eNewborn: The Information Technology Revolution and Challenges for Neonatal Networks

Haumont, Dominique; NguyenBa, Cuong; Modi, Neena

doi:10.1159/000464267

Cited by 8 publications

(5 citation statements)

References 24 publications

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“…Data sharing requires technical and semantic interoperability, which is under development in pediatrics. [45][46][47] For pediatric research in particular, an international cooperative effort to develop a concept and terminology resource is readily and freely available. 48…”

Section: Discussion: Common Features Between Framework and Communitiesmentioning

confidence: 99%

Frameworks for Evaluating Medicines in Children

Turner

Hirschfeld

2017

Clinical Therapeutics

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Section: Discussion: Common Features Between Framework and Communitiesmentioning

confidence: 99%

Frameworks for Evaluating Medicines in Children

Turner

Hirschfeld

2017

Clinical Therapeutics

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“…Preterm and term ASU infants achieved adequate respiration after median (IQR) 9 (6-13) and 12 (7-16) min, respectively. Adequate respiration in non-ASU preterm infants was achieved after 8 (7-12) min, and after 13 (10)(11)(12)(13)(14)(15)(16)(17)(18)(19) min in term non-ASU infants.…”

Section: Effect Of Asu On Spontaneous Breathing (Table 2)mentioning

confidence: 98%

Video-Recorded Airway Suctioning of Clear and Meconium-Stained Amniotic Fluid and Associated Short-Term Outcomes in Moderately and Severely Depressed Preterm and Term Infants

Berisha,

Kvenshagen,

Boldingh

et al. 2023

Children

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Background: The aim of this study was to investigate delivery room airway suctioning and associated short-term outcomes in depressed infants. Methods: This is a single-centre prospective observational study of transcribed video recordings of preterm (gestational age, GA < 37 weeks) and term (GA ≥ 37 weeks) infants with a 5 min Apgar score ≤ 7. We analysed the association between airway suctioning, breathing, bradycardia and prolonged resuscitation (≥10 min). For comparison, non-suctioned infants with a 5 min Apgar score ≤ 7 were included. Results: Two hundred suction episodes were performed in 19 premature and 56 term infants. Breathing improved in 1.9% of premature and 72.1% of term infants, and remained unchanged in 84.9% of premature and 27.9% of term infants after suctioning. In our study, 61 (81.3%) preterm and term infants who were admitted to the neonatal intensive care unit experienced bradycardia after airway suctioning. However, the majority of the preterm and more than half of the term infants were bradycardic before the suction procedure was attempted. Among the non-airway suctioned infants (n = 26), 73.1% experienced bradycardia, with 17 non-airway suctioned infants being admitted to the neonatal intensive care unit. There was a need for resuscitation ≥ 10 min in 8 (42.1%) preterm and 32 (57.1%) term infants who underwent airway suctioning, compared to 2 (33.3%) preterm and 19 (95.0%) term infants who did not receive airway suctioning. Conclusions: In the infants that underwent suctioning, breathing improved in most term, but not preterm infants. More non-suctioned term infants needed prolonged resuscitation. Airway suctioning was not directly associated with worsening of breathing, bradycardia, or extended resuscitation needs.

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“…SwissNeoNet's aim in collaborating was to benchmark within geographical proximity and to help build a neonatal research community within Europe. After Prof. Valls-i-Soler's sudden and sad demise, Dominique Haumont from Brussels took over the initiative for a combined European neonatal network named eNewborn at which SwissNeoNet was one of the founding members (23). Thanks to eNewborn, Swiss NICUs were able to perform online benchmarking with NICUs from Belgium, Czech Republic, Portugal, and the United Kingdom, who submitted data extracted from an in-country database.…”

Section: Current Within Country and Outside Of Country Collaborationmentioning

confidence: 99%

An overview of the Swiss Neonatal Network & Follow-up Group (SwissNeoNet)

Adams¹,

Natalucci²,

Bassler³

2023

Pediatr Med

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The Swiss Neonatal Network Follow-up Group (SwissNeoNet) started as a paper based standardized data collection for very preterm born infants in 1995 for the purpose of research. It has since evolved into a sophisticated online medical registry with the chief aim of improving the quality of medical care for highrisk newborn infants through research, education and collaborative audit. In support of its aim, it collects primary hospitalization and neurodevelopmental follow-up data of various cohorts of newborns from all level III neonatal intensive care units (NICUs) and all peripheral intermediate care level IIB neonatal units (NUs) in Switzerland. It coordinates clinical, epidemiological and health-services research that provide orientation for Swiss neonatologists on how their performance compares with that of other networks, how different approaches in practices without clear evidence base associate with outcome, or how processes and outcomes evolve longitudinally. Its research also allowed former very preterm born children to express their own perception of their quality of life. SwissNeoNet closely monitors and compares NICUs and NUs and provides the infrastructure for quality improvement collaboratives. All units jointly and openly compare their performance and identify potential for changing clinical practices which has led to several local improvement projects as well as revisions of national treatment recommendations. To collaborate in research, to acquire benchmarks, and to serve as a benchmark, SwissNeoNet is actively engaged in several national and international collaborations. Receiving no governmental support, SwissNeoNet struggles with a limited budget to continuously operate a multifaceted, complex network with an electronically advanced, security sensitive infrastructure. Nevertheless, it plans expanding by connecting closer to the families and ultimately the former very preterm born children in the near future: building a patient reported outcome measure (PROM) repository and thus learning more about the parental/patient perspective will benefit clinical research, qualitative research, quality assessment, long-term follow-up recruitment and may even pave the way to later expand into citizen science and personalized health care.

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eNewborn: The Information Technology Revolution and Challenges for Neonatal Networks

Cited by 8 publications

References 24 publications

Frameworks for Evaluating Medicines in Children

Frameworks for Evaluating Medicines in Children

Video-Recorded Airway Suctioning of Clear and Meconium-Stained Amniotic Fluid and Associated Short-Term Outcomes in Moderately and Severely Depressed Preterm and Term Infants

An overview of the Swiss Neonatal Network & Follow-up Group (SwissNeoNet)

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