated costs [16,17,18]. More specifically, in a large multicenter study, patients with endometriosis were found to lose 10.8 h of work weekly, resulting in significant costs amounting to up to USD 456 per patient [16].…”

Section: Introductionmentioning

confidence: 99%

The Patient-Centeredness of Endometriosis Care and Targets for Improvement: A Systematic Review

Dancet¹,

Apers

Kremer

et al. 2014

Gynecol Obstet Invest

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Background: Endometriosis is a prevalent condition compromising physical and psychosocial health and thus requiring patient-centered care, which is guided by patients' values.This study aimed to find out what the patient's perspective on endometriosis care is and how the patient-centeredness of endometriosis care can be improved. Methods: Electronic databases were searched systematically, and study selection was based on eligibility and quality. Study methodology was examined. Specific care aspects valued by patients were organized according to 10 dimensions of patient-centered endometriosis care. Based on patients' assessments of service quality, patient-centered improvement targets and strengths were identified. Results: Twelve of 20 eligible studies had sufficient quality to be included. Endometriosis patients valued all 10 dimensions of patient-centered endometriosis care. Problematic service quality was reported for all dimensions but ‘coordination and integration' and ‘involvement of significant others'. Two patient-centered strengths and 29 patient-centered improvement targets were identified. The most frequently reported improvement targets on which studies agreed were ‘timely diagnosis' and ‘being believed and respected by staff'. Conclusion: Endometriosis patients value patient-centeredness in addition to effectiveness and safety of care, and its 10 dimensions require attention in clinical practice. Research into the assessment and improvement of patient-centered endometriosis care is required.

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Section: Introductionmentioning

confidence: 99%

The Patient-Centeredness of Endometriosis Care and Targets for Improvement: A Systematic Review

Dancet¹,

Apers

Kremer

et al. 2014

Gynecol Obstet Invest

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“…Endometriosis is a chronic and recurrent disease which impairs quality of life and imposes significant costs in many countries [1]. Medical and conservative surgical treatments are the current options for symptomatic patients and for those who wish to preserve their fertility.…”

Section: Introductionmentioning

confidence: 99%

Postoperative Depot Medroxyprogesterone Acetate versus Continuous Oral Contraceptive Pills in the Treatment of Endometriosis-Associated Pain: A Randomized Comparative Trial

Cheewadhanaraks

Choksuchat

Dhanaworavibul

et al. 2012

Gynecol Obstet Invest

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Background/Aim: To evaluate the efficacy and tolerability of postoperative depot medroxyprogesterone acetate (DMPA) versus postoperative continuous oral contraceptive (OC) pills in the treatment of endometriosis-associated pain. Methods: After a conservative surgery, 84 patients with symptomatic endometriosis were randomized to receive either intramuscular DMPA (150 mg) every 12 weeks for 24 weeks or continuous OC pills (ethinyl estradiol 0.03 mg and gestodene 0.075 mg) daily for 24 weeks. At weeks 12 and 24 of the treatment phase, patients rated their satisfaction with treatment and reported pain improvement and adverse effects. Results: There was no significant difference in the percentages of patients who reported satisfaction between the DMPA group and the OC group at weeks 12 and 24 (92.9 vs. 90.5%, and 92.9 vs. 88.1%, respectively). The rates of withdrawal because of persistent pain or side effects in the two groups were similar. Pain scores improved significantly in both groups, but dysmenorrhea scores on a visual analog scale at week 24 were significantly higher in the OC group than in the DMPA group (p = 0.039). Conclusion: Both postoperative DMPA and postoperative OC pills for 24 weeks were found to be effective and acceptable options for treating endometriosis-associated pain.

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“…Endometriosis costs the UK economy £8.2bn a year in treatment, loss of work and health care costs (Simoens, et al 2011). …”

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confidence: 99%

Endometriosis: The role practice nurses can play

Norton

Holloway

2016

Practice Nursing

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Endometriosis is a condition that affects around 1 in 10 women in the UK. Despite this prevalence, diagnosis is often delayed. Wendy Norton and Debby Holloway explain the role of the practice nurse in supporting women with this condition Endometriosis is a chronic condition where endometrial tissue forms lesions outside the uterus, resulting in internal bleeding, inflammation, fibrosis, and adhesion formation. It is estimated that as many as one in 10 women in the UK have this painful condition. The signs and symptoms of endometriosis vary in their severity and presentation, increasing difficulties with diagnosis. Earlier diagnosis and support may help women to manage the condition and its impact on their day-to-day lives. Endometriosis has physical, psychological and sexual health impacts on women's—and their partners'—lives. Practice nurses are ideally placed to support women with endometriosis.

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Endometriosis Cost Assessment (the EndoCost Study): A Cost-of-Illness Study Protocol

Cited by 83 publications

References 31 publications

The Patient-Centeredness of Endometriosis Care and Targets for Improvement: A Systematic Review

The Patient-Centeredness of Endometriosis Care and Targets for Improvement: A Systematic Review

Postoperative Depot Medroxyprogesterone Acetate versus Continuous Oral Contraceptive Pills in the Treatment of Endometriosis-Associated Pain: A Randomized Comparative Trial

Endometriosis: The role practice nurses can play

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